Monique Bareham - Leading Lymphoedema Advocate

Thank you @MediAustralia for making space for the lived experience perspective by including me here 💙

@LymphNetWales @CV_UHB I do! And I've been telling our health policy makers about it here!!! 😄

Question of the Week -Ep. 20 Do you know what Patient Initiated Follow‑Up (PIFU) is? You can contact us whenever you need support after you've been discharged to self-manage. Sally explains more in this video. Watch and share! @CV_UHB #PIFU #LymphoedemaAwareness #lwcn

Looking forward to contributing the lived experience perspective of Lymphoedema/Chronic Oedema at the Second COMPAS (Compression APAC Summit). Thanks for the welcome @MediAustralia 💙

Great initiative - improves quality of life and keeps people out of hospital 🏥 @SAHealth @Mon4Kooyong

Last week I joined with others at the 2025 Boothby Volunteer Awards. It was an inspiring evening! Thank you Ms Louise Miller-Frost MP for taking time to recognise the work done by volunteers across Boothby. 💙 #lymphoedemaadvocacy

@PC4TG Great session of learning and meeting patient advocate! 👌

@MoniqueLymph I'm so glad you could make it! CREST provide wonderful training!

Learning so much at the University of Technolgy Sydney, CREST (Cancer Research Economics Support Team) Workshop - Health Economics in Cancer Research for Consumers. Thanks @PC4TG for sponsoring my attendance.

Delighted to be able to support members of our Community Advisory Group, Monique and Saba, to attend such high-quality training. Thanks CREST and @CancerAustralia ! #cancerresearch #consumerresearch

@McGrathFdn nurses are on board with LeaN On! People with BC related #lymphoedema should not have to rely on unregulated social media pages or 'Dr Google' for info. I'm honoured to be a CI and thank the @Flinders team for taking action. Project deets 👉news.flinders.edu.au/blog/2024/02/2…

@LegsMatter This is great! I'm not a clinician but I scored well...it made me think! Well done on putting this resource together 😀💙👏

❓ Would you recognise poor care if you saw it? Think it’s obvious? Think again. 🩹 Our Harm Quiz puts you in the shoes of real-life scenarios where small actions can have a big impact. 💡 Test your knowledge. Challenge your assumptions. 👥 Then, share it with your team – because spotting harm early can change outcomes. 👉 Take the quiz: legsmatter.org/healthcare-pro… #LegsMatterWeek #SayItShareItChangeIt #PatientSafety #WoundCare

Giving Voice: Breaking Barriers for Men Living with Lymphoedema 🗓️12 June 2025 | ⏰ 12–1PM - Online Join this free @MedicalOnlineHub event hosted by @Sigvarisgroup_B Register: medical-online-hub.com #MensHealth #Lymphoedema @LymphUnited @BritishLymph @lymphsupport @LegsMatter

Following several meetings on #Lymphoedema Awareness Day 2025, @ConnieBonaros invited me to give evidence to the SA Parliament Select Committee on Health. We discussed barriers and enablers to accessing affordable care in SA. Looking forward to our next steps! @tungMLC 💙

@ProfRAScolyer I just watched you on ABC Breakfast and wanted to send my best to you and your loved ones. I had the opportunity to briefly speak to you in Adelaide at the Australian of the Year Luncheon (we bumped into each other on the way to the restrooms!) Thank you for all you are doing.💙

Last weekend, I was at the wonderful Sorrento Writers’ Festival in Victoria. I had two wonderful opportunities to talk in 2x packed one hour interviews. In one, I participated with a team of experts including Prof Tori Mar, Jess Armstrong, and Paula Fox hosted by Dr Norman Swan to discuss the importance of sun safety for melanoma prevention and ways to diagnose and treat melanoma as early as possible so most people will be cured! We also discussed some of the amazing breakthroughs that have made significant improvements, including in outcomes in melanoma (& many other cancers). We also talked a bit about my own journey as well. It was fun & plenty of to & fro including with an amazing audience. In a separate 1 hour interview, hosted once again by the brilliant Dr Norman Swan, we discussed my own battle with brain cancer. He asked some fantastic questions, including some that were difficult, challenging & at times, very emotional– I had to stop talking once for what seemed like 30 seconds (& I heard there were many touched people in the audience too). We also discussed the importance of contributing to life with actions and fun. I was absolutely blown away by the friendliness, care and decency of the many hundreds of people there. Thank you all very much! @SorrentoWritFes @normanswan @SydneyLHD @Sydney_Uni @AllenAndUnwin @gmaddox #Brainstorm #glioblastoma #melanoma

@bogda_koczwara I want to read this!

Look what arrived today!

@mijancoubd @bogda_koczwara Thank you 😊

A thought provoking presentation on the association between work after cancer with financial toxicity by @bogda_koczwara at the #SURV25

Lovevyour #lymphoedema awareness post @CancerAustralia 👌👍🥰

March is #LymphoedemaAwarenessMonth. For information on secondary #Lymphodema as a result of cancer treatment including risk factors, symptoms, preventing and managing lymphoedema, visit: bit.ly/4aKAUyd

Read some helpful resources related to today’s webinar on the resources section of our website. What is Lymphoedema Skin care for people with Lymphoedema #LymphoedemaAwareness

@survonc @DrNicolasHart Congratulations - I wish I was there too! I'm looking forward to catching up with you all when you get back! 💙😀💙👏

@DrNicolasHart @MoniqueLymph - we have a poster on lymphoedema too! Wish you were here!

Day 2 of the #Surv25 conference sharing our work in advancing cancer survivorship care; come to panel 120, 121, 124, 132, 162! #research @andi_seyi @RiaJoseph16 @CarlaChesson @Fiona_CW1 @rayychan @NarayaneeDick @matt_wallen_PhD @imogenramsey @bogda_koczwara