AFCOS Study

Now online and open access- AFCOS: The Development of a Cryptoglandular Anal Fistula Core Outcome Set Published in @AnnalsofSurgery @BowelsOfStMarks @StMarksFRU @COMETinitiative @escp_tweets journals.lww.com/annalsofsurger…

Huge thanks to all participants and collaborators for supporting this project! @nusiqbal @DrUgoGrossi @philtozer1 @debby_keller @ZimNl @IEGecim @pfclung @AikateriniLeve1 #fistula #colorectalresearch #colorectalsurgery #SoMe4Surgery

Now online and open access- AFCOS: The Development of a Cryptoglandular Anal Fistula Core Outcome Set Published in @AnnalsofSurgery @BowelsOfStMarks @StMarksFRU @COMETinitiative @escp_tweets journals.lww.com/annalsofsurger…

Enhancing patient-centered care by offering patients a voice 👉 the impact of cryptoglandular anal fistula extends beyond the physical symptoms of pain and discharge. link.springer.com/content/pdf/10… @nusiqbal @escp_tweets

Patient input into #AFCOS was crucial, we look forward to sharing the full study soon! #colorectalresearch #colorectalsurgery #fistula #PPI #SoMe4Surgery

Our interviews highlighted problems in: ❎️ Diagnosis ❎️ Communication ❎️ Expertise ❎️ After care As well as extensive impact on #QoL and a lack of focus on patient centred outcomes

New: How can we improve #fistula research and clinical care? By listening to patients themselves 👇🏽 link.springer.com/article/10.100… @nusiqbal @DrUgoGrossi @Dr_AlRubaiy @philtozer1 @StMarksFRU @SpringerNature

Do you have or manage pouch anal or vaginal fistula? Get involved in our sister study! 👇🏽#colorectalsurgery #colorectalresearch #IPAA #SoMe4Surgery #ilealpouch

Calling all fistula warriors! Please help us complete this anal fistula quality of life score & help change the face of fistula research and treatment! Just complete the questionnaire to validate this PROM developed by & for patients @KSahnan @nusiqbal @LillianReza @philtozer1

Are you a patient with a non-Crohn’s anal fistula? We are developing a tool to measure quality of life and need your input 👇🏼

The resulting shortlist was recently discussed by a panel of patients and clinicians, to determine the final Core Outcome Set. We look forward to sharing our results soon!

To develop the COS, outcomes reported in literature were supplemented with those derived from patient interviews, then put to an international Delphi

Why do we need a Core Outcome Set for cryptoglandular anal fistula? Review of the literature highlights heterogeneity of outcome reporting in fistula research. See our open access article! @philtozer1 @DrUgoGrossi @KSahnan @nusiqbal @StMarksFRU link.springer.com/article/10.100…

Only 2 weeks left to complete AFCOS round 2! Thanks to all those who have contributed so far @DrUgoGrossi @philtozer1 @StMarksFRU @StMarksHospital @escp_tweets @EsgarSociety @my_ueg @ACPGBI

@escp_tweets @EsgarSociety @juliomayol @my_ueg @GianlucaPellino @debby_keller

Huge thanks to the 200+ participants who completed AFCOS round 1. ROUND 2 IS NOW OPEN! Follow the link in the email, and tell us how we can better assess treatment for anal fistula @philtozer1 @DrUgoGrossi @ZimNl @StMarksHospital @StMarksFRU @ACPGBI

Only 1 week left to register and complete round 1! @philtozer1 @DrUgoGrossi @StMarksFRU @StMarksHospital @escp_tweets @EsgarSociety @BSGAR_UK @ACPGBI @my_ueg @ZimNl @GianlucaPellino @juliomayol

Only 2 weeks left for registration and round 1! Get involved @StMarksFRU @ACPGBI @escp_tweets @BSGAR_UK @EsgarSociety @DrUgoGrossi @ACPGBI_PLG @philtozer1 Thank you to all those who have participated so far!

AFCOS Study..

Thanks to everyone who has already filled in and to everyone who’s about to! This a great, patient centred initiative driven from across Europe and open to the whole world! COS, COS, COS!!!

@ZimNl @dr_samehhany81 @CantarellaDr @Gae_Gallo @philtozer1 @eloiespin @GianlucaPellino @IntColoproct @TKRCD_ @escp_tweets @ASCRS_1