#SickleCellAwarenessMonth D23
We’ve had #NewbornScreening in the US for >30 yrs and it’s saved lives
BUT many parents who have a baby w/SCD are still surprised
We need systems to remind people of #SickleTrait status later in life to allow for informed reproductive decisions
#SickleCellAwareness D18
Some good news!
Thrilled to participate in the @CDCgov SCD Data Collection Program, collaborating w/@RIHEALTH to develop tools to track all persons w/SCD in RI
We hope these tools can be help to FINALLY be able to perform national SCD data tracking
#SickleCellAwarenessMonth D13
It takes a village
The hematologist alone is insufficient to provide comprehensive care
Psychology,social work, spiritual care,nursing,coordinators,
pain management,transfusion specialists
ESSENTIAL and equally important parts of an SCD team
#SickleCellAwareness Day 2 is a call to action
The suffering and pain from SCD is real. Providing compassionate care is not difficult or expensive.
Take time to listen.
Believe the pain.
Treat like family.
I promise to do this everyday and hold others accountable. Will you?
September is National Sickle Cell Awareness Month. It's important to recognize those living with Sickle Cell Disease (SCD) and to commit to improving their quality of life. #SickleCellMatters#SickleCellWarriors
Please join us and celebrate 10 years of helping to improve the quality of care for patients and families living with Sickle Cell.
You can find more information about the gala and purchase tickets here: faiththomasfoundation.org/red-diamond-ga…
Wondering if blood stem cell donors need to have insurance or pay to donate?
⚠️ Spoiler alert, they don't!
Check out which expenses are covered when you say "YES" to giving a patient a second chance at life. 👇
If you’re wondering if donating peripheral blood stem cells (#PBSC) could affect your chances of getting pregnant, check out what Dr. Rayne Rouce has to say. 👇
Thank you to all our amazing sponsors for supporting the 10th Annual Warriors Convention! We are grateful for your commitment to this community and for helping us bring together warriors worldwide. Thank you for your unwavering dedication to our community.
Let's send love to Arlie and her family as they navigate the road to recovery from #leukemia. 💙 Although she's currently in remission, you can join the #bonemarrow donor registry to give patients like her better odds of finding a match when they need it: bit.ly/43UJ3vP
July is one of our warmer Midwest months. And there’s no better way for donors to stay hydrated than with a Versiti water bottle. Donate July 5-11 to receive your bottle, complete with a sticker set to make it your own: bitly.versiti.org/3NY4d6C While supplies last.
Come discuss men related issues during Warriors After Dark at the Warriors Convention. Warrior After Dark sessions are gender specific to ensure everyone is comfortable discussing personal problems. So fellas, register at sicklecellconvention.org for Warriors After Dark.
Check out how the @McCourtyTwins are tackling #sicklecell disease head-on. Inspired by personal experiences, they're using their platform to advocate for sickle cell warriors like Dontrell and Ashanti. 💙💚 bit.ly/3NuCyc4
Did you know hundredes of thousands of collegiate athletes have joined the #BeTheMatch Registry and recruited their peers in an effort to save lives through blood stem cell donations? Check out how you can #GetInTheGame 👉 bit.ly/445aCCM