Appendix Cancer/PMP

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By being bold, wise, hard and tough, we will be stronger. #withyoueverystepoftheway #appendixcancer #pmpsurvivor #pseudomyxomaperitonei

"...you gotta be tough..." No one said this was going to be easy, you need to be tough to dealwith it but our community is here to help and support you. #appendixcancer #pmpsurvivor #pseudomyxomaperitonei

"...You gotta be hard..." You have to be hard on those around you and times and learn when to just say no. We can't do everything and it isn't a failing to admit that. #appendixcancer #pmpsurvivor #pseudomyxomaperitonei

..."you gotta be bold You gotta be wiser..." as patients, we have to be bold and ask those questions and be wiser and learn about our disease so that we can be better advoctes for our own health care. #appendixcancer #pmpsurvivor #pseudomyxomasurvivor

"You gotta be bad you gotta be bold You gotta be wiser you gotta be hard You gotta be tough you gotta be stronger" Whilst we don't hold with being bad, these lyrics from Des'ree sum up for us how we have to be as patients... How have you become stronger since your diagnosis?

It is with a heavy heart that we share that our friend and colleague, Dr Georgina Morgan has died. We have been honoured to have Georgina as a Trustee here at Pseudomyxoma Survivor for over two years. - Susan, Chair @PMPSurvivor pseudomyxomasurvivor.org/georgina/

These lyrics from a song by Sara Bareilles remind us that sometimes we bottle up our feelings and it can be better to find someone to share just how brave you are by discussing them instead. Do you have someone to be brave with? #appendixcancer #pmpsurvivor #peudomyxomaperitonei

Happiness is a choice ~ Valerie Bertinelli

Pilot RCT shows prehab with wearables improves functional capacity before CRS/HIPEC & major cancer surgery. Thanks ⁦@PMPSurvivor⁩. Planning a multicentre RCT. Please get in touch if interested. ⁦@prehab4cancer⁩ ⁦⁦⁦⁦@SPeritoneum⁩ link.springer.com/article/10.100…

Organisations can't prevent use of accessible bathrooms as not all disabilities are visible. @invisibledisab2 @sunflwrlanyards @bowelbabe @so_bad_ass @IrishCancerSoc @PMPSurvivor @acpmpresearch @AppendixPMP @CrohnsColitisUK @bowelcanceruk @BowelDiseaseUK irishtimes.com/news/ireland/i…

Why Me? We all ask ourselves this when we receive a diagnosis of #pseudomyxomaperitonei or #appendixcancer. If you've looked after yourself, eaten well and are a non-smoking, teetotaller marathon runner, you must feel particularly perplexed. #pmpsurvivor #pmpcancer #pmpawareness

Are you excited by the work @PMPSurvivor does? Do you share our values? Think you can take active part in the work of our Board? We want to hear from you! pseudomyxomasurvivor.org/were-looking-f… #giveyourtime #dosomegood #pseudomyxomaperitonei #appendixcancer #trustees

So excited to share our upcoming workshops for those being affected by #pseudomyxomaperitonei and #appendixcancer. Online and facilitated by Dr Jason Spendelow and @PMPSurvivor. Follow the link to find out more, including how to book your reservation - mailchi.mp/pseudomyxomasu…

"Men can be stubborn when it comes to admitting they need to see a doctor." ~ Richard bit.ly/richardpmp

"I’m getting stronger every day physically. I put on a few pounds and the feeling of tightness in my abdomen has subsided." ~ Marty bit.ly/2JNBZLl

"Stop stressing. Stress can kill you. Don’t let others stress you out. I have become very protective of my emotions." ~ Becky bit.ly/31jEB8U

How many twenty year olds can expect to be a cancer patient? Then you find out it's a rare cancer. That's how SLee13 felt. pseudomyxomasurvivor.org/too-young-for-… #appendixcancer #pseudomyxomaperitonei j.mp/3kjgq43

So pleased to share that we're supporting exciting new research into the biology of #pseudomyxomaperitonei (PMP). The study is collaboration between @BasingstokePmi and Cancer Sciences Unit, @unisouthampton More @ link ow.ly/huA050Bpgjz #appendixcancer #pmpsurvivor

John thought he had a hernai but it was #pseudomyxomaperitonei #appendixcancer bit.ly/2NMHXgn