Libby Boone

@ThnxPhoen1c1ans @Michael59503746 Darn.. I wonder if this guy has tested it? twitter.com/masknerd

@Silas33 @kimisgubbed @MaritSkotheim 😆

@JanetDafoe Grandpa and his ballerina. 💛

Sweet.

@DrDan20000 @KrisRoSS77 Glad you are feeling better, Dr Dan. 🌹 Thanks for sharing so much information with us.

@KrisRoSS77 I'm cooking and spending more time with family. My connective tissue is holding alignment better. I feel like I'm almost out of danger. I'm resting more but get up refreshed.

BOROMYCIN DAY 10 UPDATE: heart, lungs, liver, neck and head all comfortable. Kidneys still feel good with high urine output. Time to check urine for protein. I think Boromycin leads to spike fragment excretion. This round of treatment is not yet over.

@Silas33 @kimisgubbed @MaritSkotheim "I feel that I have looked down the barrel of the ME/CFS gun and disarmed it." He implies that it is risky to his own health to listen to those who have not recovered. He may feel more invulnerable if others join his personal crusade? blogs.bmj.com/bmj/2021/01/25…

@ctrssierra @AlisynGayle They use guanfacine to treat high blood pressure so it may have lowered yours? mayoclinic.org/drugs-suppleme…

@minadjenkins @neonflag Sometimes I despair that anything will ever change. Thanks for the education, Wilhelmina.

@libbyboone @neonflag REDDOG was a horror here in Atlanta. They were supposed to be fighting the war or drugs, but they violated people’s rights constantly, people who had nothing to do with drugs.

@minadjenkins @neonflag I had never heard of REDDOG, nor the current Memphis police chief's role in this.

@neonflag I thought of REDDOG right away also.

@Naomi_D_Harvey @livewithmecfs Glad you found Sue's blog. She keeps such good track of things.

@libbyboone Fab, thanks Libby! Will take a look when I can. I also just found a blog by @livewithmecfs on her experience of using the drug and the OTC supplement livewithcfs.blogspot.com/2014/04/imunov…

How many people with #MEcfs or #LongCovid have tried Inosine? Seems like a good candidate for its immune modulatory effects and CNS supporting role. Thanks to @livewithmecfs for highlighting it frontiersin.org/articles/10.33…

@Naomi_D_Harvey I think people recommend inosine because inosine pranobex (Imunovir) is expensive and difficult to obtain. Discussions ongoing here, for many years: forums.phoenixrising.me/search/762545/…

Although the form used as a medication is different to the OTC supplement ‘inosine’. “Inosine pranobex (Isoprinosine or Methisoprinol) is a combination of inosine, acetamidobenzoic acid, and dimethylaminoisopropanol used as an antiviral” go.drugbank.com/drugs/DB13156

@davidtuller1 @JanetDafoe @TimesONeill Beautifully written, David. Your heart shines through in everything you write. So thank you for enduring for the sake of Maeve and so many others. 🌹💛

@JanetDafoe @TimesONeill Thank you, Janet. Writing this story was hard. But the pain of having to have actually lived this experience is unimaginable.

@davidtuller1 @TimesONeill

@GayKiwiDan @aparachick It's natural to feel that way when the institutions you have relied on fail you. Sadly, people rarely understand anything that doesn't affect them personally. Govt. will always claim they don't have money to help. People living with M.E. know exactly what you mean. 💛🌹

@Dan_Wyke He's there to save them money on Long Covid rehabilitation. yourcovidrecovery.nhs.uk/app/

What are the chances of Wessely making decisions which will benefit #MECFS and #LongCovid patients in his role as a member of the board of directors of NHS England? 🧐 kcl.ac.uk/news/professor….

@JanetDafoe @MECFSNews @NIH Awesome!

@MECFSNews @NIH I’m thinking about applying. What do you think?

The @NIH is forming a working group that will create a research roadmap for #MECFS. They are looking for patients, caregivers, partners, or people with a family history of ME/CFS to join the working group. ninds.nih.gov/about-ninds/wh…

@CfsWarrior @GayKiwiDan @LongCovidDuchy Denial is much easier and more profitable.

@SerpinaLonghaul @exceedhergrasp1 Dear Healthy People who are paid to understand the condition you are researching. Try harder to do so. Take a break if you need to. We have been waiting decades for you to understand that your break schedules break us.

@exceedhergrasp1 (Link here) forms.office.com/pages/response…

Crow and Alice upgrade.

@dbkell Isn't that the province where they were manufacturing azvudine as a treatment? globaltimes.cn/page/202301/12…

China Covid: More than 88 million people in Henan infected, official says - unsurprising if zero immunity bbc.co.uk/news/world-asi…

@SerpinaLonghaul @exceedhergrasp1 Do you think they could schedule the breaks so that they last six months? 😅

@exceedhergrasp1 What's arguable worse than being so out of touch with your ME patient population that you think 4-hour-long meetings are going to be accessible to them? Responding to their outcry: no but guys there are breaks

@JuliaCTaylor @darrenabrown @history_physio 🌹Hope you don't feel too discouraged 💛We do have Long SARS people in the M.E. community but there are no doubt Long SARS people who recovered and went on their way, so we don't hear from them again. 🤷‍♀️

This might be the most important lesson I’ve ever read and how it relates to #LongCOVID Every #rehabilitation #rehab professional needs to read this. #GlobalPT we need to learn from history @history_physio, learn from mistakes, and avoid harm! academic.oup.com/ooim/article/3…