Hypersomnolence Australia

Resources on a range of topics relevant to Living with Idiopathic Hypersomnia and Narcolepsy. Check back here regularly as we add to our library. hypersomnolenceaustralia.org.au/resources #LivingwithIH #IdiopathicHypersomnia #narcolepsy #LivingwithNarcolepsy

After 13 years, Idiopathic Hypersomnia Awareness Week (2013–2025) is concluding. What began as a small community-led initiative became a global awareness effort. Thank you to everyone who helped grow this movement. Michelle Chadwick Advocacy & Awareness continues!

The next Living with Narcolepsy Catch-Up 📅 Wednesday 4 March ⏰ 6:30pm AEST 👉 Register here (one-time only): forms.gle/wzhsYSqE92LxVX… Questions? Email us: info@hypersomnolenceaustralia.org.au More info about our Living with Narcolepsy community group hypersomnolenceaustralia.org.au/supportgroup

This isn’t breaking news for those living with Idiopathic Hypersomnia. But it is encouraging to see researchers acknowledge that awareness and appreciation of the full 24-hour nature of IH is lacking within the medical community. link.springer.com/article/10.100…

We’re preparing for an upcoming narcolepsy research project. If you have NT1 and would like to hear more once screening begins, register your interest here: forms.gle/GjrduCAACH6MJD… 👉 No commitment required This is simply so we can contact you when the project moves forward

The next Living with Idiopathic Hypersomnia Catch-Up 📅 Wednesday 21 January 🕡 6:30pm AEST 👉 Register here (one-time only): forms.gle/VW8bovVTMsDaYi… Any questions email: info@hypersomnolenceaustralia.org.au More info: hypersomnolenceaustralia.org.au/supportgroup

Want to improve your quality of life but don’t know where to start? This article explores realistic ways to think about wellbeing that are compassionate, achievable & grounded in lived experience - not unrealistic expectations or “push harder” advice. hypersomnolenceaustralia.org.au/single-post/ho…

Volunteers required VIBRANCE-3: Orexin Agonist Study for Idiopathic Hypersomnia MELBOURNE: trials.mlsi.org.au/trials/alks for more info, or contact: respiratorymedicine.trials@monashhealth.org ADELAIDE: Contact Alison Teare alison.teare@flinders.edu.au OR aish.sleeplab@flinders.edu.au

Alkermes has announced positive topline results from the Vibrance-2 phase 2 study evaluating alixorexton in patients with narcolepsy type 2 (NT2). Learn more: investor.alkermes.com/news-releases/…

💬 Have you experienced side effects or reduce effectiveness with the generic sodium oxybate? 👉 If you’ve noticed any side effects or how the generic sodium oxybate works for you, please complete our short feedback form. Aussies only 🔗 forms.gle/znS8oEP4pwgef8…

Update on Xyrem® (Sodium Oxybate) Supply in Australia hypersomnolenceaustralia.org.au/single-post/up…

✨Sleep DownUnder 2025 Highlights from the perspective of Narcolepsy & Idiopathic Hypersomnia ✨ 📘 Read the full report here: hypersomnolenceaustralia.org.au/single-post/sl… #SDU2025

VIBRANCE-3: Orexin Agonist Study for Idiopathic Hypersomnia - Monash is NOW RECRUITING people in Victoria trials.mlsi.org.au/trials/alks

The next Living with #Narcolepsy Catch Up is THIS Wednesday 1st October, 6.30pm AEST. Register here: forms.gle/wzhsYSqE92LxVX…

🗣️ Your voice matters. 👉 Survey: forms.gle/j4enpU89Qpi67i… This quick, anonymous survey will help guide how HA speaks up for our community in policy & advocacy. 🔒 No names or emails are collected - Please feel free to be completely open. #narcolepsy #IdiopathicHypersomnia

Meet people you can relate to - the next Living with #Narcolepsy Catch Up is Wed 1st Oct, 6.30pm AEST. More info hypersomnolenceaustralia.org.au/supportgroup Read real stories & learn about narcolepsy: hypersomnolenceaustralia.org.au/narcolepsy #LivingwithNarcolepsy #Narcolepsy #WorldNarcolepsyDay

✨Today is WORLD NARCOLEPSY DAY!✨ Read real stories, learn about narcolepsy, and find support: hypersomnolenceaustralia.org.au/narcolepsy #WorldNarcolepsyDay #NarcolepsyAwareness #Narcolepsy #LivingWithNarcolepsy

“Narcolepsy is a joke in pop culture, affecting those who have it” Dr. Aaron Schokman, a lived experience (narcolepsy type 1) Research Fellow Uni of Sydney. sydney.edu.au/news-opinion/n… #WorldNarcolepsyDay

Monday, 22nd September is WORLD NARCOLEPSY DAY! Read real stories, learn about narcolepsy, and find support: hypersomnolenceaustralia.org.au/narcolepsy #WorldNarcolepsyDay

We’re hosting an in person community catch up! 📍 River Torrens, Adelaide 🗓 Saturday 11 October ⏰ 10am For people living with #Narcolepsy or #IdiopathicHypersomnia 👉 If you’d like to join us, keep an eye on this post - we’ll share the exact meeting spot closer to the day.

Packed house! One of the true highlights of #WorldSleep2025. Thank you to all the researchers involved & @Alkermes, and @TakedaPharma for their continued commitment to advancing outcomes for people living with #Narcolepsy & #idiopathichypersomnia