Bladder Confusion

1.1K posts

Bladder Confusion

Bladder Confusion

@ConfusedBladder

Chronic UTI/rUTI/IC/PBS patient, depending on who you ask . . .

The loo, mostly Beigetreten Aralık 2018
230 Folgt701 Follower
Bladder Confusion
Bladder Confusion@ConfusedBladder·
"the immune system has a dual role as protector and cause of disease: in addition to being protective, increasing evidence shows that innate immune responses can become excessive and cause acute symptoms and tissue pathology during infection."
Malcolm Starkey 🏴󠁧󠁢󠁷󠁬󠁳󠁿🇦🇺🥋🥼@malcolm_starkey

Immunomodulation therapy offers new molecular strategies to treat UTI | Nature Reviews Urology nature.com/articles/s4158…

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Jane Currie
Jane Currie@janecurrie·
Positive tweet! Emotional and happy day today, very grateful to my wonderful supervisor @PrenatalTherapy for supporting me all the way through my PhD with @UCL_IfWH. A proper inspiration! We missed @JamesMaloneLee3 and @catpeejay. Ceremony delayed by Covid but worth the wait. ☀️
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UTI Global Alliance
UTI Global Alliance@GlobalUti·
@ConfusedBladder Thank you so much for this reply, this is exactly what I was looking for! It might take a bit but we will try to compile a reference sheet or something with that information to pin to the channel for patients to see / access.
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UTI Global Alliance
UTI Global Alliance@GlobalUti·
I'm especially interested in if this account can be a better resource for UTI researchers, clinicians who diagnose and treat UTIs, and, importantly, patients who suffer from UTIs.@ChronicUTIAus @ConfusedBladder @BladderHealthUK @cuticuk @liveUTIfree
UTI Global Alliance@GlobalUti

We're focusing a lot right now on drumming up excitement for our upcoming conference, but that’s not the only purpose of this account. What other kinds of content would you like to see from us? I'll try to make it happen :) #UTI #chronicUTI

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Bladder Confusion
Bladder Confusion@ConfusedBladder·
@GlobalUti @ChronicUTIAus @BladderHealthUK @cuticuk @liveUTIfree Honestly, the more clinicians and professional accounts that can clearly and concisely explain the limitations of current UTI testing and the complexity of UTI/chronic UTI the better. It gives patients the information to try to take to their doctor, and clinicians/researchers 1/2
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Bladder Confusion
Bladder Confusion@ConfusedBladder·
@chrisharding123 I hope you feel on a more even keel soon, chronic illness can just be so relentless. 😊
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Chris Harding
Chris Harding@chrisharding123·
Due to ill health I have stepped down as mesh lead with immediate effect and will therefore no longer be engaging on social media on this topic 1/2
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Bladder Confusion retweetet
Prof Jennifer L. Rohn
Prof Jennifer L. Rohn@JennyRohn·
Listen to women and their experiences and symptoms. Too many UTI sufferers are fobbed off after “failing” ancient diagnostic tests that the scientific literature has long since shown are flawed. We need more empathy, more research funding —> better tests and treatments
CUTIC@cuticuk

Guidelines are letting down patients with chronic UTI. Thanks to the inews for highlighting this debilitating, life-changing condition. inews.co.uk/inews-lifestyl…

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Bladder Confusion
Bladder Confusion@ConfusedBladder·
💯 In my experience: - UTI fails to respond to culture indicated abx -> "it was probably just a contaminated sample" - UTI responds to non-culture indicated abx -> "it was just residual inflammation that resolved" - UTI responds to culture indicated abx -> "of course it did"
Chris Harding@chrisharding123

@thebladdergroup An alternative explanation may be that the prevalent bacteria isolated from cultures may not be the species causing symptoms - something the late James Malone-Lee suggested decades ago. Although I suggest an additional explanation for their findings I 💯 agree with the conclusion

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Bladder Confusion retweetet
Chris Harding
Chris Harding@chrisharding123·
@thebladdergroup An alternative explanation may be that the prevalent bacteria isolated from cultures may not be the species causing symptoms - something the late James Malone-Lee suggested decades ago. Although I suggest an additional explanation for their findings I 💯 agree with the conclusion
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Beyond Antibiotics: Research Programme
Beyond Antibiotics: Research Programme@AMR_Research·
Impressive results from @GarethLuTheryn using ultrasound and bubbles to disrupt biofilms and bacteria. We cannot wait to see more of his research and talk about implications for practice.
Dr Gareth LuTheryn@GarethLuTheryn

Spending the evening presenting some of our @AMR_Research @uDRIP_Group work at #LGBTQSTEMUCL My first, but hopefully not last conference specifically highlighting the work of LGBTQ+ colleagues in STEM

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Bladder Confusion retweetet
Sarah
Sarah@Sarah_ann28·
@BladderHealthUK My local MP took the issue of CUTI directly to the Health Secretary and asked what they would do in regards to this debilitating illness…the response she received “nothing”…I’m incredulous 🤬
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Leah
Leah@LRH33·
@DrNighatArif Great to see Hiprex on there….just to flag latest guidance to patients on infections that keep coming back - could in fact be chronic UTI i.e not a new UTI but same one embedded in bladder lining. See guidance below
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Bladder Confusion
Bladder Confusion@ConfusedBladder·
STOP SACRIFICING UTI PATIENTS OVER AMR FEARS
Leah@LRH33

@NHSEngland can you describe what ‘mild cystitis’ is? How is this measured? Who defines if it is mild, the GP or the patient? The idea that cystitis can be mild is a nonsense, if a quarter of UTIs can end up recurrent or even chronic, why take this risk? mirror.co.uk/lifestyle/heal…

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Leah
Leah@LRH33·
#ChronicUTI community please fill this in & share widely - they are explicitly asking for our experience of NHS UTI treatment…. Tell us: what is your experience of women’s healthcare in England? theguardian.com/lifeandstyle/2…
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Jocelyn J. Fitzgerald MD
Jocelyn J. Fitzgerald MD@jjfitzgeraldMD·
I have long suspected that Hipprex does more then just prevent UTIs—now we have some data to show that it is anti-inflammatory and may help heal the bladder barrier, as well. journals.lww.com/fpmrs/Abstract…
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@janecurrie @PrenatalTherapy @UCL_IfWH @JamesMaloneLee3 @GlobalUti @ChronicUTIAus @BladderHealthUK @cuticuk