Michelle Lavin

@ProfMakris @WHO This commentary really highlights the lack of expertise in the @WHO expert panels and reeks of old fashioned paternalistic medicine - the “we will tell you what you need” approach rather than listening to people with haemophilia and providers with expertise.

I strongly disagree with this commentary in the journal Blood Transfusion. The authors try to justify the decision of the @WHO to have cryoprecipitate and pathogen reduced cryoprecipitate (rather than FVIII concentrate) for the treatment of #hemophilia in the list of essential medicines. I do not know of ANY hemophilia treater who agrees with the World Health Organisation policy. What they recommend is dangerous for persons with #hemophilia in poor countries. Pathogen reduced cryo is only available in a tiny number of countries (?2). So essentially they are recommending unsafe cryoprecipitate and suggesting these poor countries introduce the technology to pathogen reduce the cryoprecipitate. It is about time that the @WHO includes hemophilia treaters in the "expert panel" who make recommendations for treatment of persons with hemophilia. tinyurl.com/mtuyt5fs

@MarjoleinR I read your story & just wanted to check that your doctors had considered a bleeding disorder like von Willebrand disease & sent testing? A lot of my patients had similar stories,might be alongside adenomyosis. Thanks for highlighting struggles to access care for heavy periods.

MAM IM IN THE GUARDIAN AND SO ARE YOU

“Back when we didn’t have haemophilia treatment, at least we had each other”-what a moving statement from Marko Marinic #WFHCongress2024. Really expresses the vital role of national member organisations and peer support for people with haemophilia @EHC_Haemophilia @wfhemophilia

@FIGOHQ @fwgbd @isth @EHC_Haemophilia @EAHADnews @ASH_hematology @wfhemophilia

I wasn't involved in that work from @FIGOHQ but delighted to contribute to their new statement on HMB and the link to iron deficiency - hopefully this will reframe perceptions, please share widely! figo.org/resources/figo…

For anyone interested in women's health, HMB, iron or paediatrics this supplement was a great read. Thanks to @FIGOHQ for supporting awareness of the impact of iron deficiency. This is a global health problem that society and doctors largely ignore. figo.org/news/new-ijgo-…

Just your regular reminder that if an adolescent patient tells you their periods are “fine” it’s a good idea to ask some more questions.

At our October Conference we provided free period products, including Tampax and Always products. This was thanks to @MeaghersPharmcy. We also included a useful infographic from Know Your Flow which includes information about what makes a heavy period. @sortoutbleeding

Go team #thrombosis! #WTday22 @stjamesdublin @ThrombosisIrL

Being on service I'm only getting to post now but our thanks to @ThrombosisIrL for all their great awareness materials and to our NCC team for all their work promoting #thrombosis awareness yesterday @stjamesdublin for #WTDay22

We even had @dashcontainer cafe outside @stjamesdublin the hospital in on the #WTDay22 awareness campaign @ThrombosisIrL

Great initiative from everyone at @ThrombosisIrL for #WTday22 - cups and tray liners branded for thrombosis awareness - our thanks to all the cafes and catering @stjamesdublin for using them to highlight thrombosis awareness

@stjamesdublin @anugeorge617 @Annsully1958 @IrishCtrVascBio

Just a final tweet about #WTDay22: this is just one day a year but @ThrombosisIrL promote thrombosis awareness all year round. We want to acknowledge the enthusiasm, passion & determination from Ann Marie and the whole team at thrombosis.ie - thank you all

@stjamesdublin lit up for #thrombosis awareness last night for #WTDay22 @ThrombosisIrL @isth

Feeling very fortunate to be awarded an IRC Laureate grant from @IrishResearch to continue our research on understanding #cancer associated #thrombosis @RCSIPharmBioMol @RCSI_Irl @IrishCtrVascBio #WTDay22 Excited to see the O’Sullivan lab expanding 👩‍🔬🧑‍🔬 #loveirishresearch

As a hematologist who cares for "carriers" I often don't get involved until they are pregnant... when they've often spent years with abnormal bleeding that could have been addressed. Getting a diagnosis and looping folks into care early should be a priority!

Very grateful to @cecile_denis and colleagues for their fantastic commentary on our recent published work in @JTHjournal onlinelibrary.wiley.com/doi/full/10.11… congrats @Sps_dhami for your hard work @RCSIPharmBioMol @IrishCtrVascBio full text @ doi.org/10.1111/jth.15…

Heavy periods, also known as heavy menstrual bleeding (#HMB), are a common symptom of a bleeding disorder. If you have any of these signs of HMB, a bleeding disorder might be the reason behind your heavy periods. For more info on #BloodDisorders: bit.ly/3Mg9Sl5.