S.O.S. Parent/Guardian

"The Team is particularly keen to hear from creatives who have a personal or professional connection to #SCD and those willing to work collaboratively with patients and researchers in the design and delivery of the output." See: drive.google.com/file/d/1v75HnQ… #SickleCell #film #research

The next S.O.S. Parent Support TeleTalk is fast approaching! Call in at (713)955-6338, and enter code SICKLE (742553). #sicklecell

March TeleTalk Thursday, March 14 6:30 PM CST #sicklecell #caregiver #sicklecelldisease #sicklecellanemia #support

1. Register Today!! bit.ly/3I5Zhc8 Have you registered for the SCD Policy Forum Yet? T Here are some tips for meeting with your legislators for a successful meeting. #scd #hillday #shareyourstory #warriors #policyforum #legislator #meetings

#SickleCellAwarenessMonth Fact 10: People with SCD can experience acute pain, chronic pain, and/or both. For this reason, people with SCD should have a pain management plan established with their provider.

#SickleCellAwarenessMonth The education continues… Fact 8: A fever may be the first sign of an infection or other life-threatening, SCD-related complication, such as acute chest syndrome. Many hospital visits are due to fever alone because of the associated risks.

#SickleCellAwareness Fact 8: Fever may be the first sign of an infection or other life-threatening complication. That's why It’s important for people with SCD to go to the emergency department or hospital for any fever of 101 degrees Fahrenheit or greater.

#SickleCellAwareness fact 7: Toddlers can experience painful swelling in the hands & feet, often along with a fever. This is caused by sickled cells getting stuck in the blood vessels & blocking blood flow in the small bones of these extremities.

September is #SickleCellAwareness Month for the United States, but June 19th is World Sickle Cell Awareness Day! #sicklecellawareness Fact 6: Sickle cell disease is considered rare in the United States but has much higher incidence in Africa and South America.

September is the perfect month to get involved within the sickle cell community by contributing to research. If we want more, sometimes we have to do more. Here's an opportunity. Please share.

Day 5 of facts for #SickleCellAwareness month! SCD affects about 100K Americans. This is 1 out of every 365 Black or African-American births and 1 out of every 16,300 Hispanic-American births. About 1 in 13 Black or African-American babies is born with sickle cell trait (SCT).

#SickleCellAwareness Month - Each one teach one!! FACT 4: SCD is diagnosed with a simple blood test. In children born in the United States, it most often is found at birth during routine newborn screening tests at the hospital.

Our Sickle Cell Awareness Fundraising Campaign has begun! Please donate if you can. tinyurl.com/5bs5tf2w

September is #SickleCellAwarenessMonth! Fact 1: #SickleCellDisease (SCD) is a #blooddisorder involving #hemoglobin, a protein that carries oxygen. In SCD, abnormal red blood cells become hard & sticky & die early. This leads to a constant shortage of red blood cells.

Here's an opportunity to participate in Sickle Cell Disease research! Scan the QR code or email aevans5@twu.edu to share your interest.

Help Needed for a #SickleCellCrisis Study! Individuals can submit their interest in participating in the study via the google form linked here - forms.gle/Mt4tZ1gh2MWg9R… #sicklecell #research

Enjoying the #RoyalBall @ #WarriorsConvention23 @SCCConsortium

What an entertaining night of homecoming activities! Crowning of the court, the Jack Yates HS Drumline, a step show, a live musical performance, and the Birthday Song to the artist! What a blast! #warriorsconvention23 @SCCConsortium

Managing Expectations of Curative Therapies - Hearing from adult #sicklecellwarriors who have had a #transplant #NoMoreOpiods #sicklecell #noteasy #whatwilllifebelike #knowtheoptions #warriorsconvention23 @SCCConsortium @DrTitiFasipe

Getting information #fromthesource - @PeterHotez #warriorsconvention23 with @DrTitiFasipe @SCCConsortium #WarriorsConvention23