TTP Network

On behalf of the TTPNetwork trustees, huge congratulations to Jo for her award of the British Empire Medal. ttpnetwork.org.uk/news/founder-o…

It's Back! The TTPNetwork Christmas Fundraiser 2025 @ttp_network visufund.com/ttpnetwork-chr… via @visufund

It’s #TrusteeWeek! 💙 We’re celebrating the incredible team guiding TTPNetwork with passion, expertise & lived experience. Their dedication helps ensure no one facing TTP feels alone. Meet our trustees 👉 ttpnetwork.org.uk/about-us #ThankATrustee #PatientAdvocacy

We’re so excited to be part of @GoVoOfficial - the new volunteering platform connecting people with amazing opportunities. You can now easily browse, filter, and sign up for volunteer roles like being a Trustee directly on GoVo. Get volunteering at GoVo.org

Bridgathon 2025 has started. Supporting the UCL TTP Education & Research Fund. Donate here: justgiving.com/page/ttpwalk20…

Are you a patient with iTTP? Would you like to take part in research on the Psychological Impact of iTTP? read more here: liveuclac-my.sharepoint.com/personal/ucjum… take part here: forms.cloud.microsoft/pages/response…

The 2025 TTPNetwork Patient event is happening soon. Get your ticket here: buytickets.at/ttpnetwork/156… Learn more about TTP, meet others with cTTP and iTTP and their families. Have fun! Plus refreshments and lunch included.

Tom is raising funds for TTPNetwork. Support him here: justgiving.com/page/tomkellet…

Missed the last post? no need to worry - send an e-card and support TTPNetwork at the same time! dontsendmeacard.com/ecards/chariti… #DontSendMeACard #Christmas2024

As Christmas approaches we are offering two opportunities to support TTPNetwork. Send an e-card or pick a penguin! dontsendmeacard.com/ecards/chariti… visufund.com/ttpnetwork-chr…

Today we celebrate International Day of Charity. Thank you for all of your support, enabling us to continue our work.

Don't forget to take your TTP Travel letter, translated into the language you need: ttpnetwork.org.uk/resources/trav…

Are you planning a trip abroad? Take a look at the Your Travel and Health website yourtravelandhealth.com Lots of tips about what to pack, where to put your medications and travel insurance for a pre-existing condition &more.

Get your Voice Heard - sphinxonline.com/surveyserver/s…

Are you a TTP Patient? Would you like to know more about relapses? join us for our free webinar: buytickets.at/ttpnetwork/131…

Make your voice heard: take the new Rare Barometer survey on the impact of rare diseases on everyday life! To make your voice heard & share your experience, take the survey by clicking here, before 8 September: tiny.cc/RB_DailyLifedis @eurordis

apply here share-eu1.hsforms.com/1Nxs3awihQbS5D…

A huge thank you to all our volunteers including our Trustees who volunteer their time. We couldn’t do it without you.

Another fabulous TTP consultant running for us this year. Dr Rachel Evans from Newcastle is bringing up the north with this ULTRA MARATHON!!! You can support her here: justgiving.com/page/rachel-ev…