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Treatment, equipment, rehab — it costs thousands every month. But if we stop, the disease will take back everything Sofi has fought so hard to gain.

You’ve asked what surgery Sofi needs. Doctors found that if a certain part of her brain is removed, she could live without seizures and develop much faster — walking, talking, learning like other kids. The cost starts from $120,000. A sum far beyond what our family can afford — but it’s the only real chance for Sofi’s future.

Huge challenge and an expensive surgery ahead, but we're not giving up! Together, we can fight for a miracle.

@my_sofi_baby Do you have enough for everything?

You asked how much Sofi’s care costs each month. For our family it’s a huge amount: – Physical therapy (5x a week) – Ergotherapy – Massage & speech massage – Medicines – Doctor visits & monthly check-ups – Extra costs: custom shoes, medical devices, expensive tests And we try to save for surgery on top of that. In total: $1600+ every month just for Sofi, not counting normal family expenses.

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@my_sofi_baby What is the danger of her type of epilepsy?

Sofi has been seizure-free for 6 months. But stopping treatment isn’t an option — seizures can return anytime, and without rehab every bit of progress could be lost. Every day we spend huge time and money just to keep her progress — and to help her move forward, even if slowly.

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@my_sofi_baby that's story for PumFun live

When Sofi was born, it was terrifying to look at her. She couldn’t control her body at all. We remember those days with horror and pain. Now every little step, even with our help, is a proof that healing is possible. But we need to raise enough for surgery — the only chance to give her a future.

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@my_sofi_baby How much does the operation cost? How are you planning to raise money?

@my_sofi_baby Why is the world so unfair?

Every day we fight for Sofi’s progress. She needs special equipment to grow and stay strong — and it all costs a fortune. A standing frame ($4–5k) helps her train her muscles even at home. We were lucky to find one second-hand. Even shoes must be custom-made and replaced every 3–4 months. Each step for Sofi is a challenge — and a victory.

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