CF START

Hello from the CF START team! Please follow us to find out more about the study. Tweets are for families living with CF, their CF teams, and anyone interested in CF research! More info can be found here: cfstart.org.uk

Don’t miss your opportunity to travel to @GreatOrmondSt for the MBW test. When your local team approaches you, when your @CF_START child turns 3, make sure that you complete the paperwork and return it to clinic before the referral deadline. @livuni_LCTC @cftrust #cysticfibrosis

✨100✨ successful MBW tests on @CF_START! What a wonderful way to start #CFweek 2025! Many thanks to our superstar Physiologist @Mollie_Riley95 and her team @GreatOrmondSt who work so hard to make these visits enjoyable and successful! @livuni_LCTC @cftrust #cysticfibrosis

A huge thank you to all of our @CF_START families for contributing to this important study in 2024♥️ Thanks also to our sites for your commitment and hard work. Keep entering that follow-up data!😊 With warm wishes for a peaceful holiday season from Kevin and the @CF_START Team

We hope you all had an amazing summer🌞 We keep receiving amazing feedback from @CF_START families that have travelled to @GreatOrmondSt for the MBW/lung function tests. The Physiologists always make it fun and keep the atmosphere very relaxed. @cftrust @livuni_LCTC

Don’t miss your opportunity to travel to @GreatOrmondSt for the @CF_START MBW & Lung function tests. Your local team will approach you when your child turns 3 to ask if you would like to take part. Here is little star🌟 having her MBW assessment! @cftrust @livuni_LCTC

✨1000✨ patients randomised into CF Registry based trials (CF START and CF STORM)! What an achievement and what a great resource the CF Registry is for our community @CF_START @cfstormstudy @cfstrust @livuni_LCTC #cysticfibrosis

Please keep up your support for @CF_START by referring eligible children for the MBW measurements at @GreatOrmondSt 😊🙌 With warm wishes for a restful and hopefully not too rainy ☔️spring break, from Kevin and all of the @CF_START Team. @livuni_LCTC @cftrust #cysticfibrosis

Liverpool's Royal Liver Building illuminated in Yellow to celebrate the 60th anniversary of the @cftrust, tonight 20th February. Thank you for all that you do for people with #cysticfibrosis and their families. #lightupforCF @livuni_LCTC

Superb feedback from a family who visited @GreatOrmondSt for the MBW/lung function tests. Here are some of the games that we use to get the best results from the children when they visit. Ask your local team if you'd like your @CF_START child to take part @cftrust #cysticfibrosis

A huge thank you to all our @CF_START sites for your commitment and hard work in 2023. The year when we met our recruitment target! Hooray! With warm wishes for a peaceful holiday season from Kevin and all of the @CF_START Team. @livuni_LCTC @cftrust @NIHRCRN_nwcoast

Now that recruitment is complete, lets focus on our key secondary objective, and get as many @CF_START children to visit @GreatOrmondSt for the MBW/lung function tests as we can! Here are some pictures of a happy little research contributor with our physiologists Mollie and Ross.

Congratulations to Siobhan Carr @BromptonHeart, Kevin Southern @AlderHey, Malcolm Brodlie @NewcastleHosps, Lena Thia @CV_UHB, Noreen West @SheffChildrens for being our top 10 recruiters! A huge thank you to all of our sites for thier dedication to @CF_START. @livuni_LCTC @cftrust

Some more wonderful feedback from another @CF_START family who have visited @GreatOrmondSt for the MBW/lung function tests. This opportunity is open to all @CF_START children when they are 40-48 months old. Ask your local site team if you would like your child to take part.

✨ Welcome to CF Week 2023! ✨ Join us as we come together, raise awareness of #cysticfibrosis and unite for a life unlimited. Head to our website to find out how you can unite with us this CF week. 💛 ➡️ ow.ly/GnjR50OKAOB

We continue to ask @CF_START families to join us at @GreatOrmondSt for MBW/lung function tests. Your local site team will get in touch with you about this when your child turns 3yrs old. It is an opportunity not to be missed! Travel and accommodation expenses will be covered.

Recruitment into the @CF_START study is now CLOSED! A massive thank you to the families who helped us achieve our target of 480. We continue to follow all the babies in the study and, with all the data collected, we are confident that we will answer the trial question in 2027.

I am very pleased to announce that we have now met our @CF_START recruitment target of 480! Congratulations to Dr Maya Desai and her team at @Bham_Childrens Hospital for randomising the 480th baby for us this afternoon! @livuni_LCTC @cftrust @NIHRCRN_nwcoast #cysticfibrosis

Only 4 more recruits needed for @CF_START! Wishing you all a restful and hopefully sunny spring break! @livuni_LCTC @cftrust @NIHRCRN_nwcoast #cysticfibrosis

Can you believe that we only need 5 more participants for @CF_START! What a superb effort from all - Thank you! This the final push to finish recruitment for this trial - we can do it! @livuni_LCTC @cftrust @NIHRCRN_nwcoast #cysticfibrosis

@jackironeill Hi Jacki, If you email cfstart@liverpool.ac.uk we can send you a recording of the MBW Q&A session

@CF_START @GreatOrmondSt @livuni_LCTC @cftrust @NIHRresearch Could you share link or details to access please

Please join our Research Physiologists, Mollie and Ross, from @GreatOrmondSt for an virtual MBW Question & Answer session on the 16th February at 1pm. All welcome. @livuni_LCTC @cftrust @NIHRresearch #cysticfibrosis