Standing Up to POTS

Dr. Melanie Stein, ND is a leader in Cell Membrane Therapy for the treatment of complex chronic illness. she and Dr. Dempsey discuss why cell membrane health is relevant to MCAS, testing and treatment approaches, their favorite treatments, and much more. ThePOTScast.org

Some days with POTS feel dark. If you're in the middle of a "dark" day right now, this is your reminder that you aren't alone and your story isn't over. What brings you light today? #POTS #motivationalmonday #SUTP #awareness #chronicillness

Elizabeth was a teen athlete when she first became bed bound with POTS and several other conditions. Now she is back in school, working AND she has written a book -- The Toll it Took. ThePOTScast.org.

Living with POTS is hard enough. No one should have to justify their illness or pain. #POTS #motivationalmonday #SUTP #advocacy #awareness #invisibleillness

Differences in #POTS symptom severity may be based on environmental trigger: infection, physical trauma or hormonal changes. Trauma (concussion, accident, surgery) was linked with highest symptom severity. Thanks to all who responded to our survey! escires.com/articles/Healt… #SUTP

In this episode Dr. Sivakoti discusses sleep and fatigue issues commonly seen in POTS, what can be tried at home (e.g., lifestyle strategies), medications that may help, and when a sleep study may be warranted. Listen on your favorite platform or at ThePOTScast.org

Many people living with POTS worry about being a burden when they ask for help or need accommodations. Needing support doesn't make you a burden, it means you don't have to go through this alone. #POTS #motivationalmonday #awareness #chronicillness #support

Check out the new Long COVID Treatment Guide created by RTHM Clinic and The Patient Led Research Collaborative! It’s a wonderful resources, like a catalog of treatments with summaries of their evidence for efficacy treating Long COVID. Check it out at rthm.com/treatmentguide.

Julie’s recovery from POTS and other serious conditions involved an epic tale of sheer determination. Listen on your favorite platform or at ThePOTScast.org

POTS may shape your story, but it isn’t your identity. You are still the amazing person you have always been. #motivationalmonday #pots #dysautonomia #awareness #potsactivist

Dr. Dempsey is always looking for new ways to help her complex patients.  In this episode she discusses Methylene Blue, peptides, and the Nanovi breathing device. Listen on your favorite platform or at ThePOTScast.org

For a POTSie, energy is a limited resource. How do you protect yours? #motivationalmonday #pots #potsawareness #conserveenergy #chroniclife

Maggie was 14 when she started passing out, and she still does occasionally, but that didn’t stop her from getting back to school and becoming a Mental Health Therapist. Listen on your favorite platform or at ThePOTScast.org

Some days the tunnel feels endless. Still, keep going. #motivationalmonday #pots #dysautonomia #potsactivism #awareness

Two superstar Occupational Therapy experts made a workbook to help patients find their best strategies for living better with Dysautonomia. Hear all about it in this episode. Listen on your favorite platform or ThePOTScast.org

The greatest friends aren't necessarily the ones who always say the right thing, they're the ones who show up even when they don't know what to say. Tag your POTS support squad and let them know how much they mean to you! #pots #motivationalmonday #supportsquad #chronicillness

Listen on your favorite platform or at ThePOTScast.org.

Having an illness can create so much doubt, about what you could have done differently, about the choices you made, about your body. But some things can only be learned through time. If you were to write a letter to your past self, what would you say? #POTS #motivationalmonday

Surviving severe COVID was just beginning of Sophie’s health odyssey, but she is making a new life work, and helping other patients in the process. Listen on your favorite platform or at ThePOTScast.org

Asking for what you need can feel hard, especially when you’ve spent so long pushing through. Whether that's asking for accommodations or setting boundaries, you are allowed to advocate for yourself. What's one need you're learning to ask for lately? #POTS #motivationalmonday