CCHS Network

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CCHS Network

CCHS Network

@CCHSNetwork

A 501(c)3 organization dedicated to raising awareness, funds, and family support for congenital central hypoventilation syndrome (CCHS), a rare orphan disease.

www.cchsnetwork.org 가입일 Eylül 2011
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CCHS Network
CCHS Network@CCHSNetwork·
The 9th Annual International CCHS Day is exactly one month away. Let your light shine for our rare disease on September 23rd and help guarantee a brighter future for our community! For full details, click on the link in bio or go to cchsnetwork.org/cchs-day-2023.
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CCHS Network
CCHS Network@CCHSNetwork·
TWITTER Happy CCHS Day! Watch our call to action video below, and post your own wave videos, or tag a friend for the #jointhewaveforcchs challenge. Go to cchsnetwork.org to donate and learn more about this heartbreaking disease
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