Cadasilsupportuk

@emmerdale @CamStroke don’t miss an opportunity to highlight #cadasil as a #raredisease cadasilsupport.co.Uk #cadasil #misdiagnosis #tia #stroke #emmerdale #marlon

Such a great conference. Thanks ever so much to all the speakers

Our #CADASIL #telemedicine service is in this weeks Cambridge Independent ! ⁦@Cadasilsupport1⁩ ⁦@CamNeuro⁩ ⁦@TheEvelynTrust⁩ ⁦@CUH_NHS⁩

Out now! Download the official poster for #RareDiseaseDay 2020 now available via rarediseaseday.org/downloads. Share it today to show your support for the rare disease community!

Jess Walsh presenting poster on BBB permeability and neuroinflammation in small vessel disease at Cambridge Cardiovascular Annual meeting - a very impressive range of exciting CVS research including stroke and vascular dementia ⁦@Cambridgecardio⁩ ⁦@TheBHF⁩

Rare Disease UK: alert cards, media opportunity and more! mailchi.mp/raredisease/ra…

The Rare Diseases website below has two items of potential direct interest. Firstly, an item asking for user views and/or... mailchi.mp/raredisease/ra…

For people with CADASIL a stroke is often the start of being diagnosed. This new advert by the #strokeassociation is part of the #rebuildinglives campaign and shows the imapct a stroke can have. CADASIL is a rare disease and having a stroke is... youtu.be/rjwWBahKQjk

Want to say a massive thank you to tho absolute legend! Karen has raised money for u before and we can’t thank her enough xxx facebook.com/story.php?stor…

On 7 April this absolute weirdo is running the Manchester marathon which is a ridiculous 26.2 miles. Now I call her a weirdo because I’m jealous that I couldn’t run or even walk 26.2 metres Karen Cooke you... facebook.com/20038723068573…

Shocking! you.38degrees.org.uk/petitions/just…

Cambridge CADASIL meeting 2019 The next Cambridge CADASIL meeting will be held on Monday 10th June 2019 10.30am-4.30pm at the Clifford Allbutt Building Lectrure Theatre at Addenbrooke's Hopsital, Cambridge. This years meeting will... cambridgestroke.com/cadasil.php

With thanks to Billie at CTWHH for sharing this latest newsletter with us. myemail.constantcontact.com/CADASIL-News-a…

Very interesting meeting discussing European Academy of Neurology guidelines for diagnosis and management of #monogenic #stroke. A rapidly evolving field. Hopefully they’ll be ready to present at ⁦@EANeurology⁩ Conference in Oslo June 29-July 2 ⁦@StrokeGenetics⁩

@rarediseaseday #raisingawareness for #CADASIL

#RareDiseaseDay 2019 is today! What action are you taking to raise awareness of rare diseases today? Join the global movement for rare diseases. #ShowYourRare rarediseaseday.org/article/get-in…

#RareDiseaseDay #RaisingAwareness #CADASIL #Stroke #migraines #depression share the rare diseases to help raise awareness x

Please RT our #RareDisease poster for #RareDiseaseDay #CADASIL #Stroke #DefyTheOdds @lusardiofficial @TheStrokeAssoc @CamStroke @SimonCowell @PeterEgan6 @AndrewMarr9

#rarediseaseday2019 #RareDisease #Cadasil #Stroke #raisingawareness tag us in your rare disease and we will RT you. Please RT #SpreadPositivity @rarediseaseuk @rarediseaseday

WHY CAN'T PEOPLE WITH A DIAGNOSIS BE A BLOOD DONOR? 💉 This is a question we have been asked so many times as even long term donors are told they are no longer allowed, once being given a diagnosis of CADASIL. This is even if a... my.blood.co.uk/KnowledgeBase/…

Today's #MastermindFind: #MRI for early assessment of late-onset #genetic #leukoencephalopathies is extremely valuable, as demonstrated by the pedigree and genotyping of a Canadian family with a #NOTCH3 #mutation: @cadasilsupport1 @cadasil_assn @RTIHS bit.ly/mmind079