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Susan
24.8K posts
Susan
@BlackshepSusan
I will not be quiet. No more 🤐 Campaigner to raise awareness that psychiatric drugs are not as safe and effective as advertised. There are better ways.
Beigetreten Nisan 2018
4.8K Folgt4.7K Follower
The Doctors that have taken psych drugs and have been harmed from too fast tapers are using terms like neurological injury.
Most Doctors have no education or training on how to safely deprescribe the drugs they hand out like candy. They have been taught that withdrawal is a few weeks/ minor and people can come off quickly even after long term use.
It's a systemic failure and the casualty heap is already massive.
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@BlackshepSusan Drs can't provide accurate language, since they never took the drug themselves. The report is all patients account. And most patients don't have label for all their feelings.
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Susan retweetet
@RyanMalphrus I think a more generous & accurate framing than "they gave their agency away", is that they trusted the medical profession to do what it professes. They sought help, took their drugs as requested, & never dreamed the truth about harms wasn't disclosed.
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@deNutrients It is very complicated. For me I am not interested in experimenting with anything that can trigger cns symptoms. I lived through hell and do not want to risk my hard fought for recovery. Good food, sunlight, exercise, sleep, mindfulness, breathing have worked wonders.
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That is normal, start low and go slow, and the body handles it better. The heat is literally inflammation being removed directly as heat, so that is the good part to remember during the itchy half hour to one hour. The niacin flush was more intense for me when I started than after staying with it daily for a while.
I mentioned niacin specifically in response to your mentioning "burning skin" or something like that. Deficiency of niacin can cause rashes and burning feet sensations.
* This really is more complicated that social media texting supports.
**But I don't like pain and I care 😘
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@deNutrients Thanks. I'm nearly 8 years off and have recovered.
Taking any supplements is still dangerous to my cns. I tried a very low dose niacin and my whole body went scarlet red and burning. It only lasted a few hours thank God but it was a reminder take nothing!
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@BlackshepSusan Niacin may help. All the Bs, Epsom salt soaks.
I am sorry for your pain and how the industry ignores harmed people.
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It still doesn't explain things like inability to regulate body temp. I had months of pouring sweat to teeth chattering cold cycles numerous times day and night. Intense bladder urgency right after peeing (empty bladder). Racing heart, air hunger, passing out, raw burning skin etc.
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Liver injury causes over activation of vitamin A and carotenoids and that causes an immune response that leads to histamine excess which is mania/paranoia.
Poor methylation and sulfation pathways word make things worse.
I had a bad reaction to olanzapine and had to figure it out to get better. Cannabinoid balance is a factor too. Or lack of endocannabinoids worsens things because it helps inhibit the mast cell degranulation that releases histamine and inflammatory cytokines.
Does that sound complicated....
Yes... because it is
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@deNutrients I think that may explain some of the symptoms but not all.
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@BlackshepSusan Retinoic acid and histamine excess....
Hope that helps
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Maybe you should do a bit more research into psychiatric drug protracted withdrawal/neurological injuries.
There are hundreds of thousands on line begging for help from these injuries bc experts like yourself are not educated.
Functional neurological disorder (FND) is a favorite diagnosis for these psych drug injuries.
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@morgan_stewar I’m a neuroscientist & addiction specialist.
Your anecdotes are bullshit and you know it. You have a sample size of two & still insist that your suffering is greater than all others.
We call that a personality disorder, Morgan, but people like you must pathologize to be special.
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I admittedly have never withdrawn from heroin. I have, however, withdrawn from one of the few drugs whose withdrawal can be fatal. With the support of a medical detox center following a hospitalization, I got sober from alcohol 13 years ago next month.
My spouse, a former heroin user who has also been sober for more than a decade, and I have often talked about how profoundly different and far more severe my injury from SSRI withdrawal has been than anything either of us experienced with withdrawal from alcohol or heroin. The same is true for every person we’ve known in our sober community. But, addiction and dependence are fundamentally different. Even so, my SSRI withdrawal injury was far more traumatic and debilitating than anything I experienced with my past addictions.
This is the reality for hundreds of thousands of people in online support groups, making me terminally unoriginal, actually.
LadyBossert@bossert_l
This is such nonsense. She’s more special & terminally unique than people going through heroin withdrawal. Even as she admits that SSRI w/d ‘only produces physical dependence’ & opiates involve psychological addiction too. Willing to bet she didn’t sell her soul for SSRIs tho🤔
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Susan retweetet
It's unfortunate that Morgan is terminally unoriginal. If only her story were an exception that could be put down to some sort of personality defect then we wouldn't have such a disquieting problem on our hands of widespread neurological withdrawal injuries from such a commonly used class of drugs.
Morgan Stewart@morgan_stewar
I admittedly have never withdrawn from heroin. I have, however, withdrawn from one of the few drugs whose withdrawal can be fatal. With the support of a medical detox center following a hospitalization, I got sober from alcohol 13 years ago next month. My spouse, a former heroin user who has also been sober for more than a decade, and I have often talked about how profoundly different and far more severe my injury from SSRI withdrawal has been than anything either of us experienced with withdrawal from alcohol or heroin. The same is true for every person we’ve known in our sober community. But, addiction and dependence are fundamentally different. Even so, my SSRI withdrawal injury was far more traumatic and debilitating than anything I experienced with my past addictions. This is the reality for hundreds of thousands of people in online support groups, making me terminally unoriginal, actually.
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Susan retweetet
My doctors told me I had incurable mental illness.
I was a kid. At that stage, you are just beginning to figure out who you are.
But because of this, I stopped trusting my own experiences and started trusting the label.
That label created a medicalized self-understanding that I eventually could not see beyond.
It hijacked how I made sense of who I was.
@Doctortro @BrianLenzkes
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People need to be afraid of SSRI'S. They need to know the dangers of taking them for longer than the 6-12 week research studies. They aren't harmless little pills that "fix" depression. They cause adverse effects, nervous system/physical dependence, meaning without the drugs the entire cns can't regulate normal bodily functions.
Do your own research. Don't blindly trust Doctors.
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The rudest awakening for me was discovering the hundreds of thousands of people on line begging for help from serious psychiatric drug harm.
I realized I was far from rare and that most Doctors know very little about adverse effects, physical dependence and withdrawal.
Do your own research. Save yourself from potential years to recover from the neurological injuries
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@thebradpinder I am so sorry you lost your Rico. It's so hard. I miss and think of my dog Jack everyday.
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Today is one of my worst days. Today, I say goodbye to my heart. My dog Rico. He's better than any human I've met. I'll miss and think about him every day till I leave this shitty world.
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Susan retweetet
The @nytimes continues to miss the key issue in the story of SSRI withdrawal. @morgan_stewar tries to explain. I think it is true that 'protracted withdrawal', while it has become the default term, is misleading because it implies that re-instatement will work (it often doesn't) and that it is relatively short-lived, rather than the debilitating nervous system injury that it can so often be.
Morgan Stewart@morgan_stewar
@EllenBarryNYT gets many things right in the recent NYT The Daily podcast (link in comments), but there is a discrepancy in the reporting when suggesting that SSRI withdrawal is less serious than heroin withdrawal since it's later acknowledged that we don’t have sufficient data on long-term SSRI use (and therefore long-term withdrawal outcomes). Of course, comparing heroin to antidepressants is imperfect to begin with since antidepressants are not psychologically addictive (but produce physiological dependence). We know that “withdrawal” for many people is not a few weeks of flu-like symptoms or mild dizziness and nausea as described in the podcast. It can be years of debilitating insomnia, terror, severe cognitive impairment, profound emotional distress and so much more. It can be life-devastating, ending jobs, marriages, and friendships. The suffering is so severe and life-altering that many of us end up dedicating our lives to changing how these drugs are prescribed and deprescribed, having made our way into federal policy discussions. "Withdrawal" is a misnomer and that is part of the problem here: we are using the wrong language, effectively defanging the issue. We are not experiencing withdrawal as withdrawal is understood colloquially, we are experiencing neurological injuries, subjected to years of (mostly preventable) suffering.
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Susan retweetet
Did you know that Viagra was originally developed and tested as a drug for high blood pressure and angina?
The erection it produced was initially noted only as a “side effect” during clinical trials.
But that “side effect” proved so commercially valuable that it became the primary marketed benefit, while the original intended uses faded into the background.
More broadly and with all prescription drugs, the choice of what to frame as the main therapeutic effect versus an adverse one is often a marketing decision rather than a purely scientific one.
In this clip, our founder, @LauraDelano, reflects on this and how the term “side effect” is used with psychiatric drugs and why that framing matters.
She was talking here on the How I Healed podcast with Jocelyn MacDonald and Mary Lou Singleton. It was first published in March 2024 and you can listen to it all through the link in our bio.
What mental health industry terms did you encounter that you later realized were not quite what they seemed?
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@FurryTwister @Psychiatry_Anti No one wants to spend years tapering and healing from taking antidepressants as prescribed without any warnings that they cause physical/neurological dependence.
You have no choice.
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Susan retweetet
Having windows of minimal to almost no withdrawals has totally changed how I used to take so many things for granted in life. An hour of clear thinking, no upset gut and only minimal body pain is like winning the lottery. If nothing else, these last 66 months (and counting) of tapering has taught me to be far more grateful.
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I'm so glad to hear you are getting windows! You've already done so much healing.
Recovering from protracted withdrawal from antidepressants and benzos has made me so grateful everyday for having myself and a life back.
The whole psych drug then withdrawal injuries then recovering has totally changed my perspective on life in a very good way.
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I sued Effexor after my dr recommended I take it while pregnant - she showed me the black box and still guided me toward using it - protecting herself from litigation was her mo. My son was born with couple of heart defects and had to see a pediatric cardiologist until it closed 🙏on its own when he was about 8. I would never have taken that drug had I known the real risks. I now have pssd but my son is a US Marine - strong and past any damages that were done to him prenatally - I never received a dime from the class action lawsuit because my son didn’t end up like many others did.
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' Poverty will cause them (pregnant women)not to eat - not depression. There is no evidence even severe melancholia causes birth defects.The idea that a woman’s mental state harms her unborn child is primitive medieval thinking.'
rxisk.org/adhd-asd-and-d…
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