Sickle Cell Disease Foundation

Californians with #SickleCellDisease will be #NeglectedNoMore. Watch more here: bit.ly/3zlMJYf

It brings us joy to celebrate our physicians this March 30, National Doctors' Day. Watch as our team reads heartfelt messages from patients. 💌 Watch now on Youtube: bit.ly/4hIJsY3 #NationalDoctorsDay

Women living with SCD have historically faced higher pregnancy risks with limited support. It’s time to address this gap & ensure they receive care they need & deserve. Learn more in @EricBoodman's investigative series, Coercive Care. bit.ly/4kQkKrv #WomensHistoryMonth

Thank you, @asmakilahweber, for meeting with us & the @UCSanDiego Health Sickle Cell Clinic team! On behalf of those we serve, we appreciate your ongoing support in ensuring that adults living with sickle cell disease in California are #NeglectedNoMore.❤️

#SickleCellWarriors in Southern California are facing mental health challenges due to the ongoing LA wildfires. The trauma, whether director or indirect, is affecting many. If you or someone you know needs support, reach out. Read more via @UCLAHealth tinyurl.com/2s56d8ec #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

We acknowledge that many in our SCDF family have been impacted by the devastating LA fires. If you are interested in helping those affected, we’ve compiled a list of GoFundMe Campaigns for your fellows in need. Every contribution helps! linktr.ee/SCDFoundation

Happy #NationalWomensPhysiciansDay! Today we honor the incredible female physicians, especially @TheNCSCC providers who work tirelessly to improve care for those living with sickle cell disease in California. Drop a 🩺 and thank your doctor in the comments below #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

A new study shows that individuals living with sickle cell disease exhibit brain aging 14 years earlier than their actual age, even without stroke history, and socioeconomic factors also contribute. Read more here. tinyurl.com/3uhfjw7d #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

February is #BlackHistoryMonth – a time to honor Black communities’ strength, resilience, and legacy. Join us as we continue to raise awareness about sickle cell disease, a condition disproportionately affecting Black lives. Honoring Black History, Empowering Sickle Cell Lives #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

tinyurl.com/9kftcb2y Vertex Pharmaceuticals y Orna Therapeutics se han asociado para desarrollar terapias genéticas “in vivo” para la enfermedad de células falciformes y la beta talasemia. La colaboración tiene el objetivo de mejorar las terapias CRISPR, evitando el preacondicionamiento tóxico y los procesos prolongados. Lee más aquí. tinyurl.com/9kftcb2y #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

Vertex Pharmaceuticals and Orna Therapeutics have partnered to develop "in vivo" gene therapies for sickle cell disease and beta thalassemia. The collaboration aims to improve CRISPR therapies, bypassing toxic preconditioning and lengthy processes. Read more here. tinyurl.com/9kftcb2y #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

¡Tee, el green y una oportunidad a cambiar la vida de personas viviendo con enfermedad de células falciformes! No olvides acompañarnos el 10 de marzo de 2025 para nuestro 23.o Torneo Anual de Golf Benéfico, un día lleno de golf, diversión y concienciación. Aun estas a tiempo a registrase con el precio de inscripción anticipada. Regístrese aquí. t.co/XuJ5iVX85b #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

Tees, greens, and a chance to change sickle cell lives! Don’t forget to join us on March 10, 2025, for our 23rd Annual Charity Golf Classic for a day of golf, fun, and awareness. There is still time to register for the early bird price! Register here. tinyurl.com/4zc8e587 #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

La enfermedad de células falciformes a veces no se puede entender por su complejidad y fuerte asociación con grupo étnico específicamente. Columnista Oluwatosin Adesoye comparte sobre lo que todos deben saber y entender sobre la enfermedad de células falciformes. Lee más aquí. tinyurl.com/t48ta64v

Sickle cell disease is often misunderstood because of its complexity and strong association with a specific ethnic group. Columnist Oluwatosin Adesoye shares things that everyone should know and understand about sickle cell disease. Read more here. tinyurl.com/t48ta64v

Para nuestra familia de SCDF afectada por los incendios en el sur de California, La contaminación de los incendios forestales puede afectar la salud de todos, especialmente los #GuererrosDeCelulasFalciformes. Protege su salud con estos consejos de UCLA Health y mantente seguro.🤍 tinyurl.com/2wzp8n5n

To our SCDF Family affected by the Southern California fires, Wildfire pollution can affect everyone’s health, but #SickleCellWarriors are especially vulnerable. Protect your health with these tips from UCLA Health and stay safe.🩶 tinyurl.com/2wzp8n5n

Un estudio reciente encontró que la deficiencia de Vitamina D es un factor de riesgo independiente significativo para la necrosis avascular, una complicación devastadora, en personas que viven con la enfermedad de células falciformes. Lee más aquí. tinyurl.com/2kjsj7tb

A recent study found that vitamin D deficiency is a significant independent risk for avascular necrosis, a devastating complication, in individuals living with sickle cell disease. Read more here. tinyurl.com/2kjsj7tb

@VertexPharma and Orna Therapeutics have partnered to develop "in vivo" gene therapies for sickle cell disease and beta thalassemia. The collaboration aims to improve CRISPR therapies, bypassing toxic preconditioning and lengthy processes. Read more here. tinyurl.com/9kftcb2y