HealingCFSME

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HealingCFSME

HealingCFSME

@HealingCFSME

CFS/ME since 1991. Bedbound 14 years. Now walking and talking again. Website on healing within and beyond illness #CFSME #healing

UK Se unió Mart 2014
2.9K Siguiendo2.8K Seguidores
HealingCFSME retuiteado
Darren Parkinson 🌍💚💙
Darren Parkinson 🌍💚💙@DarrenBar88·
Today is #LongCovidAwarenessDay Long Covid changed my life beyond recognition. I got ill. I never recovered. Lost my job. Became housebound. I rely on others to do things for me. I lie on my bed most of the day. Watch the Guardian's short film about my life with #LongCovid 👇
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HealingCFSME@HealingCFSME·
thank you for the retweet. i appreciate you.
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Kirst
Kirst@kirstler31·
If anyone needs cheering up a bit here’s a picture of my spoilt baby fluffy. Look at the little tootsies poking out the bottom 😭 x
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HealingCFSME
HealingCFSME@HealingCFSME·
@ItsAllAboutMEN2 youre not too far from me. I'm in Swindon. tho your last post is 2020. hope that's a good sign. wishing you well.
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Tom Kindlon
Tom Kindlon@TomKindlon·
News Release (from NCNED @NCNEDResearch in Australia) 12-Jan-2026 New research confirms people with ME/CFS have a consistent faulty cellular structure eurekalert.org/news-releases/… #MEcfs #PwME
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Tom Kindlon@TomKindlon

Large-scale investigation confirms TRPM3 ion channel dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by @SonyaGradisnik @NEatonfitch et al from @NCNEDResearch frontiersin.org/journals/medic… Screenshot from latest Science for ME weekly update #MEcfs #PwME

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BladeoftheSun
BladeoftheSun@BladeoftheS·
Samir Zitouni a Muslim Immigrant from Algeria left hospital today, 2 weeks after being the first person to try stop the Huntingdon train attack. They won't want to talk about this immigrant.
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HealingCFSME@HealingCFSME·
@00SarahBear00 thank you dear Sarah. Physically tough. Spiritually rich. How are you?
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Sarah
Sarah@00SarahBear00·
@HealingCFSME Hope so much that you're doing well. And looking forward to reading your next update.
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Lizzy H
Lizzy H@hopefullizzy·
My bro went and picked up these new pjs for me so I finally have some that fit! (Top is still big but it’s ok!) they’re so lovely, bright & soft. He looked after me for 4days & was an absolute legend, sorting all my meds, commode, care etc and we had some lovely little moments!
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Adam
Adam@ABrokenBattery·
Highlights Dr. Sarah Jarvis on BBC Radio 2 - Jeremy Vine - she outlines the various syndromes seen in #LongCOVID and the most common symptom - profound tiredness—is “exactly the same” as that in #MECFS. They are learning from ME and hopefully won’t make the same mistakes.
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HealingCFSME
HealingCFSME@HealingCFSME·
@AlanLevinovitz you might enjoy the series desperate romantics about the pre raphelites. "Elizabeth Siddal, the model for John Everett Millais's painting "Ophelia," died from pneumonia caused by the cold water she was required to bathe in during the painting process. She had to lie in a bathtub"
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Alan Levinovitz
Alan Levinovitz@AlanLevinovitz·
Hadn't ever seen this painting of Ophelia before, by John Everett Millais. Apparently he spent "up to 11 hours a day, six days a week, over a five-month period in 1851" to get the botanical details right. Zoom in to appreciate how wildly good it is.
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