Intractable Epilepsy

2/2: Please help us to spread awareness as we are the only registered children’s charity in the U.K. set up to help pay for epileptic children’s cannabis oil prescriptions. (We all volunteer and do not get paid by the charity!).

Behind every seizure is a child, a parent, and a fight that never stops 💜 For many families, that fight includes access to treatment 🌿 This #PurpleDay we raise awareness for epilepsy and the reality families face daily. Why is access still a battle? ⬇️

Researchers at Glasgow Caledonian University are developing a wearable headset to help predict epileptic seizures. The AI-powered device analyses brain and heart activity and has shown encouraging results in early tests. Click here to read more: bit.ly/3Nc4Uv2

Today, we’re proud to spotlight @IntractableUK , our GreenShield Award recipient, and to honour the parents whose courage changed the course of UK medical cannabis history. Nearly seven years after the law changed, too many families are still forced to privately fund life-saving cannabis medicines — often at enormous personal cost. #Intractable exists because those families refused to accept that injustice in silence. Led by parents, powered by compassion, and sustained by tireless advocacy, Intractable continues to stand beside families navigating a system that still doesn’t meet their children’s needs. This work saves lives. And it’s far from finished. We’re honoured to recognise Intractable — and to stand with every family they support. #endourpain @End_Our_Pain cannabissciencetraining.com/blog/greenshie…

🏃‍♂️💚 Four local legends are taking strides for a cause that matters! Join us as Paul, Chris, Dan, and James hit the pavement for the Great North Run, raising funds and awareness for Intractable Epilepsy. #RunForACause #IntractableEpilepsy #GreatNorthRun ajbellgreatnorthrun2025.enthuse.com/intractableepi…

🚨 It's Great North Run day! 🚨 Cheer on our Intractable Charity runners raising funds for epilepsy! Track them in real-time: Paul - 55651 Chris - 62713 Dan - 55653 James - 55652 ❤ Donate: ajbellgreatnorthrun2025.enthuse.com/intractableepi… luck, everyone! 🏃‍♂️🏃‍♀️ #GreatNorthRun #TeamIntractable #EndOurPain

🎉 Last year, we had so much fun at the Great North Run while raising money for children with intractable epilepsy! This year, our runners are all set and ready to go. Please support them. 💜 ajbellgreatnorthrun2025.enthuse.com/intractableepi…

This National Epilepsy Week, we must highlight the ongoing struggle for children's access to medicinal cannabis in the U.K. Despite 2018's legal changes, many remain denied NHS access. We need clearer guidelines, better education for doctors, and a commitment to patient care!

We are saddened by the passing of Hannah Deacon, a pioneer for medicinal cannabis access in the UK. Her legacy will inspire many parents and benefit countless children in the years to come. hannahdeacon.co.uk

@ClinicsIntegro @epilepsysociety @MedcanFamily @epilepsyaction @youngepilepsy @EpilepsyInst Thank you for your support on International Epilepsy Day. #PurpleDay2025

Today is #PurpleDay! 💜 A global grassroots event to increase worldwide awareness of epilepsy. To get involved, please visit: @epilepsysociety @MedcanFamily @epilepsyaction @youngepilepsy @IntractableUK @EpilepsyInst To donate, volunteer, and educate yourself and others.

💜 Today, we celebrate Purple Day for Epilepsy! Ben's seizures dropped 98% thanks to medical cannabis. He’s thriving, but access in the UK is limited. We fight for change with other End Our Pain parents! #PurpleDay #EpilepsyAwareness intractable.org.uk/epilepsy-aware…

Whether you're a seasoned runner or a beginner, this is your chance to get active, challenge yourself, and make a difference. Sign up to raise funds for charity while improving fitness and spreading awareness about epilepsy. Every step can change a life! justgiving.com/campaign/intra…

Alf, diagnosed with epilepsy 8 years ago, faces severe seizures and hasn't been to school since March 2023. We're fighting for access to medicinal cannabis, which could transform his life. Read the full story below. #PurpleDay2025 #EpilepsyAwareness intractable.org.uk/donate-1

Today is International Epilepsy Day. Sending love and support to everybody in the world with this condition. #InternationalEpilepsyDay #Epilepsy #EpilepsyDay #allontheboard

The aftermath of having a seizure is sometimes described as experiencing post-workout pains and can cause sufferers to feel muscle aches. So, to replicate that feeling, we are challenging you to participate in our “100 miles to stop 100 seizures” campaign justgiving.com/campaign/100mi…

Purple Day for Epilepsy Awareness! 💜 Meet Murray, a brave boy with Doose Syndrome, now seizure-free and thriving in school after fighting for vital cannabis oil treatment. Let’s advocate for access to care for all! #PurpleDay #Epilepsy #HopeForChange intractable.org.uk/epilepsy-aware…

#PurpleDay2025 intractable.org.uk/epilepsy-aware…

🌍💜 Today is Rare Disease Day! Did you know that approximately 1 in 1,000 people in the UK are affected by rare epilepsies? Together, we can raise awareness and advocate for better access to care! #RareDiseaseDay

This International Epilepsy Day, we invite families affected by intractable epilepsy to share your experiences with medicinal cannabis. Your stories can help others facing similar challenges. Join us in raising awareness! #InternationalEpilepsyDay intractable.org.uk

Sadly, many children and families are unable to access private prescriptions, as the overwhelming demand has forced private clinics to stop accepting new patients. This situation highlights the urgent needs of children with severe, intractable forms of epilepsy in the U.K.

Today in Westminster Hall at 1:30pm, politician’s debate the lack of NHS access to medicinal cannabis. If you would like to watch here is a link: search.app/kUvbpJ1j7JKWAS…