NTSAD

Happy Rosh Hashanah to our friends who celebrate. May the year ahead be filled with sweetness and good health! #NTSAD #TaySachs #Canavan #GM1 #Sandhoff #RareTogether #StrongerTogether #NTSADFamily #NTSADCommunity #ShanaTova

Today is International GM1 Awareness Day! You can help spread rare awareness by sharing this post with your community!

May 23 is International GM1 Awareness Day. You can spread awareness by sharing this post or making your own. Support GM1 families and give to NTSAD today! bit.ly/3m3jz9k

Check out NTSAD's May Community News! conta.cc/3ULSI4p

NTSAD helps families advocate for insurance coverage, secure equipment, and apply for financial aid. You can support rare families by making a gift today: bit.ly/3m3jz9k

NTSAD provides support to families like Claire's and connects them to a community that truly understands. Support this rare community by making a gift today! bit.ly/3m3jz9k

“Every day is a struggle. Everything I do revolves around this disease.” -Katie YOU can help accelerate research and treatments by making a gift to NTSAD today. bit.ly/3m3jz9k

NTSAD's CEO Kathy Flynn and Research Director Valerie Greger, PhD, are attending the American Society of Gene & Cell Therapy (ASGCT) Meeting this week in Baltimore, Maryland.

A mother's love lasts forever. Sending love this Bereaved Mother’s Day and every day.

April 25 is National DNA Day, celebrating the completion of the Human Genome Project in 2003 and the discovery of the double helix in 1953. Advancements like these grow our understanding of genetic diseases and bring us closer to treatments! #DNADay24 bit.ly/3g63Whp

Read NTSAD's April Community News, out now! conta.cc/3JD84CU

That's a wrap on NTSAD's 46th Annual Family Conference! Thanks to everyone who joined us in Chicago, Illinois for four days of connection, community, and support. Special thanks to our 2024 sponsors, our camp volunteers, and the incredible photographers! #AFC2024

At #AFC2024, our youth group took field trips to downtown Chicago and explored the Navy Pier, Wrigley Field, Shedd Aquarium, and more!

Free professional photography sessions are available for all rare individuals and families attending the conference. Sign up for a time at the registration desk and meet the photographers in lobby! #AFC2024

It's day three of the Annual Family Conference! Health Management Day has a packed schedule, check it out: bit.ly/49hsYCf #AFC2024

Today is Research Day at #AFC2024! Check out the full schedule here: bit.ly/43o7WAo

THANK YOU to our 2024 sponsors! Every year, you make it possible for the NTSAD Community to gather for this memorable experience. #AFC2024

Today is day one of the Annual Family Conference! During Support Day, families have the chance to connect with others who truly understand. We are so excited to be together again, this year in Chicago, Illinois! #AFC2024

One sleep until the 46th Annual Family Conference officially begins! We are so excited to welcome you all to this year's conference in Chicago! You can check out the schedule, speakers, sponsors, camp information, and more on our conference website: bit.ly/3yLAIN4

This Friday, join a panel of industry representatives for a Q&A session during which they will explore their perspectives and the current climate surrounding research and drug developments. Sue Kahn, former NTSAD Executive Director, will moderate this discussion. #AFC2024