

Peter Hope
850 posts

@IPeterHope
Saving people with ME/CFS time, money, and sanity on the cure-chasing treadmill. Helping them improve QoL and survive the ride.
















Talking Again in 2025 I started eating again in 2024. After 11 years not eating a crumb of food or even drinking a drop of water. I got all fluids and nutrition from tubes inserted into my body. For 11 years. In 2025 I have another big improvement to announce. I have started ‼️ TALKING ‼️ again after 12 years of not saying a word to anyone! What will 2026 bring❓ Talking has been truly AMAZING. A slow process, it started when I slowly started feeling like I could talk again, but my stress response was still very high about it and it was hard to breach that stress wall and say the first words to someone. I first talked to my best friend, who I am really close with, comfortable with and feel very safe with so my stress levels are lower with her. I practiced talking to her on calls and video calls for about 6 months before talking to anyone else. Then I moved on with a few more close friends. It was hardest with my parents and caregiver because of the incredibly high stress I have been through with them in the past during my sickest years - my stress response seems to still be high with them - sensing danger likely due to a PTSD response mixed with the messed up fight or flight response in ME/CFS. But I am now talking to everyone! It is sooo much easier with my caregiver to just tell her what I need instead of pantomiming every little thing for sometimes a long time until she figures it out. What a relief! And I can have conversations with friends and loved ones! I just said goodbye to a lifelong friend who is dying and I got to talk to her on the phone and tell her how much she means to me, the impact she has had on my life, how wonderful she is; And then say goodbye. It was profoundly sad, but it meant the world to me that I got to talk to her and say goodbye at all. She is not online and does not text, so it would have been so devastating not to have that last connection with her… Read, watch or listen to the whole post on my blog! whitneydafoe.com/mecfs/?post=ta… ================= ================= #mecfs #chronicillness #pwME #LongCovid #Disability














