Epilepsy Action Comms

Very concerning to hear of the latest developments around Universal Credit. The DWP needs to build trust with people and this is not the way to do it. Asking people to prove their identity in this way is de-humanising and we would urge the DWP to find a better way to do this.

OUT NOW - This DBC report reveals 82% of people, the majority of whom are disabled, have had to make stark choices; heating their homes or putting food on the table. Read this crucial report that reveals why the Govt must urgently #IncreaseLegacyBenefits bit.ly/3j5j1PR

Everybody with epilepsy has their own unique story 📖 And we love reading them 💜 You can read lots of them and share your own on our website 👉 epilepsy.org.uk/my-story #NationalStorytellingWeek

You can read more about the review here: epilepsy.org.uk/AED-defects (9/9)

We want to ensure that necessary action is taken in light of this review by asking @MattHancock to ensure that no woman or girl takes an anti-epileptic medication without them, or their family, being aware of the risks. (8/9)

The @MHRAgovuk’s review of the use of epilepsy medication in pregnancy has highlighted the existing evidence of the risks of harm to unborn children posed by the use of some medications during pregnancy. (1/9)

A memoir I am writing about the loss of my beautiful son Felix to #SUDEP is crowdfunding with @unbounders - it's not just about grief, but about love @SudepAction @epilepsyaction @youngepilepsy @BrainAblaze @GoodGriefProj @OxEpilepsy @m_newbury @TCFcharityUK @epilepsysociety

We support @End_Our_Pain's call for access to cannabis-based medicines for children with severe and treatment-resistant epilepsy. You can help by emailing your MP - it only takes a few clicks: endourpain.org/email-your-mp/ You'll be supporting children like Alfie 👇💜

cambrian-news.co.uk/article.cfm?id… Lovely piece in @CambrianNews celebrating the Pili Pala team at Llwyn yr Eos School in Aberystwyth. They're our Helping Hands Heroes for all they have done to support Seren, 11. Fabulous work, ladies! 💜👏👇

"Rachael and Danielle have picked me up and patched me back together. They have shown me that life is worth living again. I cannot thank them enough.” 🎉 We're delighted to award Rachael and Danielle an Epilepsy Action Helping Hands Award 🎉 Read more 👉 epilepsy.org.uk/news/news/epil…

"Learning to understand epilepsy, or even attempting to, is the most important thing anyone can do for epilepsy sufferers, or for anyone with an invisible disability." Read Francesca's story 👉 epilepsy.org.uk/my-story/manch… #InvisibleDisabilitiesWeek #InvisibleDisabilities

‘The true effect of the pandemic on people with epilepsy is starting to emerge’ Read more in the @NursingTimes 👇 nursingtimes.net/opinion/the-tr…

"Hopefully, I can show people that no matter what your medical condition or disability, you can still achieve your goals." Zeenat will be running the #GreatRunSolo this weekend. Read her story here👉 epilepsy.org.uk/my-story/runni… #GNRVirtual @Great_Run #GNRReimagined

bbc.co.uk/news/uk-englan… Go Ellis and his friend Reggie, who has just won our Helping Hands Hero award!👇💜💪👏 Such a lovely story of friendship.

Last chance to have your say! Our patient experience survey for people in Northern Ireland closes tomorrow. Please take 10 minutes to let us know your thoughts about health services in your area, and help us shape our future work in Northern Ireland 👇💜 epilepsy.org.uk/involved/branc…

"I spent 4 hours in A&E, there wasn’t space for proper distancing. I thought ‘I’ve come to check my baby’s heartbeat, but we’re potentially both at risk with COVID now.’” ⠀ You can hear more of Ibby’s story in the latest episode of epilepsycast: epilepsy.org.uk/podcast 🎧💜

What was your reaction when you first got your epilepsy diagnosis? 🤔 Hear Patience talk about how she reacted to her first seizure, her struggles with work and her decision to move city on 'epilepsycast' episode 6 right now. Available on all major podcast platforms 🎧🎤

Always wanted to be a movie star? 📽️ On Sat 25 July, people across the world will be documenting their days for @YouTube's #LifeInADay film. How great would it be to see epilepsy represented in that film? 💜 lifeinaday.youtube

Thank you to everyone who has taken part in the @epilepsyaction #VirtualBradford10k so far! Enter now, to get involved and help us reach the next milestone of 5,000 kms 👉 epilepsy.org.uk/bradford