Bridget O'Shea

I hate every minute of my life. This is torture. #MECFS

Waking up and not being able to just get up and do things is something I'll never accept or get used to. #MECFS #LongCovid

@linds_longcovid Yeah it's because of my cats. Both parents are allergic and their house isn't very big, so that was going to create problems for sure.

Symptoms are getting worse. I'm in agony today. I have to move house in 3 weeks. How???? #MECFS

@I_need_a_razor @katiamek We, the patients, are the experts. We're the real specialists. In this case THEY should be paying US . Instead it's like "Let's have you pay me an exorbitant fee d so my colleagues and myself to gawk at your weird disease I" Despicable.

@katiamek Specialist? Ain’t no fkin specialists when it comes to myalgic encephalomyelitis

I’m sorry but this is more than absurd and unethical. CHARGING PATIENTS 60K for being their doctor for conditions with no cure. Because you’re a specialist? Not for a surgery or anything FOR YOUR CONSULTATIONS? in what reality are we living in? #mecfs #pwme #severeme

@linds_longcovid That's if a miracle happens and I get my life back.

@linds_longcovid Yeah my mom said day are gonna help me out. I We're renting an apartment in between my parents place and my brother. At this point , though.... At this point I think I'm gonna be happy just to be alive and healthy.

@katiamek I'm gonna see if there's a federal agency that can get involved because this is just so, so wrong.

@linds_longcovid Me too. ❤️🫂

I've done everything in my power to appease my body, to stop its anger towards me. Each time I think I'm improving, it kicks me back down with its relentless wrath. There's only so long I can stay inside this thing. I'd rather have lost both my legs than gotten #MECFS #LongCovid.

In tiefster Trauer und Betroffenheit teile ich, Kai (@kai_hrmth), diese Nachricht

A medical system that gaslights and neglects complex illness patients into severe suffering and early death, and then pathologizes our pain, fear, and grief as mental illness is far sicker than we are. #Care4Complex #MedicalGaslightingKills #MedicalPTSD

@ArsenBalls 😢

I spent about an hour talking with Keith Haring back in the mid ‘80s when my class visited the Art Gallery of NSW in Sydney. I stayed back while the class progressed through the building. He was creating a huge mural which is now destroyed. 😔

@KendalPeters11 Never heard of it.

Do other countries use the measurement of 'Tog' for how warm a duvet is? Or is this some more weird thing that's just used in the UK and is meaningless?