SHARE Study

🌟Calling all 16-39 year olds with a lived experience of cancer – we want your input! Join our get together session, in-person or online, and help us explore how we can better involve young diverse voices in our research. Scan the QR code for more info and to register!

Great to see some more research published from the SHARE study, that informed our work with parents during the COVID-19 pandemic adc.bmj.com/content/early/… @asdarlington @drbobphillips @drjessmorgan @CCLG_UK

🔦NEW: Our report on parents' experiences of preterm birth throughout the COVID-19 pandemic suggests significant psychological and emotional impacts during the birthing experience and the neonatal intensive care journey @Blisscharity onlinelibrary.wiley.com/doi/10.1111/ap…

Complete our survey and share your views! We want to know how children and young people (aged 12-30) and their parents are coping now that COVID restrictions have been lifted. For more information on eligibility and links to the survey, open the thread below 👇👇

@TheBHF @TheCHF @cftrust @Kidney_Research @kidneycareuk @Blisscharity @Tog4ShortLives @SHINEUKCharity @HarrysHAT5 @LeedsHospitals @UHSFT

We want to hear from children and young people (aged 12-30) who have cancer, kidney condition, heart condition, cystic fibrosis, and hydrocephalus, and from their parents. We also want to hear from parents who have a child with a life-limiting condition or a preterm baby.

💬We want to hear from you! We want to know how children and young people (CYP) and their parents are coping now that COVID restrictions have been lifted Parents: forms.office.com/r/imtYUdJsnM CYP (aged 12-30):forms.office.com/r/XM8kgcGATL @unisouthampton @UniOfYork @CCLG_UK #TheSHAREStudy

🔦💬We are delighted that @YincentTse will be presenting our findings at the #ESPN2021 annual meeting with an oral discussion on COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions

🔦💬We are delighted that @drjessmorgan will be presenting our findings at #SIOP2021 with an E-poster discussion on SHARE-ing experiences, needs, and decision making of parents of children with cancer in the United Kingdom during COVID-19.

Experiences & support needs of UK Young People with kidney condition during first covid wave. Significant differences shielded vs non-shielded See at #RCPCH21 @BAPNnephrology @arvnagra @DrDeano @ReadySteadyGo3 Video summary co-produced with young people youtu.be/LYX0BuHoi70

🔦New: pleased to announce another insightful paper from The SHARE Study! The impact of #COVID19 on children & young people with #cysticfibrosis +parents. onlinelibrary.wiley.com/doi/10.1002/pp…

📣 ✅ Share your views and help with our COVID research! At different stages of the pandemic, we've asked for your views and experiences as part of 'The SHARE Study' which has helped to inform our response. (Info & links in following tweet!)

In 2020 @unisouthampton & @HuddersfieldUni launched studies to understand experiences of lockdown/shielding. We’ll be sharing the results very soon. The Southampton team are running their survey again to see how parents & young people (under 30) are coping:cysticfibrosis.org.uk/news/surveys-l…

In 2020 @unisouthampton & @HuddersfieldUni launched studies to understand experiences of lockdown/shielding-we’ll share the results with you soon. The Southampton team are running their survey again to see how parents and young people (under 30) are coping cysticfibrosis.org.uk/news/surveys-l…

@TheBHF @TheCHF @CCLG_UK @cftrust @HarrysHAT5 @kidneycareuk @Kidney_Research @UoYmhrc @LeedsHospitals @UHSFT @SHINEUKCharity @Tog4ShortLives #COVID #research

Exciting news! @unisouthampton & @UniOfYork are in collaboration with national charities to understand the impact of COVID-19 on the lives of children and young people with serious conditions and their parents. Keep your eyes peeled for our findings over the coming months! 👀