RareByDesign

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RareByDesign

RareByDesign

@RareByDesign

Creating awareness of inclusion, representation and living life positively for #PWD and #RareDiseases along with their families. Founded by @kegottsleben.

South Dakota, USA Beigetreten Mart 2021
118 Folgt145 Follower
RareByDesign
RareByDesign@RareByDesign·
[Video Description] 7 rare disease advocates talking about them being 1 in 10 and sharing the name of their rare disease.
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RareByDesign
RareByDesign@RareByDesign·
2/2 Advancing lifesaving treatments & initiatives is vital! Average time to diagnose rare diseases is 4.8yrs & only about 5% of #RareDiseases have approved treatments. We'd love for you to join in recognizing #RareDiseaseDay on Feb. 28 by wearing stripes or rare disease colors.
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RareByDesign
RareByDesign@RareByDesign·
1/2 Did you know that it is estimated that 1 in 10 people (30 million) in the United States have a rare disease? This year’s #RareDiseaseDay is more critical than ever to increasing awareness & research. youtu.be/yH5XFg-U3qk?si…
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RareByDesign
RareByDesign@RareByDesign·
2/3 Cara was born deaf. She has cochlear implants in both ears but she prefers her right one. Cara wants to see you cheering loudly for all the models on Sat., May 3! Let's see if you can accomplish this for her during the runway show by spending the evening with us.
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RareByDesign
RareByDesign@RareByDesign·
1/3 Meet Cara McGary! You will see her as one of our models at #TheStyleShow on May 3! Cara is from Sioux Falls, South Dakota, and is currently a freshman at South Dakota State University (SDSU) studying nursing. She is also a cheerleader on the SDSU Cheerleading team.
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RareByDesign@RareByDesign·
We are excited to announce that tickets for #TheStyleShow at the Catlin (formerly known as Hilton Garden Inn DTSF) are now available for purchase. This year we have early-bird pricing. Prices will last until March 15! Snag your ticket(s) at thestyleshow.org
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RareByDesign
RareByDesign@RareByDesign·
[Video Description] Photos of people with different disabilities in a TV studio in front of a green screen and sitting in studio.
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Neena Nizar
Neena Nizar@NeenaNizar·
Rare disease research is already underfunded. Cutting indirect costs only worsens the situation, jeopardizing the very science that leads to breakthroughs. How can we expect innovation when the basic support for it is stripped away? @doge #SaveScience #RareDiseaseTruth
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RareByDesign@RareByDesign·
#FashionFriday Let’s give it up for Terra Shepherd Boutique & Apothecary! Not only is our team excited to have them back in lineup for #TheStyleShow, but so are our models! Trendy & adaptable clothing is what we like to see. Can’t wait to have our models show off their clothing.
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RareByDesign
RareByDesign@RareByDesign·
Who is ready to meet our first model of our #TheStyleShow: A Runway to Empower 2025? This year's group of models is the largest we have had to date! Phoenyx Bartscher is a vibrant music enthusiast with a contagious laugh and a sharp sense of humor. She... facebook.com/photo/?fbid=64…
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