MND Association VIP & Events

With motor neurone disease, every minute matters. That’s why we’re delighted that the Government has committed to introducing a fast‑track passport for people with MND, helping them access vital support services more quickly. Zoe, who has MND and worked closely with the team behind this important win, has shared her reflections.

The biggest annual conference dedicated to motor neurone disease research in the world will be held in Amsterdam this December. Hosted by the MND Association for the 37th year, we’ll bring together the world’s leading MND scientists to share progress. Read more below.

A new fast‑track passport for people with MND is at the heart of recommended health and social care reforms announced yesterday. We’ve worked with the Commission and our community to shape these proposals through lived experience. Explore the work so far and read more. 🔗

Our Head of Research, Dr Nick Cole, features in a new BBC documentary exploring a possible link between rugby and neurological conditions. 'Ben Youngs investigates: How safe is rugby?' is available to watch now on BBC iPlayer and screens on BBC One at 22:45 on Tuesday 3 March.

A week ago today, we marked the start of a new chapter for the MND Association at a launch event alongside our Royal Patron, HRH The Princess Royal, people with MND and our supporters. Thank you to everyone who joined us and helped make the evening so meaningful. 🔗mndassociation.org/media/latest-n…

A message from MND Association ambassador Charlie Ireland as the Run31 challenge comes to a close. 👏

A privilege as @mndassoc patron to be at the unveiling of their new logo 🧡 I met so many incredible people, sadly many facing MND. Praying for a breakthrough in finding a cure, & for treatments currently available to be accessible to all those who desperately need them 🙏

@UHSFT you must save the lives of those in your area who need Tofersen to stay alive. People will die if you refuse to help them! Please change your mind on this 🙏🏿

A brand isn’t just a logo. It’s everything. Every moment of support, every day of research, every bit of awareness. Find out more about our new look and feel, shaped by you, the MND community.

Thank you @jjanisiobi for being such a great Ambassador for us 🙏

This is us, the MND Association. Renewed, united and driven every day to make change happen. Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.

Mark is fundraising for his neighbour, Harry - helping people affected by MND and their families 💙🧡 That’s his reason why. What’s yours? Sign up today and join #TeamMND.

Thank you so much @luxmy_g from all of us @mndassoc Very grateful 🙏

A magical, festive evening at our Christmas Concert at Christ Church, Spitalfields 🎄 Hosted by patron Charlotte Hawkins, with brilliant readings, uplifting music from the London International Gospel Choir, and a packed MND community singing their hearts out. Thank you to everyone who joined us ✨ #MND

RL Commercial are delighted to confirm that Kevin Sinfield CBE's 2026 ‘7 in 7 challenge’ to raise awareness and funds for the MND community will finish at the @Betfred #SuperLeague Grand Final at Old Trafford on Saturday October 3rd 👏

Kevin Sinfield completes ultramarathon challenge bbc.in/3XFbLPS

Totally agree with today’s Mirror splash headline.. few more deserving candidates for a knighthood than Kevin Sinfield after another astonishing achievement from this remarkable man who does so much for @mndassoc . Please donate to his fundraising page: mndassoc.org/7in7together

What. A. Week. 🧡 Kev, Chris, Dave and the whole team have done it again. The sixth 7 IN 7 challenge, 7 IN 7: Together, is complete, and they’ve raised over £1 million for MND charities. To every single person who donated, sponsored, cheered, shared, and supported: thank you for standing with us all in the fight against motor neurone disease. To the MND community who came out and took part in the extra miles: you are incredible. And to Kev, Chris, Dave, and the entire 7 IN 7 team: there truly are no words. Take a bow, gentlemen - and enjoy a well-earned rest. Until next time - thank you. 🙌 Donate here ➡️ mndassoc.org/7in7together #MND #7in7 #7in7together #ALS #kevinsinfield #teamMND

For the final time, Kev, Chris, Dave and the team have set off on their SEVENTH Ultramarathon in SEVEN days as part of their #7in7Together challenge. 🧡 They are en route to AMT Headingley in Leeds for the finish line. Let’s finish this lads. 💪 To donate ➡️ mndassoc.org/7in7together #MND #7in7 #7in7together

A special message from Cath Muir as Kev and the team set off on the final day of their #7in7together challenge. 🧡