Joanne Holloway
55K posts

Joanne Holloway
@CharmingAngelCo
Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future suffering



Viruses don’t just infect. They reprogram. New research suggests CMV and other herpesviruses may travel from the gut to the brain via the vagus nerve, triggering inflammation that alters cognition. Not just Alzheimer’s. In our clinic, we see reactivated EBV, CMV, HSV1, HHV-6 in kids with autism, PANS, regression. This isn’t rare. It’s just rarely tested. Gut. Brain. Microglia. Immune. It’s all connected. Link to study in comments 👇 #Neuroinflammation #GutBrainAxis #PANS #PANDAS #Autism #ViralReactivation #CMV #EBV #HHV6 #Microglia #FunctionalMedicine #RootCause



This Family Day, we honour families showing up for a loved one battling #PANS #PANDAS. Long appointments. Hard conversations. Small victories. Quiet courage. And when community shows up too, the weight feels lighter. Hope feels stronger. Healing feels possible. #FamilyDay

Connective tissue disorders are a common comorbidity in those suffering from: - Long COVID - ME/CFS - MCAS - POTS What might be the thread that connects these conditions together? We recently surveyed the medical literature to find answers and published our findings on Jeannie Di Bon's blog, Founder and CEO of The Zebra Club. Here is what we found: jeanniedibon.com/me-cfs-eds-lon…

Nobody told you histamine could do this. Histamine is a daytime chemical. It rises with the sun and drops at night. In children with PANS and PANDAS, mast cells keep firing and it stays high. The body fights back with adrenaline. Adrenaline triggers more histamine. Histamine. Adrenaline. More histamine. Loop on loop. At night this looks like hyperactivity, anxious chatter, sudden irritability, sweating, flushed skin, restless legs, an OCD flare. Melatonin won’t touch it. This is chemistry stuck in fight-or-flight. If your child’s nights look like this, histamine is where I would start looking. #MastCells #Histamine #PANDAS #PANS #FunctionalMedicine





If you are planning to respond to the SEND consultation, our latest article 'New SEND White Paper Published' is a good starting point for the PANS PANDAS community. panspandasuk.org/post/new-send-… #PANSPANDASCommunity #SENDConsultation #ParentVoice




