LCAP (Long Covid Action Project)

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LCAP (Long Covid Action Project)

LCAP (Long Covid Action Project)

@LongCovidAP

LCAP is a united, diverse force of non-partisan individuals taking action to end the Long Covid crisis through awareness & government accountability.

Washington, D.C. Beigetreten Ocak 2023
226 Folgt3.9K Follower
Liam's LC/ME Journey
Liam's LC/ME Journey@liamsLCjourney·
How do we turn a viral twitter moment into a movement? I don't even need to repost it, because everyone has seen it: this week, patients from @winslow_la and @ActionCovidLong took the mic at a conference, combated those who would psychologize this condition, and it made waves. As far as I know (?), this was the first action of its kind in six years of Long COVID. ACT UP was founded in year six of the AIDS crisis. How can we replicate their success? What's the next step in building on this moment and creating a movement? Here is my brainstorming, and you all can let me know if anyone is working on this: 1. One group chat with representatives from every country bringing local intelligence to shared logistics and planning. Recruiting a cadre of mild patients who are able to take action in person. 2. Identifying all doctors and other figures that psychologize Long COVID and ME, and tracking all of their upcoming public appearances. 3. Figuring out how to get patients inside the room. I believe many conferences admit patient representatives at reduced cost - we can group fund if needed. For example, ACT UP members sat in NIH advisory meetings in suits and ties just to figure out how it worked, before they ever staged an action there. 4. And beyond speaking up against psychologization, how do we expand into general in-person activism? - Die-ins and "bed-ins" outside ministries, research institutes, and conference venues. - Vigils outside the offices of known clinicians and officials. - Banner drops at conference venues and government offices, maybe with symbolic "littering" of CBT and GET prescriptions, unopened, en masse. - Empty-bed installations representing the bedbound, with photos and names. Millions Missing has done versions of this. - Inside-outside coordination. Some patients in the room asking the hard questions while others protest outside. ACT UP ran this strategy to success. I have a lifetime love for in-person activism and would love to be involved in the physical part of this... but I've walked fewer than 50 steps in the past three months. All I can do is write this tweet from bed and hope somebody else is working on this already. If not, I'm happy to kick off the organization.
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LCAP (Long Covid Action Project)
@liamsLCjourney @winslow_la @ActionCovidLong We are here. We've already performed 2 actions in the US, plus much more. Our free book A National Treatment and Research Agenda for Long Covid (modeled after TAG's) needs to be given to as many research and medical professionals treating LC as possible. x.com/i/status/20483…
LCAP (Long Covid Action Project)@LongCovidAP

LCAP began in 2023. Inspired by ACTUP and TAG, we have performed actions, launched letter campaigns, petitioned NIH, written a book on treatments, funded research, written comprehensive LC Care HEAL legislation, and more. x.com/i/status/20482…

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Amy Mitchell
Amy Mitchell@amymitchellart·
All it takes is 2 people, a message, a voice, and a prop like a sign or shirt. One person takes action and the other is there for filming and support. Exercise free speech, practice non-violence.✊️🩵🩶🖤 We need those who are able-bodied enough to take action in their regions. One organization can't fund and coordinate all that needs to happen around the world. Use @LongCovidAP's and @winslow_la's examples and take initiative. As Long COVID activism continues to parallel HIV-AIDS history, year 7 is the right time to get loud. 📣 Speak truth to power.
LCAP (Long Covid Action Project)@LongCovidAP

It was in year 5 of the Long Covid pandemic that we took action. Now in year 7, what are you waiting for? Antivirals Now! Long Covid Kills! Viral Load Test Now! Biomarkers Now! Long Covid AIDS! Declare Long Covid a National Emergency! $28 Billion Now! Help HEAL Us!

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Strong Exhibition
Strong Exhibition@StrngExhbtn·
@LongCovidAP Action is the key term. It desperately needs to be taken by anyone who’s able-bodied.
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@ShingolaG Thank you. Yes, our activists went into the well of the Senate during the Long Covid HELP Hearing, halting their proceedings by chanting our message and holding banners. x.com/i/status/20482…
LCAP (Long Covid Action Project)@LongCovidAP

All it takes is your voice, a message, and a shirt or sign. It's time to get loud for Long Covid! Long Covid Activists Disrupt Senate Hearing longcovidactionproject.com/long-covid-act… Long Covid Activists Disrupt NIH Conference, Director Agrees With Demands longcovidactionproject.com/long-covid-act…

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Shingola G
Shingola G@ShingolaG·
@LongCovidAP I remembe, you stormed into Parliament, didn’t you? ( Left picture) It was incredible and a very powerful moment.
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LCAP (Long Covid Action Project)
From Long Covid Action to Action Covid Long: Solidarity to our international allies. ✊️ Same goals, mirror names. @ActionCovidLong
Association Winslow Santé Publique@winslow_la

NON-VIOLENT PROTEST DURING A CONFERENCE ON #LongCovid. We are people living with Long Covid and we are sick. We want real care, not cognitive behavioral therapy or meditation. We need medications for our lungs, hearts, stomachs, immune systems, brains damaged by #Covid.

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International Long Covid Awareness
This is what urgency looks like. This is what being serious in a pandemic looks like. This is what courage looks like. Thank you to @winslow_la @ActionCovidLong for standing up to the minimization of Long Covid, for speaking truth & representing for all of us!✊🏾✊🏻✊🏼 #LongCovid
Association Winslow Santé Publique@winslow_la

La psychologisation des #CovidLong, ça suffit. Action non-violente de patient·es CL de Winslow et @ActionCovidLong lors d’une conférence européenne sur le COVID long organisée par les Pr Lemogne/ Ranque, de l'unité Casper 👇

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Dr Elisa Perego
Dr Elisa Perego@elisaperego78·
Erasure and minimization of #LongCovid must be resisted. People are dying. Thanks @winslow_la @ActionCovidLong for your advocacy and activism 🔥🔥
Association Winslow Santé Publique@winslow_la

La psychologisation des #CovidLong, ça suffit. Action non-violente de patient·es CL de Winslow et @ActionCovidLong lors d’une conférence européenne sur le COVID long organisée par les Pr Lemogne/ Ranque, de l'unité Casper 👇

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@clcisme @Moooonflash We need widespread action! Two or three activists can be effective if one is acting and the other is filming. Always record. Visuals like signs, props, and shirts help. Practice non violence and exercise free speech. Get loud for Long Covid! x.com/i/status/20482…
LCAP (Long Covid Action Project)@LongCovidAP

It was in year 5 of the Long Covid pandemic that we took action. Now in year 7, what are you waiting for? Antivirals Now! Long Covid Kills! Viral Load Test Now! Biomarkers Now! Long Covid AIDS! Declare Long Covid a National Emergency! $28 Billion Now! Help HEAL Us!

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Sassyhomo
Sassyhomo@clcisme·
THIS is what we need so much more of. THIS is how Larry Kramer & ActUp got treatments for HIV/AIDS. Not through strongly worded letters and pink shirts, NOT by dressing up as a fucking frog. DISRUPT. DISLODGE. ACT THE FUCK UP.
Long COVID Foundation@LongCFoundation

Stop the psychologizing of #LongCOVID & chronic disease! Stop the pacification of patients who have serious & debilitating chronic disease by using vague terms to placate them for monetary purposes … we need solutions. Nothing more than treatments for the root cause(s) will suffice for Long COVID & other chronic diseases. #pwLC #AntiviralsNow

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LCAP (Long Covid Action Project)
It was in year 5 of the Long Covid pandemic that we took action. Now in year 7, what are you waiting for? Antivirals Now! Long Covid Kills! Viral Load Test Now! Biomarkers Now! Long Covid AIDS! Declare Long Covid a National Emergency! $28 Billion Now! Help HEAL Us!
LCAP (Long Covid Action Project) tweet mediaLCAP (Long Covid Action Project) tweet media
Michael Moran | APC Injury@internetuserf12

It was year 7(1988) that ACT UP "Siezed Control of the FDA" to demand better treatments amid growing complacency and denial in government and among the masses. 82,000 Americans had died. It is now year 7 of COVID-19 and there are no treatments whatsoever for Long Covid.

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Long Covid action by @winslow_la ✊️🩵🩶🖤📣 "We are sick, we are disabled, and we are dying because of charlatans like you. We are people living with a condition and we are ill. Do not touch us. Do not touch us. We are people living with Long COVID. We are people living with Long COVID and we will take two minutes of your time. Do not touch them. Stop touching these people. Tell them to stop touching. Tell them to stop touching this woman. Tell them to stop. We are COVID patients. We are patients and members of the associations Winslow Public Health and Action Long COVID. Séon and you Brig. Long COVID patients are exhausted from seeing your faces, from hearing you talk about us without us. We are fed up with seeing public money spent on projects that put patients in danger. Do not touch me. Do not touch me. You are defaming us in public. We want real care. Not cognitive behavioural therapy or meditation. You are hurting us. No sir, you are hurting us — we need medications for our lungs, our hearts, our stomachs, our immune systems, our brains damaged by the COVID virus. And we are not talking about antidepressants or anxiety meds. We want real tests, we want proper care, we want imaging. We will not let go, we will denounce and attack all projects and all investments that psychologise Long COVID. If the virus persists in our bodies, our anger does too. Nothing about us without us. Nothing about us without us." Thanks to @LongCovidAdvoc French to English translation.
Association Winslow Santé Publique@winslow_la

La psychologisation des #CovidLong, ça suffit. Action non-violente de patient·es CL de Winslow et @ActionCovidLong lors d’une conférence européenne sur le COVID long organisée par les Pr Lemogne/ Ranque, de l'unité Casper 👇

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Long COVID Foundation
Long COVID Foundation@LongCFoundation·
Stop the psychologizing of #LongCOVID & chronic disease! Stop the pacification of patients who have serious & debilitating chronic disease by using vague terms to placate them for monetary purposes … we need solutions. Nothing more than treatments for the root cause(s) will suffice for Long COVID & other chronic diseases. #pwLC #AntiviralsNow
Association Winslow Santé Publique@winslow_la

La psychologisation des #CovidLong, ça suffit. Action non-violente de patient·es CL de Winslow et @ActionCovidLong lors d’une conférence européenne sur le COVID long organisée par les Pr Lemogne/ Ranque, de l'unité Casper 👇

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Curiousmente
Curiousmente@curiousmente·
“If the virus persists in our bodies, our anger does too. Nothing about us without us. Nothing about us without us."
LCAP (Long Covid Action Project)@LongCovidAP

Long Covid action by @winslow_la ✊️🩵🩶🖤📣 "We are sick, we are disabled, and we are dying because of charlatans like you. We are people living with a condition and we are ill. Do not touch us. Do not touch us. We are people living with Long COVID. We are people living with Long COVID and we will take two minutes of your time. Do not touch them. Stop touching these people. Tell them to stop touching. Tell them to stop touching this woman. Tell them to stop. We are COVID patients. We are patients and members of the associations Winslow Public Health and Action Long COVID. Séon and you Brig. Long COVID patients are exhausted from seeing your faces, from hearing you talk about us without us. We are fed up with seeing public money spent on projects that put patients in danger. Do not touch me. Do not touch me. You are defaming us in public. We want real care. Not cognitive behavioural therapy or meditation. You are hurting us. No sir, you are hurting us — we need medications for our lungs, our hearts, our stomachs, our immune systems, our brains damaged by the COVID virus. And we are not talking about antidepressants or anxiety meds. We want real tests, we want proper care, we want imaging. We will not let go, we will denounce and attack all projects and all investments that psychologise Long COVID. If the virus persists in our bodies, our anger does too. Nothing about us without us. Nothing about us without us." Thanks to @LongCovidAdvoc French to English translation.

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LCAP (Long Covid Action Project)
The response was similar during LCAP's NIH and Senate HELP Hearing actions. Led out by security/police. Not even Bernie Sanders would give us an opportunity to speak. Those in charge don't want to hear us and will remove us to prevent others from hearing our message. We are in agreement and solidarity with Winslow's activist today.
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US Dept of Peace
US Dept of Peace@Corbie25·
@LongCovidAP @winslow_la Unbelievable behavior from the ‘professionals’ here. Time to develop some curiosity and listen to LC ppl. Ask questions. Don’t assault us!
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