Jamie Lederer

139 posts

Jamie Lederer

Jamie Lederer

@JamieLedererNP

ILD Nurse Practitioner. Wife. Mom of two. Philadelphia sports lover. Former ICU Nurse. tweets are my own

Bergabung Kasım 2019
234 Mengikuti111 Pengikut
Jamie Lederer
Jamie Lederer@JamieLedererNP·
September is pulmonary fibrosis awareness month. As the month kicks off I can’t help but take time to think about the many patients and their family members I have had the privilege to work with over the last 8 years working in this specialty. #pfmonth
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Jamie Lederer
Jamie Lederer@JamieLedererNP·
@PFNI_NIRELAND This is such an amazing idea and fills a great need! Would love to have this book for patients in the us - anyway to get it in the us?
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Pulmonary Fibrosis NI
Pulmonary Fibrosis NI@PFNI_NIRELAND·
The time has finally arrived, you can now order your copy of Pete the pufflings brave adventure. This beautiful book has been written to help children understand pulmonary fibrosis. The book is available on line by clicking this link simplyorderit.com/collections/pf…
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Jamie Lederer
Jamie Lederer@JamieLedererNP·
@PFFORG thanks for having me today! I hope the many patients who joined the watch party today enjoyed it as much as I did.
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Michael Rubin
Michael Rubin@michaelrubin·
Josh Harris, David Blitzer, @david_adelman and I just bought more than 2,000 tix for Sixers Game 6 - we absolutely CANNOT let Knicks fans take over our arena again!!! Giving them to first responders, health care professionals and other local Philadelphia-based organizations once we know they’re legit Sixers fans and not imposters!! 😂 Let’s go Sixers - we can do this!!
Crossing Broad@CrossingBroad

Sixers Ownership and Michael Rubin Teaming Up to Buy 2,000 Game 6 Tickets for Philly Fans crossingbroad.com/2024/05/sixers…

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Jamie Lederer
Jamie Lederer@JamieLedererNP·
Good news - you can help too! The #SOARact aims to improve access to supplemental O2 and care for those living with it. Please call congressional leaders and ask them to support the #SOARact You can reach them via the capitol switchboard at 202-224-3121
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Jamie Lederer
Jamie Lederer@JamieLedererNP·
It is one of my favorite days - PFF Hill day. Today I get the honor of advocating for my patients by meeting with our congressional offices and asking them to support pulmonary fibrosis research and supplemental oxygen reform. #pffhillday #pulmonaryfibrosis #advocate #soaract
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Jamie Lederer
Jamie Lederer@JamieLedererNP·
This Philly girl is one hundred percent a Philadelphia Eagles fan (the rest of our ILD & Sarcoid team can attest to this)…but it is pretty awesome to see that Houston Texan Tavierre Thomas will be wearing @StopSarcoidosis cleats for @nfl #MyCauseMyCleats
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Amy Hajari Case
Amy Hajari Case@ahajaricase·
No #mottirl moments this weekend, and I took fewer pictures with friends than I meant to. Still wonderful connecting with everyone!
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Amy Hajari Case
Amy Hajari Case@ahajaricase·
That's a wrap on #PFFSummit2023! It's been an inspiring and energizing few days with old friends and new. Brain and heart both full. Also: I've never had so many ribbons on my nametag before. 😂 Join us in 2 years for #PFFSummit2025!
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Jamie Lederer
Jamie Lederer@JamieLedererNP·
What a rock star panel leading us in thinking about addressing quality of life for our patients #pffsummit2023 #pff #ild
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Jamie Lederer
Jamie Lederer@JamieLedererNP·
Dr. Katzen is sharing his research with patients this morning. What a great opportunity for patients to hear about the hard work that is going into discovering more information about pulmonary fibrosis which may lead to new ways to treat the disease #pennild #pffsummit2023 #pff
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Jamie Lederer
Jamie Lederer@JamieLedererNP·
The Nurse and Allied Health session yesterday was one of the highlights of the @PFFORG summit for me. When we come together and share our knowledge and experiences our patients benefit so much. #pffsummit2023 #ild #pff
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Jamie Lederer
Jamie Lederer@JamieLedererNP·
Lori Flint shares with us how to address the challenges of care in ILD. She so eloquently reminded us caring for these patients is complex but as a team we can work to improve the care and experience of our patients #pffsummit #pff #ild
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Jamie Lederer
Jamie Lederer@JamieLedererNP·
Imagine an oxygen company telling you they can not give you oxygen supplies so you can leave your home…this happens to my patients. Please ask your congressional leaders to pass supplemental oxygen reform. Visit this link to send a message to Congress. a.lung.org/eoZrWsZ
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Jamie Lederer
Jamie Lederer@JamieLedererNP·
Do you see patients with cough or shortness of breath? Please take a moment and check out this video - you may come across a patient with #ILD@ThreeLakes_TLF and @accpchest want you to have the tools to recognize this rare diagnosis youtube.com/watch?v=kAmlfX…
YouTube video
YouTube
Dan Dilling, MD@DanDilling

Happy #RareDiseaseDay This video promotes an educational toolkit for PCPs that hopes to close the gaps to diagnosis in #ILD like pulmonary fibrosis. Please help me share it to raise awareness for these complex lung diseases: youtube.com/watch?v=kAmlfX…

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