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@NCSAutismOrg

National Council on Severe Autism. Pursuing recognition, policy & solutions for the surging population of affected individuals, families & caregivers.

United States Beigetreten Aralık 2018
414 Folgt1.5K Follower
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NCSA
NCSA@NCSAutismOrg·
At NCSAutism, we stand up for a population that has been overlooked in media & policymaking for too long. We work for recognition, inclusion and beneficial research & policies for the severe autism community. We offer a clear voice supporting those with the greatest needs. Join our grassroots network at: ncsautism.org/nationalnetwork
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Paul Whiteley
Paul Whiteley@PaulWhiteleyPhD·
"I continue to hear the same question from families today that I first heard 20 years ago: What will happen to our children when we are gone?" nature.com/articles/s4139… Allied to the 'why I can never die' sentiments that many parents have. There must be solutions to this.
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NCSA
NCSA@NCSAutismOrg·
News report: Family sues adult day program after son with autism falls from window to his death abc7ny.com/post/family-su…
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Paul Whiteley
Paul Whiteley@PaulWhiteleyPhD·
‘Slightly unhinged’ federal autism meeting portends unclear research priorities thetransmitter.org/spectrum/sligh… It's the language used: 'slightly unhinged'. It's designed to tell everyone that 'they're not doing it my way' and such. Sour grapes, pure and simple.
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NCSA
NCSA@NCSAutismOrg·
News report: 22-year-old with autism fell to his death while left unattended at day program, family says nj.com/healthfit/2026…
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Amy Lutz
Amy Lutz@AmySFLutz·
I will never understand why the call for testing inspires such ferocity and vitriol in spelling proponents. Brand new review finds there is still zero evidence of authorship under controlled conditions in any FC variant, including RPM and S2C: openresearch.newcastle.edu.au/articles/journ…
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Vicky Nguyen
Vicky Nguyen@VickyNguyenTV·
Families of people with motor disabilities that make it difficult to speak out loud are fighting to protect a form of communication using letterboards and keyboard. nbcnews.com/video/families…
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FoxNashville
FoxNashville@FOXNashville·
A Tennessee juvenile judge called it a “comprehensive failure of the system.” A 6-year-old autistic child from Cannon County was moved 22 times in 100 days after DCS removed him from his family and placed him in foster care. Read more about this story: bit.ly/4tr5LHL
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Amy Lutz
Amy Lutz@AmySFLutz·
So excited to host this absolutely critical conversation about assessing evidence in autism research and treatment with phenomenal scientists @AHalladay212 and Giacomo Vivanti. Please join us!
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Paul Whiteley
Paul Whiteley@PaulWhiteleyPhD·
"unending nights of struggle and exhaustion" pubmed.ncbi.nlm.nih.gov/42083058/ Mothers' lived experiences in dealing with sleep problems among children with autism. That & having eyes in the back of your head to prevent dangers such as elopement & more. The 'gift' that keeps on giving eh?
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NCSA
NCSA@NCSAutismOrg·
"The facilitated communication movement is built on a hidden premise — that a nonspeaking person needs to be revealed as secretly intelligent in order to deserve dignity. The healthier ground is that profoundly autistic people deserve dignity, autonomy, and care as they are." jkancir.substack.com/p/the-plastic-…
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Paul Whiteley
Paul Whiteley@PaulWhiteleyPhD·
Individual Profound Autism Criteria and Unmet Needs Among Autistic Adolescents and Their Caregivers jamanetwork.com/journals/jamap… Typically, quite a bit of unmnet needs. And unmet needs for both person and caregivers (including siblings too).
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