ALDConnect

@Eichler_Lab Dr. Florian Eichler presenting at the @alexTLCsupport conference!

@Eichler_Lab is now on Twitter! Be sure to follow Dr. Florian Eichler and his lab to stay up to date on their research!

Exciting research study opportunity! The University of MN is looking for girls & women ages 14-25 with a family history of X-linked adrenoleukodystrophy (X-ALD) to share their experiences to improve medical care for girls & women with X-ALD in the future. umn.qualtrics.com/jfe/form/SV_1M…

ALD Connect 2022 Ambassadors of the Year: Christie Higuera and Ken Dieffenbach. Congratulations to you both!!

Kathleen O’Sullivan Fortin opening the Patient Learning Academy this morning and sharing many exciting updates from ALD Connect! #ald #amn #aldconnect

A highlight from day 1 of the ALD Connect Annual Meeting today was our amazing patient experience panel!

We’re excited to be headed to Baltimore for the 2022 @ALDConnect Annual Meeting and Patient Learning Academy to continue to raise awareness, accelerate scientific advancements and improve health outcomes for patients with ALD. Click here for more info: bit.ly/3z1WRY1

Welcome to the 2022 Annual Meeting & Patient Learning Academy! Please consider making a donation at the link below. All donations will be matched up to $50,000 by our angel donor. #ald #amn #aldconnect aldconnect.org/donate/

Call in now to discuss what treatments you’ve tried, what’s worked, what hasn’t, and what you want to see for future treatments of adult ALD and AMN at the #ALDPFDD

The afternoon awaits – please join our friends at @aldconnect & share your voice with the FDA. #ALDPFDD #raredisease aldconnect.org/pfdd-english-l…

You're doing a great job Kathleen O'Sullivan Fortin ... and looking so good on camera! #ALDPFDD #RareDisease #ALD @ALDConnect

Our friends at @aldconnect have kicked off the ALD community's EL-PFDD meeting #ALDPFDD

Symptomatic adults with ALD and AMN or their caregivers, get ready to call in live for the #ALDPFDD and join the meeting live at aldconnect.org/pfdd. Make sure your voice is heard!

Symptomatic adults with ALD and AMN or their caregivers, submit your comments for the #ALDPFDD by emailing pfdd@aldconnect.org and join the meeting live at aldconnect.org/pfdd. Make sure your voice is heard!

Join us for live polling! #ALDPFDD. Watch live at aldconnect.org/PFDD

Join us live for the #ALDPFDD now! Go to aldconnect.org/PFDD to watch and join the conversation!

Thank you for your support! #ald #adrenoleukodystrophy #aldconnect

Our Annual Meeting and Patient Learning Academy would not have been possible without our sponsors. Thank you!

Thank you to everyone who made our 2020 ALD Connect Annual Meeting and Patient Learning Academy a success! #aldconnect

Dr. Molly Regelmann, Dr. Troy Lund, Dr. Keith Van Haren, Dr. Florian Eichler, and Dr. Joshua Bonkowsky answer questions from the ALD community during our “Ask the Experts” panel. #ald #adrenokeukodystrophy #aldconnect