Be More Ruby 🎗🦄💗⭐️🌈

This photo was taken 3 years ago today. The day she was diagnosed with the cancer that took her life 28 months later. A happy healthy girl. Except she wasn’t healthy. She had Stage 4 ARMS. Help us change the story for other children & their families. bemoreruby.com

Thank you @thecourieruk for continuing to share Ruby’s story. Research is key to improving outcomes for children with cancer🎗️ #ccam #rhabdomyosarcoma #childhoodcancerresearch

Ruby’s mum spoke to Laura Maxwell this morning on Good Morning Scotland. Talking about Ruby, research and rhabdomyosarcoma. You can listen via BBC Sounds from 08:42 - 08:47. New research is key to changing the future for children like Ruby 🩷🦄 bbc.co.uk/sounds/play/m0…

📢 The 1st spin-off project from the baseline review has been published! The Local-REFoRMS paper looking at the use of combined surgery & brachytherapy for children/young people with relapsed/refractory #rhabdomyosarcoma is now available online! 👇 onlinelibrary.wiley.com/doi/10.1002/pb…

This means so much to us. Huge thanks to @InchturePrimary for raising this incredible amount to pay for the installation of a Be More Ruby bench in the school grounds 💗🦄 A lasting legacy for our girl. She would absolutely love it. #teaminchture #bemoreruby

@InchturePrimary Fantastic 💗🦄

P1-7 enjoyed a morning of .@BeMoreRuby1 themed activities for their Term 3 House Event day, focusing on everything bright, sparkly, with lots of singing, dancing and encouragement towards one another. 🔵 🔴 🟡 🟢 #TeamInchture

Be More Ruby day at @InchturePrimary! So grateful to Ruby’s school for continuing to remember and celebrate her life 💗 More photos to come 😍 #teaminchture #bemoreruby

International childhood cancer awareness day. Reminding people of the stats and why change is needed. #sophieslegacy #childhoodcancer

We chatted about the use and design of the online resource. All of this information will be used to improve the accessibility and transparency of research into treatments for children with relapsed/refractory #RMS And we even finished the day with some amazing cupcakes!!

@REFoRMS_Rhabdo It was a great day! Thanks so much for the cupcakes and marking Ruby’s birthday in such a lovely way 🩷

The REFoRMS #rhabdomyosarcoma workshop was a success!! We want to say a massive thank you to everyone who attended! Your voices have been heard and we will make sure to build upon everything discussed today in creating the online resource! #PPIimpact #PublicInvolvement

Happy birthday Ruby 🩷 You should be 11 today. We should be celebrating with you. Instead we are joining kindred spirits and clever minds to work on a resource to help children like you. We miss you. We love you 🩷💔

@InchturePrimary This is brilliant!! Thank you so much 😍🩷🌟

Many thanks for all of the kind donations at our church service. We raised £183.30 for .@BeMoreRuby1 #TeamInchture

📢CAN YOU HELP? We're developing an online resource about Living-REFoRMS to let families & professionals access info about studies in the review. We’d love you to get involved if you have experience of #rhabdomyosarcoma - fill out the form: forms.gle/oYuozX5CrJ2jei… or email/DM us

Very proud to be involved in this research. Representing our daughter’s wishes to help others like her 🩷🦄

@BenLegacyOfLove @theJeremyVine 🩷

@BeMoreRuby1 @theJeremyVine So brave

Today on @theJeremyVine Listen from 1:31:35 to hear Ruby’s mummy talk about anticipatory grief. The life of a child forever changed by cancer is a life that creates grief, regardless of the outcome. So much more to say… bbc.co.uk/sounds/play/m0…

@Lesley__King @theJeremyVine Thank you Lesley 🩷

@BeMoreRuby1 @theJeremyVine I heard. You talked so eloquently. I did wonder if it was you.

LAUNCH OF OUR 25TH ARC IN THE UK - NEIVE'S ARC Welcome Neive's Arc to our ever-growing army of UK Arcs. Neive is currently on palliative care. She has run out of treatment options. This is not good enough. Read her story here. #thearcs #rhabdomyosarcoma alicesarc.org/arc/neive-warw…

Our Art in the Park #childhoodcancer art exhibition is on display in the woods near the Coventry Peace Orchard until 24th Sept. It's a lovely space to display the art and stories Video credit: Shawry's Videos and Images #GoGold #CCAM #ChildhoodCancerAwarenessMonth #Covhour

@PassTheSmileOrg Along with Ben and all of the other children stolen from us 💔 #gogold

@BeMoreRuby1 We wish Ruby was here to create more too 💔

We wish we lived nearer so we could visit this beautiful exhibition. Thank you @PassTheSmileOrg for organising it and including Ruby’s art once again. It looks lovely. A perfect, peaceful setting for this important #CCAM display. We wish Ruby was here to create more 💛🎗️