@cattzee3 Hi Cat, Raquel from @1daysooner here! The inpatient rooms are 3-4 bed occupancy. You can see the rooms and remaining facilities on this video recorded by JHU's research team: youtube.com/watch?v=B3tam1…
YouTube
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Raquel Castro
998 posts
Raquel Castro
@castrorakel
Volunteer Coordinator @1daysooner Empowering and advocating for healthy research participants to help end the most harmful infectious diseases. Views are my own
Barcelona, Spain Beigetreten Temmuz 2009
510 Folgt959 Follower
Raquel Castro retweetet
This is the first in a series spotlighting the volunteers who make up 1Day Sooner's Participant Council:
Meet Angelique Mseteka! Angelique first participated in a clinical trial to serve her community, and now she's passionate about helping others to do the same!
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Raquel Castro retweetet
So a lot of people have asked why I purposefully drank E. coli last week (yes, you read that correctly).
Here’s a thread about human challenge trials.
Josh Morrison@joshcmorrison
This is pretty remarkable. This summer I took either a placebo or vaccine for E. coli. We don’t have a working one. Three days ago I purposefully ingested E. coli. And I feel completely, totally fine right now. Mostly bored. Happy Halloween. We might have a working E. coli vaccine (or I found out I’m naturally immune to E. coli the hard way).
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Raquel Castro retweetet
This afternoon’s #EMM2025 Advocacy session brought participants together to strengthen their practical skills. Clear, focused, and rooted in experience, this training was about more than awareness. It was about strategy! 💥
What’s still to come? 👉 go.eurordis.org/EMM25
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@cpnlcat Bon dia, heu simplificat el procés? Fa 30 minuts que intento entrar a la plataforma. Només tenia 50 persones davant meu al començament. Ja he rebut errors 3 vegades i ara mateix tinc 1867 persones al davant. Com és possible? Com puc garantir la meva plaça?
Català
Hem simplificat tècnicament la inscripció, reduint-ne el nombre de passos que s’han de fer, per tal d’agilitzar el procés.
Català
Demà comença la inscripció de desembre als cursos de català del segon trimestre del CPNL, que es podrà tramitar a cpnl.cat/inscripcions
Abans, però, te n’expliquem alguns detalls importants que t'ajudaran durant el procés.
Català
Raquel Castro retweetet
.@IVardakastanis underlines the challenges to advance #DisabilityRights:
1⃣ The rise of eurosceptic and far-right forces.
2⃣ The loss of a Commissioner with a standalone portfolio for #Equality
3⃣ We need to advance #equality issues together
#EUDisabilityRights
#EDPD2024
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European Day of Persons with Disabilities kicks off. On the agenda:
📌 Making the next phase of the EU Disability Strategy a success.
📌Promoting the right to live independently and be included in the community.
Follow online👉webcast.ec.europa.eu/the-european-d…
#EDPD2024 #EUDisabilityRights
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Raquel Castro retweetet
🥊 Have you faced challenges getting your disability recognised?
🤝 Are you receiving the social care you need?
🛑 How have these issues affected your mental and physical health?
Take the #RareBarometer survey! ➡️ 👉 tiny.cc/RB_DailyLife
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Use our communications toolkit to spread the word! 👉 lnkd.in/gNdtqYZp
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We want to hear about your experiences with:
📌 Education, employment and leisure.
📌 Daily barriers and discrimination.
📌 Access daily support, including personal assistance.
📌 Disability (visible or invisible!), and disability recognition processes.
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Rare disease community, it's time to make your voice heard! 📢Take and share the new Rare Barometer survey: lnkd.in/gQdnWXVD
Available in 25 languages. Open to anyone with a rare disease or rare cancer, and their close family members, worldwide. #RareDisease #SocialRights
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Your answers will empower @eurordis and its members to advocate for all people with rare diseases to access their rights and participate in society on an equal basis with others. The more people participate, the stronger our collective voice will be!
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The survey is available in 25 languages and open to anyone with a rare disease, and their close family members, worldwide 🌍. Use our communications toolkit to spread the word! 👉 eurordis.org/?post_type=pub….
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Do you live with a rare disease or rare cancer? Are you a family member of someone who does? Your voice matters! Take and share the new Rare Barometer survey: tiny.cc/RB_DailyLife
#RareDiseases #SocialParticipation #SocialRights #DisabilityRights
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Raquel Castro retweetet
The #DisabilityVote is crucial in the EU elections!
Persons with disabilities are still underrepresented as voters, candidates and elected officials. Voting is vital in shaping an EU that reflects our needs and priorities.
Don't miss your chance to #UseYourVote!
@Europarl_EN
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At @EU2024BE conference on disability, in Brussels today. Follow online: webcast.ec.europa.eu/disability-pla…
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J. Jakštienė, @LithuanianGovt Social Ministry, stresses importance of setting shared principles on disability assessment between EU countries at @EU2024BE.
Improving disability assessment is crucial for people with #RareDisease to access social protection and live independently
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Raquel Castro retweetet
Powerful speech by Mr. Alford at the #EDPD2023. This kind of voices we need. #freeourpeople
@ENIL_EU @MyEDF @InclusionEurope
(Pictures show different slides of Mr. Alford's speech)
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Very privileged to stand along @CharissaFrank, member of our brand new Social Policy Action Group, to represent people with rare diseases, the majority of whom live with disabilities
#EDPD2023
EURORDIS-Rare Diseases Europe@eurordis
Our Social Policy Director, @castrorakel, is in attendance at today’s European Day of Persons with Disabilities conference.#EDPD2023 It is imperative that people in the rare disease community are recognised in these discussions and we are proud to be representing their voices.🤝
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