Pap Foundation

📅 Save the Date! Join us for our Los Angeles PAP-a-Pa-Looza—a free patient education event on July 19, 2025 at UCLA’s Luskin Center. 🩺 Talks, Q&As, community + more! ✈️ Travel aid (up to $500) available—first come, first served. ✅ RSVP: forms.gle/DCiovUHgR1RAVg… #PAPaPaLooza

The PAP Foundation is looking for a passionate, part-time Executive Director to lead our mission to support patients and advance research in Pulmonary Alveolar Proteinosis (PAP). If you're a leader with nonprofit & healthcare experience, we want you. lnkd.in/gwYxXJpW

🗳️ Help us plan #PAPaPaLooza! Which part of past events did you find most helpful or enjoyable? 1️⃣ Expert Talks / Short Presentations 2️⃣ Q&A w/ Docs 3️⃣ Connecting w/ Other Patients & Caregivers 4️⃣ None of the above / Other (reply!) 💬 Have ideas? Drop them below! 👇

Our externally led Patient-Focused Drug Development meeting is rescheduled for May 7th, 2025! NORD and the PAP Foundation invite patients with aPAP and their caregivers to attend this meeting with the FDA. Learn more and register here: rarediseases.org/apap-el-pfdd-m…

There is still time for anyone in the Autoimmune Pulmonary Alveolar Proteinosis (aPAP) community to sign up to speak to the FDA at our externally led Patient-Focused Drug Development meeting on February 5! Register for this virtual meeting here: rarediseases.org/apap-el-pfdd-m… #aPAP #PAP

There is still time for anyone in the Autoimmune Pulmonary Alveolar Proteinosis (aPAP) community to sign up to speak to the FDA at our externally led Patient-Focused Drug Development meeting on February 5! Register for this virtual meeting here: rarediseases.org/apap-el-pfdd-m…

Mark your calendars, the 2025 Golfing for a Cure charity golf tournament will be held on Saturday July 12th in Littleton, CO. Registration and details will be coming soon. We hope to see you there!

NORD and the PAP Foundation invite patients with aPAP and their caregivers to attend a Patient-Focused Drug Development meeting with the FDA, where they can speak about their lived experiences to inform future research. Register here: rarediseases.org/apap-el-pfdd-m…

Happy New Year to our PAP community! We appreciate all of your support in 2024, and we look forward to an impactful 2025 full of advocacy, community, and progress for PAP.

Last chance! NORD and the PAP Foundation invite patients with Autoimmune PAP (aPAP) and their caregivers to attend a Patient-Focused Drug Development meeting with the FDA, where they can speak about their experiences to inform future research. Apply here: rarediseases.org/apap-pfdd-spea…

Reminder! NORD and the PAP Foundation invite patients with Autoimmune PAP (aPAP) and their caregivers to attend a Patient-Focused Drug Development meeting with the FDA, where they can speak about their experiences to inform future research. Apply here: rarediseases.org/apap-pfdd-spea…

The PAP Foundation is hosting an in-person PAP Education Day on October 5, 2024 just outside of Boston, MA at Trinity Partners from 11am to 5pm! We hope you can join us! Please register to attend here: forms.gle/DUciwwgn9Ue8Xx…

NORD and the PAP Foundation invite patients with Autoimmune PAP (aPAP) and their caregivers to attend a Patient-Focused Drug Development meeting with the FDA, where they can speak about their experiences to inform future research. Apply here: rarediseases.org/apap-pfdd-spea…

The PAP Foundation is hosting an in-person PAP Education Day on October 5, 2024 just outside of Boston, MA! Join us for the latest on everything PAP and the chance to connect with PAP clinicians and other patients. Please register to attend here: forms.gle/DUciwwgn9Ue8Xx…

The 2024 Golfing for a Cure Charity Golf Tournament was a huge success! A whopping 103 golfers helped us to raise over $11,000 for the PAP Foundation⛳😄 Thank you to everyone who made this day happen, especially Steve Park. Thank you also to our sponsors for their support

The PAP Foundation's own Emily Sumner is running a half marathon to support PAP on Sunday, May 5th! 🏃‍♀️🏅 Emily has played a huge part in the PAP Foundation. Please consider supporting Emily in her run via her GoFundMe page. Good luck Emily! GoFundMe Link: gofund.me/106576e2

If you are a pediatric PAP patient (21 or younger), or a caregiver for one, please fill out our survey. We'll use this information to keep you informed of future opportunities for pediatric PAP patients (ex. research, clinical trials, etc.). Survey link: forms.gle/T4iiMFGAiNtqDS…

The 7th annual Golfing for a Cure Charity Golf Tournament is only 3 months away! Join us on Saturday July 13th! 🏌️‍♀️⛳ We also have sponsorships available for those interested. We hope to see you there! Click the link to register and see more information: eventstlc.com/papfoundationg…

Join ATS PAR and the PAP Foundation for a free event in San Diego, CA on Saturday, May 18th that will be exploring lung health AND holding a dedicated PAP breakout session. Please click the link to RSVP: form.jotform.com/200090751540141

We are excited to announce the 7th annual Golfing for a Cure Charity Golf Tournament on Saturday July 13th! 🏌️‍♀️⛳ Mark your calendars and click the link to register. We also have sponsorships available for those interested. Hope to see you there! Link: eventstlc.com/papfoundationg…