Lupus Puerto Rico 🇵🇷

🟣 Muchísimas gracias a @Eramospares y @EDUCACIONPR por su compromiso y solidaridad. 🙏✨

It’s happening! 🎇 The #ACR26 Call for Abstracts opens TOMORROW, April 14. Submit your best #rheum research for peer review—are you ready to share your science? Details → acr.tw/3C3kv7B

Do you know a community #rheum who has significantly advanced the practice of #rheum w/innovations that improve the care of patients w/#rheum disease? ⚕️ If yes, consider nominating them for the ACR Innovation in Clinical Care Award by April 1. Details → acr.tw/3S9pQTS

✍️Tarea para hoy: 🖨️Imprimir y colocar el afiche en los “bulletin board” de escuelas, trabajos, organizaciones. 📲 Compartir en chats y grupos relacionados a la salud. ¡Mayo es mes de educar sobre el lupus!

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Increasing diversity in #lupus research is key to advancing clinical trials. At #ACR25, LFA shared new Research Accelerated by You (RAY) Registry findings on boosting participation & outreach—especially in Black/African American communities. Read more: buff.ly/AEvlrq8

One of the most awaited sessions at #ACR25 ! 💜 Dr. Lisa Sammaritano unveiled key #Lupus updates 👇 ✨ HCQ for all 💪 Taper steroids early 🧠 Early IS — control inflammation, minimize GC toxicity 🤝 Shared decisions matter #ACRambassador @ACRheum

Patients’ voices matter in #lupus drug development. On 10/26 at 10:30 AM CT in the Poster Hall, learn how the Lupus Accelerating Breakthroughs Consortium (#Lupus ABC)—a public-private partnership convened by the Lupus Research Alliance with the FDA and the lupus community— explored better integration of patient-reported outcomes (PROs) in clinical trials to ensure perspectives of people with lupus are fully reflected. #ACR25 #LupusResearch

Honoured to share our progress and next steps for the revised organ damage index (SDI) for #lupus at the 2025 Autumn #SLICC group meeting during @ACR2025

Walking through a patient case to discuss the ACR Lupus Nephritis guidelines.. including what to consider for complete or partial renal response! #ACR25 #ACRAmbassador #rheumx

Panelists will share data from preliminary studies of CAR-T-cell therapy treatment for lupus and review potential future therapies on Sunday afternoon at #ACR25. 🔗 Learn more → acr.tw/47Ee8rH

Excelente resumen de @DrGomezPuerta de los casos publicados hasta la fecha de enfermedades reumatológicas tratadas con CAR-T 🔬🧫🧬 #ACR25

🇵🇷 PRoud 👏

👏 Congrats to Simone Stein, winner of the Alpha Science Case Report Award for her report on a novel SLE treatment using SERMs in naturopathic care! Thank you @AlphaScienceLabs for your support! #CCNM #AlphaScienceLabs #NaturopathicMedicine #SLE #CaseReport #StudentSuccess

🏆 We’re thrilled to announce that #LupusGPT has won the @PFMDwithPatient #MadeWithPatients Award 2025! 🌍A huge moment for Lupus Europe & the #lupus community — proving what’s possible through true patient collaboration.  😃Celebrating at #EULAR2025! Come join us at booth O15!

Full house and really impressive results with CAR-T cell therapy in now 27 patients with refractory #Lupus (92% remission). Hopefully these extraordinary results can be reproduced in a larger trial. #EULAR2025 #Rheumatology #RheumTwitter

We are at EULAR 2025 in Barcelona! Come meet us at the SLEuro booth O10 in the glass walkway (floor 1) at Fira de Barcelona #EULAR2025 #SLEuroSociety

🎙️ We caught up with Lupus Steering Committee member Dr. Guillermo Pons-Estel at #LUPUS2025, shortly after his insightful fishbowl session: "What to Do When HCQ Needs to Be Stopped Due to Toxicity." Watch the video for his key takeaways from the discussion!

🫂 El impacto de los grupos de apoyo en pacientes de lupus. Gracias a la Asociación de Reumatólogos de Puerto Rico por la oportunidad. 💜🦋🫶✨🙏🇵🇷 elnuevodia.com/suplementos/pu…

💜 Today is #WorldLupusDay, and we are sending love and support to the worldwide lupus community. May is also #MentalHealthMonth, and we know the toll living with lupus can take on mental health. We’re partnering with our long-time friend and lupus advocate @selenagomez who shares a personal message to show you that you’re not alone. ✨ Learn how you can get involved with the Lupus Research Alliance at LupusResearch.org