lnrb

@nicolasberrod Ça me rappelle au début du covid-19 quand on disait au début que c'était que des clusters dans les élevages d'hermines néerlandais et que ça touchait pas les humains, puis que ok ça touchait les humains mais pas les enfants...

Le risque posé par le cluster de virus des Andes est jugé "très faible" pour la population européenne 👇🏻 • Ce virus "ne se transmet pas facilement", y compris entre humains (⚠️ selon les données connues) • Son réservoir naturel (un type de rongeur) n'est pas en Europe 1/2

@Opinions_Survey Bravo ! Quel département ? En espérant que tu puisses renouveler tes droits, si besoin, la prochaine fois, et que les autres MDPH en prennent l'exemple.

La MDPH m'a accordé l'AAH à plus de 80% ainsi que la PCH. J'ai de la chance de l'obtenir même si je ne tiens ni assis ni debout,dois me faire laver,dois pisser dans un pot. Bcp dans mon cas sont refusés à cause de la désinformation médicale auxquels sont exposés les décideurs.

@joshpuckett no worries! totally understandable, I'll install it when I'll get a new hardware :)

@lnhrbn some interface components aren't backwards compatible, yes. Sorry, it's a free project so unfortunately keeping it conceptually very simple for myself.

I’ve been waiting for someone to complete the style quiz I built in Pica to help you organize your typefaces. It’s no small task, so I wanted provide a small sense of reward with this unique poster representing your collection.

@joshpuckett Would it technically be possible to support macOS Sequoia (15), or are you relying on APIs that require Tahoe? If it’s just a deployment target choice, I’d be really interested in using it on Sequoia. Thanks a bunch

@lnhrbn Tahoe! 26.0 and up

@pausedME 2. And why some others also feel strangely better when drinking alcohol. Alcohol can also change the GABA/glutamate ratio.

@pausedME 1. Thanks for sharing Martin. I'm so sorry for the backlash you experienced. Your theory makes sense to me. It can explain why many feel better on H1 blockers; they may not all have MCAS but too much glutamate, and histamine is a precursor to glutamate.

#MECFS #pwME 1/13 Some of the responses here, conspiracy claims, personal attacks, insinuations, and insults, have been far below any reasonable standard of civil discourse. I am not posting this for that audience, but for people who are suffering.

@TomKindlon A shame hEDS wasn't included in the iCPET! Especially since they say hEDS cohort comes with SFN and widespread Dysautonomia. What's the response to vigorous cardio exercise in the hEDS cohort?!

New US research that also included a hEDS comparison group: Shared autonomic phenotype of long COVID and myalgic encephalomyelitis/chronic fatigue syndrome Free fulltext: journals.plos.org/plosone/articl… #MEcfs #LongCovid

@sunsopeningband @researchsquare @4Workwell *systolic

@sunsopeningband @researchsquare @4Workwell (what factor could cause this case of low BP at max effort, let's say 120mmHg at peak effort at 170bpm)

Our latest work now posted as a pre-print on @researchsquare: "ME/CFS and Long COVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure on Two-Day Cardiopulmonary Exercise Testing" @4Workwell researchsquare.com/article/rs-860…

@ImmunoFever How does that work in endometriosis + me/cfs? Carnitine can worsen endometriosis lesions pain. Why is that?

Wow! This has been the huge question in #IACI mitochondrial dysfunction. If lactate is accumulating why won't the mitochondria just use that for fuel? Well... Guess what else is dysfunctional? Carnitine metabolism

@ormanclark We changed idea.

make a designer cry in 3 words

@sunsopeningband What about exertion intolerance triggered by MCAS? What about vasodilation during an effort, or paradoxical decrease of blood pressure at max effort? Is that common in CPET?

Today’s unpopular opinion is maybe the worst development in Long Covid research has been confusing PESE with PEM. Just because a person may have unusual and disabling symptoms and signs after an exertion (PESE) doesn’t necessarily make it PEM. Please see the ICC-ME for details.

@miggi @figma The only issue is that it does not work in Figma Sites! Neither in the Preview mode, nor in the Published sites. Please, @figma fix this!

Your Friday reminder that the pattern fill tool in @figma is an absolute bop. Select any source that you want to be a pattern, and it live updates, and control the pattern type, scaling, spacing, and orientation. #FigmaTip

@figma What would be the best workaround for a making a website with Light/Dark mode, allowing to switch modes without going to another or dupplicated URL?

@ME_Fiona7 This might be what you're looking for! comfygomobility.com/products/majes…

Can anyone recommend a power wheelchair that reclines a bit, has a head rest (even if have to screw on) and can fold up to be put in the car. TIA 💙

@_VFK_DAA @Squashedhedgi @PutrinoLab Oh, do you know what this study is? Who leads it, which institution/hospital… I really want to check it when it is released.

@Squashedhedgi @PutrinoLab A study expected soon involves LC patients with normal CPET who experience delayed worsening of symptoms and cognitive function after cognitive exertion. Whether this qualifies as PEM is of course another question, but it is measurable through multi-day neuropsychological testing

I was asked to respond to this. Honestly I don't pay too much attention to this account because I prefer to spend energy on people and things that build community in #LongCOVID and IACI rather than curating divisiveness, but this shouldn't go without rebuttal so here we go. 1/

Having fun with shapes and elastic effect for an upcoming project… #WebDev #design

@sunsopeningband Examples: - patient struggles with standing exercises and feels better recumbent Check for livedo, POTS legs - patient feels at max capacity on the elliptical while they should be able to increase HR for their age/condition - patient needs to sit down in between exercises

@sunsopeningband PLEASE teach physical therapists how to spot ME patients, especially amongst hypermobile folks With real examples - orthostatic intolerance/issues standing - blunted HR on cardio exercices - increased fatigue - feeling wasted by just coming to the rehab place

I got invited to give a 10-hour course on ME/CFS for physical therapists, combining lecture and lab skills. It’s the first time I’ll have the chance to put this course together. I’m pretty excited about it. So, Twitter hive mind, what do I need to make sure gets in this course?