The FPIES Foundation

For families living with FPIES, the real challenges often appear in everyday settings — especially school. Guest Blog with Parent Teacher Path: A 3-part blog series- How Parent Teacher Path Supports Families. – The FPIES Foundation

"If you are early in your FPIES journey, know that combining trusted medical care with supportive resources can help you feel informed, empowered, and supported every step of the way". fpiesfoundation.org/guest-blog-wit…

Inspired by his son and the challenges families often face in everyday settings, including school, Ken created Parent Teacher Path, read more about it on our guest blog post: fpiesfoundation.org/guest-post-wit…

Find graphics for #RDD on National Organization for Rare Disorders, Inc. (NORD) website- Rare Disease Day (RDD) Resources (link in comments)

Specialized foods and formulas are essential to effective treatment. Tell Congress why the bipartisan Medical Foods & Formulas Access Act (H.R. 5684 / S. 3304) is urgently needed. Take Action Today! #MedicalNutrition nutritionequity.org/takeaction/

If you find a need of a feeding tube to support nutrition through your #FPIES diagnosis, know you are not alone. Feeding Tube Awareness Week: Tell Others - Oley Foundation. oley.org/page/FT_Awaren…

If you or someone you love relies on medical nutrition, your story matters. Tell Congress why the bipartisan Medical Foods & Formulas Access Act (H.R. 5684 / S. 3304) is urgently needed. Take Action today! nutritionequity.org

This week is Tube Feeding Awareness week, internationally (next week in the United States). Join in and build awareness! Although having #FPIES does not mean you will need a feeding tube, some may need this medical intervention. #YouAreNotAlone .

Medical foods & formulas aren’t a luxury — they are essential. Denying coverage for foods & formulas forces people to choose between health and hardship. Tell lawmakers co-sponsor the Medical Foods & Formulas Access Act and protect families. #S3304 #HR5684 #FPIES

Teal pumpkins, safe treats, 'switch witch', are all ways to help your little ones enjoy the fun, even if it looks a little different. You can start your own traditions! fpiesfoundation.org/trick-or-treat…

Please consider contacting your US Rep in support of The ADINA Act - this Act will require plain-language labeling of all major food allergens and gluten-containing grains in medications! Visit ADINAAct.com to learn more! #ADINA

@JPGNReports @kfatweets Thank you for sharing!

Could prolonged breaks from eating #egg yolk actually trigger #FPIES? 🥚 A study from suggests consistent, short-interval consumption (e.g., every 1-3 days before 8 months) might be key to prevention! 🤔 🔗 bit.ly/3WgHKF9 @FPIESFoundation #IKNOWNOWFPIES @kfatweets

We love to see more and more research into understanding #FPIES!

Recognizing our FPIES Allies! Dr. Qian Yuan, FPIES Foundation MAB member, food allergy advocate, Researcher, & Pediatric Gastroenterologist at MGH will be honored as a Champion in Food Allergies by the Asthma and Allergy Foundation of America, New England Chapter Fall Gala!

In honor of #GlobalFPIESDay today, we are giving away a copy of this "I Have FPIES" book- generously donated by the author! Send us a note to our inbox (contact@thefpiesfoundation.org) with what FPIES means to you and you will be placed in a drawing for the book! #FPIES

Global FPIES Day is tomorrow, Tuesday Oct. 14, 2025! Be sure to check out our website for ways you can learn and share more about FPIES! fpiesfoundation.org/global-fpies-d…

Awareness on a local platform is powerful; awareness on a national and global scale can be life-changing for the entire #FPIES community. #GLobalFPIESDay

Global #FPIES Day is just one week away! A time to come together and focus on ways to enhance our community's understanding of FPIES- through tools such as education, resources and advocacy. Join us! fpiesfoundation.org/global-fpies-d…

Dine Allergy Safe Club. We support SB68 – The ADDE Bill; which would require restaurants in California to label the #Top9 food allergens on menus. We’re calling on: California Assemblymembers-vote YES on SB 68; Governor Gavin Newsom (@cagovernor)- sign SB 68 into law #SB68ADDE