European MS Platform

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European MS Platform

European MS Platform

@eumsplatform

Advocacy and expertise for over 1 million people living with #MultipleSclerosis, NMOSD and MOGAD in Europe.

Brussels انضم Haziran 2012
948 يتبع4.7K المتابعون
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European MS Platform
European MS Platform@eumsplatform·
REGISTRATIONS OPEN Join us at the EMSP Annual Conference 2026 📅 24-25 April | Berlin From Diagnosis to Access: Building data-driven solutions for MS,NMOSD & MOGAD patients across Europe. Register bit.ly/3ZQaCWq
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European MS Platform
European MS Platform@eumsplatform·
🗓️ 24–25 April | EMSP Annual Conference, Berlin From Diagnosis to Access: Data-Driven Solutions for MS, NMOSD & MOGAD 👉 Register: bit.ly/4rttOF4 @eumsyouth
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European MS Platform
European MS Platform@eumsplatform·
This is why #EMSP2026 features a dedicated session on inclusion and diversity in MS care. Because representation in research, trials and care must reflect ALL people living with MS across Europe.
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European MS Platform
European MS Platform@eumsplatform·
🧠 Donna was 17 when she was diagnosed with MS. She had plans. Dreams. A whole life ahead. "Every relapse was like a bereavement — I was losing parts of myself I couldn't get back." Her story is today's #BrainAwarenessWeek feature.
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European MS Platform
European MS Platform@eumsplatform·
That's why the #EMSP2026 Conference closes with "From Evidence to Action" — patients, clinicians & policymakers aligning on EU health reform, cross-border care & the EU Health Data Space. 🗓️ 24–25 April | Berlin 👉 Register: eu.eventscloud.com/website/19094/
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European MS Platform
European MS Platform@eumsplatform·
Her MS is invisible. The barriers she faces are not. In Bulgaria, gaps in legal protections can restrict people with MS from basic rights — including the right to study. Awareness without policy change is not enough.
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European MS Platform
European MS Platform@eumsplatform·
🧠 For #BrainAwarenessWeek, we're sharing 5 stories from 5 countries — people living with MS, NMOSD & MOGAD who pushed back against misdiagnosis and fought for their rights. Today's Story: Hristina from Bulgaria. 🇧🇬
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European MS Platform
European MS Platform@eumsplatform·
Better data means faster diagnoses, better care and research that actually reflects the lives of people with Ms, NMO & MOGAD Join us at the #EMSP2026 Conference session on: Registries Patient outcomes Ethics of data use ⏰ Early bird rates ending soon 🔗bit.ly/4rttOF4
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European MS Platform
European MS Platform@eumsplatform·
4/ And to the women of the EMSP Board and Secretariat: Federica Balzani, @Lili_Bxl , Jana Hlaváčová, Tania Pilz, Anna Revilla, Aoife Kirwan , Nele Vanbilsen, Kanika Kohli, and Krystalenia Ampreou — thank you. 💙
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European MS Platform
European MS Platform@eumsplatform·
3/ Louise Parker Buch — nurse, PhD researcher, patient advocate — is working to ensure digital health innovations in MS care reach the people they're designed for. Closing the gap between innovation and access.
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European MS Platform
European MS Platform@eumsplatform·
8th March is International Women's Day. We're spotlighting the women of our Scientific Advisory Board — three researchers, three corners of neuro-immune science, one shared mission. 🧵
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European MS Platform
European MS Platform@eumsplatform·
This #IWD2026 EMSP is turning awareness into action. Two sessions at #EMSP2026 putting women at the centre of MS, NMO & MOGAD: 🔥 Menopause & MS — Prof. Ruth Dobson 🧪 Clinical Trials: Who does the science serve? Register today bit.ly/4a8w92I @DMSG_BV
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European MS Platform
European MS Platform@eumsplatform·
Patient registries show how treatments work over time and what truly matters to patients. To use registry data in regulatory and #HTA decisions, we need clear standards and patient trust. Input on use of registry data in health decisions 👉 Take the survey-bit.ly/4kUh0G3
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European MS Platform
European MS Platform@eumsplatform·
The 3rd MS Barometer Working Group meeting brought together patient organisations & experts from Europe to refine the 2026 Barometer. This edition expands to include NMO & MOGAD — a major step toward more inclusive neuro data & stronger advocacy. Thank you to all involved.🙏
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European MS Platform
European MS Platform@eumsplatform·
61% of people with MS experience sexual problems or dysfunction - and it's rarely addressed in clinical care. Our "Let's Talk MS" episodes explore relationships, communication & sexual health for people with MS 🎧bit.ly/3Mo3eic 🎧bit.ly/4aMZZtL #ValentinesDay
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