Adrenal Diseases 🦋

VIDEO: At long last our video about Smartphone Medical ID Apps is here! #AdrenalInsufficiency.... fb.me/KXGSRpTA

Today is international Addison's awareness day! Here is a picture that might help spreading the awareness regarding this disease. #addisonawareness #addisonday #addisonawarenessday #TogetherWeAreAIStrong

Help make it happen for MD Dogs Against COVID19 igg.me/p/md-dogs-agai… #indiegogo via @indiegogo

It's #adrenaldiseasesawarenessmonth Have a peek at our page on Facebook, as this month we'll be sharing a lot of stories of patients on how they got to their diagnosis! facebook.com/adsg.home/ It's a bit lenghty to post on limited twitter, sorry about that!

As well, we'd like to remind everyone to familiarize themselves with the stress dosing recommendations for illness in AI- and make sure you have extra steroids available at home in advance. One excellent guide for stress dosing can be found here: adrenals.eu/stress-instruc…

If you'd like to read the NADF announcement, that can be found here: nadf.us

Many of you are wondering what to do regarding preparations for the COVID-19 virus. Our friends at the National Adrenal Diseases Foundation have recently issued updated recommendations for all patients with AI to follow the CDC recommendations for higher risk groups.

@SasTrendy You should ask him for more information. Here's also a good website with a lot of information regarding symptoms, treatment, crisis, and other tidbits. addisonsdisease.org.uk/Pages/Category…

@Addisons_and_AI I see him for my hashimoto's

When diagnosed with AI, one of the most important things is to make sure you are prepared for when you go in to crisis. Best thing of course, is preventing a full blown one if possible. So let's talk injection kit!

@SasTrendy Are you seeing an endocrinologist? He should be treating you once officially diagnosed.

@Addisons_and_AI How do you know if you are in a crisis noone is treating my AI

Angi Mcelfresh Kelly Price Jadyn Wingier Julia Stangl Rohan Talim Laura Catheryn Early Sarah M Burns Deanna Nicole Brown Brandon Dailey Shawn McQuade Fifion Jones Cassie Daily Brandon Dailey Ronda Bowyer #RareDiseaseDay #Adrenalinsufficiency #AI #TogetherWeAreAIStrong

Melissa Rae Hope Carla Vandyne Brittany Moser Madelyn Eugenia Elaterman Callum Cartlidge Ryan Steele Towle Wallace Wesley Barr III Kris Clay Phillip Hobt Christina Lynn Androff Crystal Amber Sloop Natasha Sosnoski

Adrenal Insufficiency is a rare disease. So rare that the "Specialists" who should know how to care for us often just do not have the knowledge needed. They are not up to date on the newest research and treatments as they may never see an AI patient in their entire career.