hypermobility.org

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hypermobility.org

hypermobility.org

@HMSACharity

Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.

UK based, virtually global :) Katılım Mart 2011
7K Takip Edilen11.4K Takipçiler
hypermobility.org
hypermobility.org@HMSACharity·
One of those weeks where loads got done but it looked like nothing moved. Wildlife was the highlight: fledglings, bees, butterflies, a bold young fox. Pic by @TheOtherKev
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hypermobility.org@HMSACharity·
The heat’s already tough and the bank holiday looks to be even hotter. Those who melt over 20°C, it's not too late to join us live at 7pm — register for replay hypermobility.org/events
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hypermobility.org@HMSACharity·
Free Ask the OT with @JBOccyTherapy, 21 May at 19:00 BST. If you’re looking for practical, realistic strategies for pacing, planning, joint protection, mobility aids, or managing daily life with a hypermobility syndrome, this session is for you. 🔗Book: hypermobility.org/event-details/…
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hypermobility.org@HMSACharity·
Ask the OT with Jo Southall 📅 21 May • 19:00 BST 💻 Free online session Bring your questions about pacing, planning, joint protection, mobility aids + everyday strategies for living well with a hypermobility syndrome. 🔗 Register: hypermobility.org/event-details/…
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hypermobility.org@HMSACharity·
It’s #SelfCareSunday! 🎉💜 We’re joining #CraftHour with hooks, needles, puzzles + games. Maybe nature, birdsong or an audiobook for you? What’s your self‑care today?
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Hypermobile Solutions
Hypermobile Solutions@HypermobileSol·
If you’ve Googled EDS, you’ve probably seen the “thumb to forearm” test. But hypermobility is more than party tricks. The Beighton Score is just a screening tool. Many people were more flexible when younger and still have instability, pain, or dislocations now. #hEDS #HSD #POTS
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hypermobility.org@HMSACharity·
Relaxation is hard. When you use half your energy just holding it together, “rest” isn’t simple. It takes practice and that can be stressful! Hence our weekly members' sessions with Kim (Mon 8pm). How do you relax? I’m a water baby, in it, near it. Forest light comes a close 2nd
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King Arthur Fan
King Arthur Fan@brandilwells·
If you’ve ever applied for public assistance or disability then you know how true this is.
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Autistic Lauren 🏳️‍⚧️ 🏳️‍🌈
Tired of people being all "You can put your mind to it if you stop convincing yourself you can't" when it comes to disabilities. Sometimes we just can't, and it's important to acknowledge what your limits are to avoid pushing yourself too far
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ThePOTSPostman
ThePOTSPostman@ThePOTSPostman·
I don’t think people realize how much chronic illness is just adjusting your expectations downward over and over, and over again.
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hypermobility.org
hypermobility.org@HMSACharity·
May isn't just about EDS, and nor is hypermobility, there are many conditions that can involve hypermobility and some of the symptoms we know come along for the ride. This #WishboneDay we remind people that Osteogenesis imperfecta isn't just about bones!
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hypermobility.org@HMSACharity·
Great finish to 3 busy days at #BSR2026. Lisa chaired a powerful session on multidisciplinary hypermobility assessment and improving care. Thanks to everyone for the brilliant engagement — the conversations don’t stop here.
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hypermobility.org@HMSACharity·
Busy day at the BSR yesterday — raising hypermobility awareness, joining the SIG, and delivering a packed talk. Today we’re back on the stand, and Lisa is chairing a hypermobility session this afternoon. #BSR2026 #Hypermobility
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hypermobility.org@HMSACharity·
The HMSA’s updated 2026 booklet is now available! 📘 Hypermobility and how to manage it • Symptoms explained • Self‑management tools • Flare‑ups • Stress & relationships • NHS navigation • Support for loved ones 🛒 Hypermobility.org/shop #Hypermobility #HSD #EDS
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hypermobility.org@HMSACharity·
‘All About Hand Therapy for the Hypermobile’ Gentle, practical session with clinical specialist Nicola Goldsmith. Newly dx & old hands welcome. 🗓️ 8 Apr 2026 ⏰ 19:00–20:00 BST 🏆 £250 voucher to be won ❓ Q&A 💻 Zoom hypermobility.org/event-details/…
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