Danny

If you are interested in my #cpp experience, listen to this podcast episode. It's not about *me*, it's one example of a #cpp life. #SavingUstoDeath open.spotify.com/episode/5s7WyH…

@LouisSouthVA OMG. I called for my phone appt on Tuesday, apparently just a couple of hours after they took his license to prescribe. Because I was due for my next Rx's, I'm now totally out. Tried ~15 local Drs until Fri for help, but not a single one would even give me an appt. Good luck. 💔

@Dano1330 Yes, Dr. B.

Found out today that the good ol' DEA has shut down my Pain Dr. - the 3rd time I've lost a Dr to #DEAth. Even though I knew this would happen at some point, I'm stunned. Now I can't get ANY pain relief as a #cpp. So I'm officially done w/ the US HC system. 1/

@LouisSouthVA It's the end of the road for me with doctors, Louis. Not sure what happens now but it's going to be brutal. I'm so sorry for you, too. It's not fair.

@LouisSouthVA I'm so sorry, Louis. Did this happen this week? Is it Dr B in Calif? That is - was - my Dr.

@Justice4Norris Thank you so much for your thoughtfulness. No, I haven't heard from anyone & I don't expect to. I appreciate your offer to try and help but there's nothing that can be done. But I can't thank you enough for your kindness. God bless you. 🙏♥️

@Dano1330 Hey Danny, just checking in to see how you're holding up. Has anyone reached out to you about continuing your care? Apparently they're supposed to be doing it. If not plz DM me & I'll reach out to folks that've been a huge help to me. Thinking of you daily! 🙏 🫂 ❤️

@Rosesdaughter61 @Katamac1967 @50ShadesOfLynn Thank you very much, but I'm finished seeking Drs. The last 4 years have been too stressful, frustrating, costly - all things difficult to manage w/ a TBI, the source of my #cpp. It's out of my control now. But I'm very grateful for the offer. 🙏♥️

@Dano1330 @Katamac1967 @50ShadesOfLynn If you can travel to Central Florida & need a name please DM me. #Dano1330.

@cyndiannn I emailed you yesterday. I'm so new to kratom that I didn't realize I could get it locally. I'm w/in days of an emergency of Rx pain meds w/d. If I survive the next several days w/ what I bought last night, I'll be in touch. 21 yrs on meds to cold turkey? Not sure I'll survive.

@cyndiannn, this is Danny. You commented on my tweet abt losing my Dr. Can you share w/ how to get good kratom? I need it asap because I can't find another Dr. I may not survive the next week bc I've been on high-dose Rx meds for 21+ years. Any help will be appreciated.

@ExiledNoMo That's so sweet of you to say! You just gave me a warm ❤️ in the middle of hell-on-earth day for me. Thank you so much for that. 🙏♥️

@ExiledNoMo So good to hear from you! And thank you. 🙏♥️

@CDCInjury You are killing me, @CDCgov. Thanks for absolutely nothing. #SavingUstoDeath

#CDC just released the 2022 Clinical Practice Guideline for Prescribing #Opioids for Pain. The recommendations promote patient-centered decision-making to support safe and effective treatment plans for #PainCare. Learn more: ow.ly/43Bu50LooKe

@JohnStofko5 @yamesyim @NBCNews Actually it happened in Obama's America.

The CDC has softened its guidelines for U.S. doctors prescribing oxycodone and other opioid painkillers. nbcnews.to/3hclICk

@longtimeonleft @Katamac1967 @50ShadesOfLynn Isn't that ridiculous? 4 years ago, the same Dr was "chosen" by the Subox Pharma Co to be the lead prescriber of it in the general area where I live. So, he stands to make $ if I'd agreed to take it. He's 1 of those Drs who's disrespectful & arrogant, too. I'm sooo done w/ Drs.

@Dano1330 @Katamac1967 @50ShadesOfLynn 👿👿 Suboxone? As if a partial agonist will touch your pain, that is infuriating Danny. I hope someone hears your plea 🙏🏻

@karenzager @scorpio_19_11 @Varinka58341321 @ladiekerrie So sorry. Sending 🙏♥️ that you find another Dr. It's hard to be a #cpp right now - almost impossible.

@scorpio_19_11 @Dano1330 @Varinka58341321 @ladiekerrie Sir,I am a CPP, wheelchair bound.SCI & MS. I have been on the same dose of methadone for 32yrs.I was put on the med for severe nerve pain.In Jersey my doctor is retiring,cannot find a Dr who prescribes opioids.Not even the Dr who prescribed it.

@Katamac1967 @50ShadesOfLynn Exactly how I expected - no help at all. He wants me to go thru w/d and then start Suboxone. Called 15 Drs in my area yesterday & this morning: 13 said they aren't taking pain pts and 2 haven't called me back. Guess I'll see if kratom helps w/ the wd's & see if I can live w/ pain

@Dano1330 @50ShadesOfLynn How was you appt? (if you’re in the mindset to share 😞)… If you are willing to travel, I can give you some names of MDs/Clinics in AZ, NV, UT-that have been shared w/ me. I also use to see a UCLA PM MD when I had insurance that covered him. He was amazing!

@CatastropheTrai @GingerGiacomo I don't have any options left other than to try to survive w/out relief. Traveling out of the country is not an option due to LTD fixed income. Even if I found another Dr to Rx, DEA will stop them at some point. I can't go thru all of that again.

@Dano1330 @GingerGiacomo If you're done w/the US HC sys; what are your plans for your Pain Mgt. & the future? I'm seeing a lot abt Mx, but that's so scary to me.

@LynnH26159395 Ty ♥️

@Dano1330 Very Sorry Danny, it's NOT Fair!🤬

@JoshuaA28464000 Ty, Joshua, especially for the prayers. 🙏♥️

@Katamac1967 @50ShadesOfLynn I'm in Georgia, but have had to travel to TX & CA for the last 4 years to see Drs willing to Rx. Have an appt today w/ my GP, but he strongly pushed Subox when I tried him 4 yrs ago. My wife is terrified of what's gonna happen in the next several days.

@Dano1330 @50ShadesOfLynn Danny, this is truly a nightmare. I am just SO SORRY. Sadly, I have been through this & may end up going through this again. 🥺 My mom was cut-off & ended up going into heart failure, so please be careful. What state are you in ? (If you’re comfortable sharing).

@50ShadesOfLynn @Katamac1967 I think you are addressing Kat w/ this, but when I found abt my Dr on Tues, I was due for newly filled Rxs today (Thur). So I have nothing to taper down with. Hope I survive the cold turkey w/d after 20 years of (mostly) uninterrupted use of these meds.

@Katamac1967 @Dano1330 Please use that last script to taper off. Withdrawal is a beast. So please try to taper off. 🙏 💜