#MEAction Network UK

Good news for #WorldMEDay. Gov invests £4.75m in research. Congratulations to Action for ME, The University of Edinburgh, Decode ME Study, Oxford Nanopore Technologies, and the European Bioinformatics Institute (EMBL-EBI). gov.uk/government/new… #MilionsMissing #MEAwarenessWeek

We are supporting @LongCovidAdvoc on #MEAwarenessDay on behalf of the #MillionsMissing & have signed their letter to @rcpsych. You can add your signature using the link in the post below.

Everyone in Scotland is represented by eight MSPs. You can email all eight or as many as you feel able to. You can find a template email, help to find your MSPs' contact details and more information about the campaign on our website meaction.org.uk/news/2026/05/m…

#MEAction Scotland are asking everyone who can, to email their MSPs during ME Awareness Week to provide them with information about ME, tell their stories and stress the importance of ensuring the £4.5 million is spent wisely.

This year, #MEAction Scotland will be running an email campaign aimed at MSPs during ME Awareness Week (11th-17th of May). Last year, in the final budget of that parliament, the Scottish Government earmarked £4.5 million meaction.org.uk/news/2026/05/m…

@KatyBruce108 We have written a guide for those who can't meet their MP in person and want to send them an email or meet by phone or online shorturl.at/pxwux.

@MEActNetUK For those of us who are too ill to meet with our MP, is there a template later for us to contact them with the same request for an NHS service, via email?

𝗡𝗼 𝘁𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁, 𝗻𝗼 𝘄𝗮𝗿𝗱, 𝗻𝗼 𝗡𝗛𝗦 𝘀𝗲𝗿𝘃𝗶𝗰𝗲. 𝗧𝗵𝗲 𝗺𝗼𝘀𝘁 𝘀𝗲𝘃𝗲𝗿𝗲𝗹𝘆 𝗶𝗹𝗹 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗶𝘁𝗵 𝗠𝗘 𝗵𝗮𝘃𝗲 𝗻𝗼𝘄𝗵𝗲𝗿𝗲 𝘁𝗼 𝗴𝗼. #MillionsMissing 2026 read our article & our templates to contact MP shorturl.at/uSfz6. #VerySevereME

Use our instructions and template email to contact your MP shorturl.at/uxewP

𝗧𝗵𝗲 𝗺𝗼𝘀𝘁 𝘀𝗲𝘃𝗲𝗿𝗲𝗹𝘆 𝗶𝗹𝗹 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗶𝘁𝗵 𝗠𝗘 𝗵𝗮𝘃𝗲 𝗻𝗼𝘄𝗵𝗲𝗿𝗲 𝘁𝗼 𝗴𝗼, 𝗻𝗼 𝘁𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁, 𝗻𝗼 𝘄𝗮𝗿𝗱, 𝗻𝗼 𝗡𝗛𝗦 𝘀𝗲𝗿𝘃𝗶𝗰𝗲. They are dying and they need help. They need a specialised service to be commissioned now!

𝗦𝘁𝗼𝗽 𝘁𝗵𝗲 𝗵𝗮𝗿𝗺, 𝗦𝘁𝗼𝗽 𝘁𝗵𝗲 𝗱𝗲𝗮𝘁𝗵𝘀, 𝗦𝘁𝗮𝗿𝘁 𝘁𝗵𝗲 𝘀𝗲𝗿𝘃𝗶𝗰𝗲. #VerySevereME #MyalgicEncephalomyelitis

This campaign is aimed at getting a service set up for the very severely ill but we have not forgotten people who are mild, moderate or severe and will continue working for all people with ME throughout the year.