Angehefteter Tweet
Gerry lives with PBC in Ireland. He struggles to access newer therapies available in the U.S. Why would the U.S. model European health care delays and denials? #MFNHurtsPatients #ValueOurHealth
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Partnership to Improve Patient Care (PIPC)
6.4K posts
Partnership to Improve Patient Care (PIPC)
@PIPCpatients
PIPC is a coalition of health care stakeholders promoting comparative effectiveness research and patient engagement to improve health care quality.
Washington D.C. Beigetreten Nisan 2013
1.4K Folgt3.7K Follower
Partnership to Improve Patient Care (PIPC) retweetet
The world’s oldest health economics research organization confirmed that 18 of the 19 countries referenced by Most Favored Nation use #QALYs that devalue disabled lives. #MFNHurtsPatients @GOPHELP @SenateHELP pipcpatients.org/news/chairmans…
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With millions potentially living with undiagnosed kidney disease, advocates are pushing for testing + access to medicines that can delay progression for years. Australia is a reminder that squeezing health budgets doesn’t solve disease burden. #MFNHurtsPatients
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Partnership to Improve Patient Care (PIPC) retweetet
While Europe used to be a leader in medical #innovation, damaging policies have decimated that growth and forced innovators to work elsewhere. The US must learn from these lessons and take steps to protect the innovation ecosystem. @ITIFdc bit.ly/41m5k65
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Partnership to Improve Patient Care (PIPC) retweetet
The US has a long history of protecting equal access to medical care for Americans with disabilities, including preventing the use of QALYs, which create barriers to care. Importing foreign prices with #MFN undermines these values. @PIPCpatients has more: bit.ly/4sfLtjH
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A father in New Zealand had to leave his children behind and go to Australia for cancer treatment because the drugs he needed weren’t funded at home. That’s what happens under heavily constrained pricing systems: “savings” on paper, patients shut out in real life.
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New Zealand specialists are pleading for funding for medicines that are already standard of care overseas. That’s the risk of importing foreign price controls: narrower access for patients that are readily available in other countries. #ValueOurHealth #MFNHurtsPatients
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Patients in foreign countries struggle to gain access to treatment due to discriminatory #MostFavoredNations drug pricing agreements. Watch to learn more about access issues in Ireland: x.com/i/status/20263…
Partnership to Improve Patient Care (PIPC)@PIPCpatients
Paula, a patient living with primary biliary cholangitis, shares her struggle living with PBC and describes her challenges in accessing newer, more effective treatments for her condition that are not available in Ireland, but are in other countries like the United States.
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Partnership to Improve Patient Care (PIPC) retweetet
Listen to PCORI Executive Director Dr. Nakela L. Cook deliver the closing keynote on Moving Patient-Centered Value into Real-World Practice at the 2026 Methods Summit @IVI_health happening March 25 at 2:20 pm.
Learn more about the session here: pcori.me/4lCMwZx
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Partnership to Improve Patient Care (PIPC) retweetet
Watch on our YouTube channel! Documentary trailer!
Laura Teicher Bonnell she/her@LauraTbonnell
We have a podcast coming out Monday! Listen wherever you get your podcasts! Living with cystic fibrosis. Also, watch our documentary trailer! It’s out next month. Find the trailer on our Bonnell Foundation YouTube channel! #podcast #youtube
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Hampus Hillerstrom, President of the National Down Syndrome Society, recently published a piece criticizing foreign countries' use of discriminatory metrics that restrict access to treatment for individuals with disabilities and chronic conditions. #ValueOurHealth
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Foreign #MostFavoredNations policies result in patients lacking access to critical day-to-day treatments that are available in the U.S. & elsewhere. Congress should avoid importing these discriminatory frameworks. x.com/i/status/20263…
Partnership to Improve Patient Care (PIPC)@PIPCpatients
Paula, a patient living with primary biliary cholangitis, shares her struggle living with PBC and describes her challenges in accessing newer, more effective treatments for her condition that are not available in Ireland, but are in other countries like the United States.
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We urge policymakers - whether in the administration or Congress — to reject proposals that import cost-effectiveness metrics like the quality-adjusted life year from Europe and elsewhere. #ValueOurHealth #MFNHurtsPatients
Partnership to Improve Patient Care (PIPC)@PIPCpatients
Paula, a patient living with primary biliary cholangitis, shares her struggle living with PBC and describes her challenges in accessing newer, more effective treatments for her condition that are not available in Ireland, but are in other countries like the United States.
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Read PIPC's full statement: pipcpatients.org/news/statement…
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We urge policymakers - whether in the administration or Congress — to reject proposals that import cost-effectiveness metrics like the quality-adjusted life year from Europe and elsewhere. #ValueOurHealth
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PIPC issued the following statement in response to President Trump's call to codify #MostFavoredNations drug pricing policies during tonight's State of the Union Address.
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