
Cardiomyopathy UK
8.7K posts

Cardiomyopathy UK
@Cardiomyopathy
UK charity supporting families affected by heart muscle disease. For free specialist advice, freephone 0800 018 1024 or email [email protected].
Beigetreten Mart 2009
455 Folgt5.2K Follower
Angehefteter Tweet

We are no longer active on X and our account will no longer be monitored. To keep up to date, follow us on Facebook, Instagram or LinkedIn. Alternatively, our website is full of useful information:
📲 cardiomyopathy.org
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Research reveals why hypertrophic #cardiomyopathy may be underdiagnosed in women.
theguardian.com/science/2025/j… Learn more: bit.ly/3WdhhJb #HCM
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❤January Support Group Meetings💚
🌐cardiomyopathy.org/support-groups
📩services@cardiomyopathy.org
(PLUS Coffee & Catch Up Fridays at 2pm!)☕️💌
#cardiomyopathy

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We have a new podcast called ‘Cardiomyopathy Conversations’ with Cardiomyopathy UK Trustee Libby Jarman! 🎙️❤️
In the opening episode, Libby talks to Professor Perry Elliott about all things cardiomyopathy. 🩷💬
Follow the link below to listen:
📲 buff.ly/3BlZB6V

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Exciting news! 🎉 In 2025, we’ll begin funding research into cardiomyopathy to create a future where everyone with the condition can live a long, fulfilling life. ❤️ Learn more about this milestone and how you can get involved:
📲 buff.ly/4il2UM2
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❤ Cardiomyopathy UK December Support Group Meetings ❤️
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For more information :
🌐cardiomyopathy.org/support-groups
📨services@cardiomyopathy.org
(PLUS Coffee & Catch Up every Friday at 2pm!)
#cardiomyopathy 💌

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UK study shows that dilated #cardiomyopathy can be caused by the cumulative influence of hundreds or thousands of genes, not just by a single faulty gene 🧬 news-medical.net/news/20241121/… #DCM
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We hosted our #CardioConference 2024 on Saturday, and what an incredible day it was!❤️
We want to say a huge thank you to everyone who attended, volunteered, and spoke.🌟
The talks will be on YouTube in early 2025. Join our mailing list for updates:
📲 cardiomyopathy.org/stay-touch

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Cardiomyopathy UK retweetet

Such a great day of talks at the @Cardiomyopathy conf in London. I talked about how #ACT can help people with cardiomyopathy & shared the progress we've made together this year. Looking forward to more of this in 2025 ♥️

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Thank you @Cardiomyopathy for asking myself & @Emma_OMalley to speak at the National Conference 2024 on Genetics & Family Planning. It was an honour & fantastic opportunity to touch base with patients & colleagues; bring on 2025 & further collaboration #cardiogen @theAGNC @RBandH



Wandsworth, London 🇬🇧 English
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We are working together to improve lives of Cardiomyopathy patients!!
Dr Malcolm Finlay@mcfinlay
Just great to meet @stephanie2453 at @Cardiomyopathy and to be invited to talk about cardiac tests. A super opportunity to meet and discuss with patients and professionals and about all we do… so nice to see some of my ☺️ patients in the audience looking great 😁
Croydon, London 🇬🇧 English
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if you have cardiomyopathy or myocarditis (or have a family member with cardiomyopathy) and you're interested in joining the Heart Hive - thehearthive.org
Just give us some basic details and we'll connect you with research. It's up to you which you take part in!
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Back to this platform after years of forgetting I have an account ☺️ I was in London today and am so proud to have been awarded the Carolyn Biro award with @Cardiomyopathy 💖 Mum, Tilda and I have had the best day 💖 I am so thankful x

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A fantastic day @Cardiomyopathy conference raising awareness of #PPCM to help save mothers’ lives.
✨Please share to spread the word and encourage others to take the #PPCMPledge✨
Cardiomyopathy UK@Cardiomyopathy
@mwrebeccajarman is at the #CardioConference today giving a talk on peripartum cardiomyopathy (PPCM) and the #PPCMPledge Learn more: 📲 cardiomyopathy.org/about-cardiomy…
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Cardiomyopathy UK retweetet

An excellent day at the Cardiomyopathy UK National Conference 2024! Lovely to see so many people interested in the Heart Hive’s mission to open up research to more people with #cardiomyopathy and #myocarditis

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Another fantastic @Cardiomyopathy conference! 👏👏👏
Gr8 to learn & meet w/ fellow trustees, staff, volunteers, members & nurses ☺️
Pls never feel alone if you are impacted by #cardiomyopathy-we are here for you! 🤗

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Cardiomyopathy UK retweetet

@Cardiomyopathy CEO @joel_d_rose closing a fantastic patient conference. Fantastic day meeting with people affected by the condition and sharing the work of the charity. 👇👇👇

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Cardiomyopathy UK retweetet

Our President Professor Perry Elliott & Trustee @libbyjarman perfectly positioned to promote their new ‘Cardiomyopathy Conversations’ podcast 🎙️❤️
Keep an 👁️ on our social media accounts for more details…
#cardiomyopathy #cardioconference #ppcmpledge

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