PRISMS, Inc.

PRISMS hosted its Research Symposium in Dallas, TX. It was our privilege to provide a platform for these researchers to converge, share their findings, and collectively work towards enhancing the quality of life for individuals with Smith-Magenis Syndrome and their families.

We've been attending the @smsprisms annual conference for Smith-Magenis Syndrome. Thank you for hosting this meeting bringing together the #SMS community. What a privilege to meet Dr. Smith who discovered #SMS and Ms. Schmitt the president of the French #SMS society ASM17.

@smsprisms thank you for giving me the opportunity to speak at your annual conference! I promise that no matter where life takes me, I’ll continue to advocate and continue to fight for this special community 💙 #PRISMS #morethanawalk

Study results, for which Dr. Stephanie Sisley collected data via focus groups at the 2022 SMS International Conference has been published "Blind to the perils of pursuing food: Behaviors of individuals with Smith-Magenis Syndrome". Click here to read it authors.elsevier.com/sd/article/S29…

The early bird deadline to save on conference registration has been extended one week until May 22! You still have time to register and save! Don't delay, prices will increase after the deadline.

🧠 Smith-Magenis syndrome (SMS) is a developmental disorder that affects behavior, emotions, and learning processes. 🧬 Like BHD, SMS is also associated with a mutation in the FLCN gene. But are the two disorders linked? Read this article to learn more: prisms.org/birt-hogg-dube…

PRISMS continues to lead the way in supporting people living with #SmithMagenisSyndrome with their upcoming 12th International Conference this July 11-14, 2024 in Dallas, TX. Check out @smsprisms for more info and register here: prisms.org/education/sms-…

Members of PRISMS' Professional Advisory Board were supporting Smith-Magenis Syndrome research at the 2024 ACMG Annual Clinical Genetics Meeting in Toronto last week. #SmithMageisSyndrome #PRISMS #raredisease #research

Early intervention can be key for individuals with SMS. PRISMS has pulled together resources to help you navigate Early Intervention - check it out on our website! prisms.org/about-sms/livi…

Did you know that PRISMS offers event support for local family meet-ups? If you're organizing an event for your local SMS community, reach out to us at info@prisms.org – we’re here to help! #HugOrBeHugged #PRISMS #SmithMagenisSyndrome

Early intervention can be key for individuals with SMS. PRISMS has pulled together resources to help you navigate Early Intervention - check it out on our website! prisms.org/about-sms/livi…

Did you know that thousands of companies offer matching donations for their employees? Click on the link to use the search tool to see if your company will match your donation. prisms.org/donate/employe… THANK YOU for considering this additional contribution to PRISMS!

Early intervention can be key for individuals with SMS. PRISMS has pulled together resources to help you navigate Early Intervention - check it out on our website! prisms.org/about-sms/livi…

It's #GivingTuesday! Today is a day of global giving. A day that encourages people to do good! Everyone has something to give and every act of generosity counts Join the GivingTuesday movement and give to PRISMS today! prisms.org/donate/

Today is #SMSAwarenessDay, a day dedicated to spreading education and understanding of #SmithMagenisSyndrome around the world! Join @smsprisms in raising awareness for this #RareDisease. Learn more: bit.ly/3tEclSd

@vandapharma is proud to partner with #smsprisms in continuing to raise awareness and support for those affected SMS #smithmagenissyndrome, especially on #SMSAwarenessDay. To learn more about PRISMS, please visit prisms.org

Nov. 17 is Smith-Magenis Syndrome (SMS) Awareness Day and @prisms_sms has pulled together a calendar of ideas for the month of November to help spread awareness and bring joy to the SMS community. #smithmagenissyndrome #SMSAwareness Check it out: bit.ly/3oQHVoz

Kayla Beecher shines a light for #SmithMagenisSyndromeAwarenessDay, which takes place this Friday. Smith-Magenis syndrome is a phrase we had never heard before. Until then, we fought tirelessly to find out what was wrong with our daughter. Read at bit.ly/4613U0r

We're back with another #60SecondsOfRARE. For the start of #SmithMagenisSyndromeAwarenessMonth, we hear from Dianne, whose son, Max, lives with a #SmithMagenisSyndrome diagnosis. Email rpender@rarerevolutionmagazine.com to get involved with your own 60 Seconds of RARE.

@RareRevolutionM Thank you for sharing about Smith-Magenis syndrome (SMS) as we approach International SMS Awareness Day on November 17. We appreciate all you do for the rare community!