LGS Foundation
3.2K posts
LGS Foundation
@LGS_Foundation
The LGS Foundation is dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.
San Diego, CA Bergabung Ekim 2009
398 Mengikuti2.1K Pengikut
💜From seizures to full lives... it starts here.
Because every family deserves better answers, better care, and better outcomes.
👉 Learn all about the why, the goal, and the how of each challenge at the link in our Bio or visit lgsfoundation.org/powering-break…
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LGS Foundation me-retweet
Apply for the Elevate Patient Assistance Program!
Seizure alert devices are one of the most requested forms of support within our community, helping caregivers feel more confident and supported, especially during nighttime hours.
🔗 lgsfoundation.org/apply-for-our-…
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The Cure LGS 365 Research Grant funds basic, translational, and clinical research on LGS, accepting proposals year-round.
Priority areas include biomarkers, disease-modifying therapies, neurodegeneration, natural history, quality of life, and more.
lgsfoundation.org/365-research-g…
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💜 Our friends at RHA Health Services hosted their own Walk for LGS Research today!
With around 50 participants helping spread awareness, the walk was a success.
🌟 Thank you all!
🔗 Want to be part of the movement? Find a walk near you: #currentwalks" target="_blank" rel="nofollow noopener">lgsfoundation.org/walk/#currentw…
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📢 Our 2025 Annual Report is here!
💜 In 2025, you made it possible for us to support 800+ new families, reach a milestone of $3.1M in research funding, launch bold new initiatives to shape the future of LGS, and more!
👉🏼 lgsfoundation.org/wp-content/upl…
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Today, initiatives like 'Powering Breakthroughs: Tackling The 3 Grand Challenges in LGS' aim to change these realities by accelerating progress toward Precision diagnosis, Precision treatments, and Whole-life care.
🔗 Read Kameron's full story: lgsfoundation.org/kamerons-story/
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Right now, families like Kara’s are holding on to hope, and that hope fuels the Walk for LGS Research.
👉 lgsfoundation.org/walk
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🌟 Thank you to our 2026 Walk Sponsor @NeurelisInc for making this movement possible! 🙏
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Join the amazing LGS SIG!
Pediatric Epilepsy Research Consortium@PERCepilepsy
Interested in joining a PERC SIG? We’d love to connect! Visit the #PERC website and complete the Contact Form and our SIG Coordinator will follow up with details on the current SIGs we have, current initiatives, and ways you can get involved. There is no membership fee to be a part of PERC. PERC SIGs are collaborative spaces designed to bring together shared expertise, spark new ideas, and advance meaningful work. We welcome your involvement and look forward to connecting! Join a PERC SIG Today: lnkd.in/gmRc4kGS #Collaboration #Research #Epilepsy #Health
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Our Walk for LGS Research in Hudson, Florida was a success! 💜
Families and friends showed up with full hearts to raise awareness and stand alongside those living with LGS.
🔗 Want to be part of the movement? Find a walk near you at #currentwalks" target="_blank" rel="nofollow noopener">lgsfoundation.org/walk/#currentw…
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Today, initiatives like 'Powering Breakthroughs: Tackling The 3 Grand Challenges in LGS' aim to change these realities by accelerating progress toward Precision diagnosis, Precision treatments, and Whole-life care.
🔗 Read Mason’s full story: lgsfoundation.org/mason-rare-doe…
English
The Cure LGS 365 Research Grant funds basic, translational, and clinical research on LGS, accepting proposals year-round.
Priority areas include biomarkers, disease-modifying therapies, neurodegeneration, natural history, quality of life, and more.
lgsfoundation.org/365-research-g…
English
Did you know that the LGS Foundation and @DannyDidFoundation have partnered to bring seizure safety devices to families living with Lennox-Gastaut Syndrome (LGS)? 💚
lgsfoundation.org/apply-for-our-…
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LGS Foundation me-retweet
Neurelis is proud to support the movement to Walk for Lennox-Gastaut Syndrome (LGS) Research. Join the community and learn more from @LGS_Foundation at lgsfoundation.org/walk/. #WalkForLGS #TogetherForABreakthrough
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This month, we’re stepping together to fund research that changes lives, tackling the 3 Grand Challenges in LGS: precision diagnoses, precision treatments, and whole-life care for those impacted by LGS.
👉 Find all the Walks here: lgsfoundation.org/walk
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💜 April is here, and the Walk for LGS Research is happening all across the country! 🎉
Every step taken and every dollar raised advances research toward new therapies and improved outcomes for the LGS community.
👉 lgsfoundation.org/walk
Let's do this! Happy walking! 🚶♀️🚶♂️💜
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⏰ Nominations Close TOMORROW - Tuesday, March 31st!
The Leaders in LGS Awards recognize the amazing volunteers committed to supporting the LGS Foundation’s mission to end the devastation caused by Lennox-Gastaut Syndrome.
👉 forms.gle/chHMiosT6yvuAc…
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🚨 The Elevate Patient Assistance Program is NOW OPEN!
Seizure alert devices are one of the most requested forms of support within our community, helping caregivers feel more confident and supported, especially during nighttime hours.
🔗 lgsfoundation.org/apply-for-our-…
English
Today, initiatives like 'Powering Breakthroughs: Tackling The 3 Grand Challenges in LGS' aim to change these realities by accelerating progress toward Precision diagnosis, Precision treatments, and Whole-life care.
🔗 Read Jackson’s full story here: lgsfoundation.org/meet-jackson/
English