PFICNETWORK
59 posts
PFICNETWORK
@pficnetwork
PFIC advocacy and resource network Inc. Improving the lives of patients and families worldwide affected by progressive familiar intrahepatic cholestasis.
Beigetreten Ocak 2020
20 Folgt82 Follower
QME
It is with great pleasure the PFIC Network would like to share a message from Ron Cooper, CEO of Albireo Pharma;
To the PFIC community:
Albireo is very excited to share the results from our pivotal trial of… instagram.com/p/CE5itvLD5V1/…
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A big thank you thank you to everyone who made a hashtag suggestion, and to the 95 people who voted!! It's so great to have so much community involvement.
To get awareness day rolling T-shirts with the winning… instagram.com/p/CEAtyaoDEF5/…
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Hashtag/slogan competition, email ideas to lisa@pfic.org by August 14th.
Last Year on October 5th the PFIC Network launched our first awareness day and thanks to our amazing community our inaugural PFIC Awareness… instagram.com/p/CDqb16ODxYZ/…
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PFIC Network Fundraiser!
Masks available untill July 31st.
The PFIC Network is selling these masks for patients, caregivers and supporters to stand by our community during these uncertain times. You may purchase… instagram.com/p/CDIAE4RDcrk/…
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Some good news! Albireo Pharmaceuticals has launched an Extend Access Program which will allow a wide range of PFIC patients to apply for access to the medication Odevixibat currently in stage three if… instagram.com/p/CC7PZ6MDGi3/…
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If you would like to join the Zoom meeting Tuesday July 7th at 7pm EST (USA)
Please register your interest by emailing emily@pfic.org
Lets support each other and share our experience of living through covid with… instagram.com/p/CCQgvRHDyq1/…
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PFIC in the time of Covid.
This is an excellent read. This article takes a look at the PFIC Network's executive director, Emily Ventura and her daughter Cedar's experience living through Covid… instagram.com/p/CCFo8juj_fm/…
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Flashback 3. PFIC Network family conference June 2019.
#pficawareness
#stoptheitch instagram.com/p/CBue_5mDV2C/…
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Flashback 2...Family Conference June 2019.
#stoptheitch
#pficawareness
#pficvoices
#mirumpharma instagram.com/p/CBuCJ03jyVa/…
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Flashback!
Who can believe it was only a year ago that we had the first ever PFIC meet up in person?
The PFIC Family Conference this time last year, initiated a strong sense of community not only for those that… instagram.com/p/CBt_zpzD-1S/…
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Financial Assistance Applications.
Apply before June 30th
#t-pfic-patient-financial-assistance-program" target="_blank" rel="nofollow noopener">pfic.org/pfic-network-p…
Link also in bio.
The burden of PFIC can leave a heavy financial… instagram.com/p/CBfWIihj0s5/…
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