Kristen

How we feeling tonight Spurs fans?

@VinoNStrosGal 😭facts. I just made a "resume" about a new problem that I have that has some big bright minds so confused. It's never easy, is it?

You’re not a “complicated patient.” You’re what happens when a human being doesn’t fit into a checkbox.

hornets are about to give Orlando the beating of their life

@VinoNStrosGal Lifting up up! 🩷 surrounding you with prayers.

If you’re in the Ehlers-Danlos or Marfan community, you already know what a “zebra” means. Tell me this wouldn’t shake you, even for a moment. After multiple ER visits, I was diagnosed with a 4.5 cm symptomatic Tarlov cyst at S1–S2, with sacral bone remodeling, and went into my appointment yesterday prepared to discuss next steps with my newly assigned spinal surgeon. After pulling up the imaging and going through various slices, he turned around, looked me straight in the eyes, and said: “This is not a Tarlov cyst.” I wasn’t going to post this yet. I wanted answers first. Certainty. But the reality is, those gaps between imaging and answers, that’s where patients live. And it messes with your mind. So I’m sharing this with my chronic illness and chronic pain community because awareness matters, and so does perspective. As we went through the slices together, everything shifted in a matter of minutes. He then told me: “You have a mass in your pelvis.” He called it a zebra, something rare, less than 1%. Hearing that in real time, after being told something completely different, there’s no way to fully prepare for that moment. He moved quickly. Urgent referrals. Calls to colleagues. “Evaluate pelvic mass.” I now have a plan in motion. To be very clear, I am not asking for a diagnosis here. But I am open to thoughtful, professional perspectives, especially from radiology, surgery, or pelvic specialists who may come across this. Not to replace care. Not to override my team. Just more eyes, more context, while I navigate this. Because if you’ve been here before, you know, waiting is its own kind of weight. And if sharing this helps even one person advocate for themselves sooner, then it’s worth it. 🚨The three images are included for context: Image 1, axial T2 view of the sacrum and pelvis Image 2, closer view of the left sacral region, where the arrows are pointing to the area in question near S1–S2 Image 3, sagittal view including the bladder, included because that relationship was noted as significant during my consult

@VinoNStrosGal Understand this fully. I have one that checks all those boxes, too! Here she was with me at my infusion center on Monday. Just pure unconditional love. (Her name is Pearl 🥰)

@DigitalDiva ♥️Thank you…She legit has become the best thing that has ever happened to me in my entire life…reason being, she comforts me in my darkest moments and never leaves my side. That kind of unconditional love won’t ever be found in another human being.

i don’t care what’s on your timeline right now, this is the only thing that matters for a minute 🤍 this is Effie, my second-generation goldendoodle, turning two in June… currently draped across my knee like a living teddy bear who decided personal space is optional look at her paws… completely relaxed, folded forward like she trusts the moment so much she doesn’t even hold tension. i’m sitting here playing with them and she won’t even pull away. that kind of trust? you can’t fake it and that white pillow at the top of the bed? that’s not decoration… that’s hers we’ve got a whole nighttime ritual around 9, it’s bedtime, for both of us. i take her out one last time, then she comes back in and walks up her little staircase onto the bed, no jumping, just routine like she owns the place i pull her pillow into place, look at her, and say “night night” and she knows head down on the pillow, front paws tucked up like a little kid getting tucked in, just waiting i lay a blanket over her, she looks up at me, i kiss her forehead… and she gives me a tiny lick on the nose back like it’s part of the agreement lights out. every night and yes, she drinks her water out of a human dixie cup, because apparently that’s just who she is people say “ride or die” like it’s a phrase but this little girl lives it no matter what kind of day i’m having, she meets me right here, soft, steady, and all in and honestly… that kind of love? it changes everything 🥰

@DiaryofaSickGrl My dog is my BFF!! Love her to bits.

Our dogs have never been “just a dog” to me. They’re family. They check on me when no one else does. They stay by my side when they know I’m not doing well. Being mostly housebound, I see them more than I see most people. They genuinely bring me so much joy!

@VinoNStrosGal morning!!

@Renatta Good night, Renatta!

You don’t have to have it all figured out tonight. Just breathe, pray, and know that God is in control. Good night, y’all. I love you all, and God loves you even more.

@spurs That first win against Oklahoma...was a, this could be a fun season, moment! #GoSpursGo

🎉 T-SHIRT GIVEAWAY 🎉 To enter: 🔁 Repost & like this post ⤵️ Reply below with your favorite moment from this season One winner will be selected and DMed by tomorrow Tuesday 4/14 at 12pm CT. Full giveaway rules in bio. Good luck and GSG!

@VinoNStrosGal This one's a little raw as it happened last week...after showing my med list... <laughter> Turns to his fellow and says she has to see this... "Well now we know why the pharmaceutical industry is still in business!"

What’s something a doctor said to you that you still think about?

@ThePOTSPostman I am so very much with you. As we all do, have stories for days...

@DigitalDiva They are all so obnoxious, makes me 😡.

Some of you doctors on here are way too comfortable mocking hEDS, POTS, LC and MCAS patients. You’re not being skeptical. You’re being lazy. It takes zero effort to dismiss a condition you don’t understand. It takes actual work to learn it. These conditions have diagnostic criteria. They’re in the literature. They’re recognized across specialties. Yet somehow, somehow your takeaway is “everyone’s faking it.” Or “It must be anxiety.” We didn’t invent these illnesses. Medicine did. Researches did. Patients aren’t the problem. Loud, dismissive, confidently behind doctors are. You’re the weak link in the system that’s moving on without you.

Hey @AnthemBCBS @MountSinaiNYC: please be adults. It's high time - you may think you're helping your patients, but you aren't. We're the ones struggling due to your contract bickering. It's time to do this.

@VinoNStrosGal He is risen indeed!!

He is risen. And somehow, in ways we may not fully understand yet… so are we.

He is risen. To my chronic pain and chronic illness community, those walking this road with me. For those who share my faith, and for those who don’t but are here alongside me, I know this day can feel complicated. For many of us, our bodies don’t rise with us. Some of us are still in the same bed, the same pain, the same fight. So today, I’m not talking about standing up. I’m not talking about healing timelines or miracle recoveries. I’m talking about something quieter. A kind of rising the world doesn’t always see.

YOU don’t want DeSantis to be the next AG because you’re an anti-conservative retard. I don’t want DeSantis to be the next AG because I don’t want him to be trapped between doing what is necessary and massaging Trump’s ego. We are not the same.

@DominguezCinco Just ordered one to wear in NYC! #GoSpursGo

These are the two limited edition playoff T-shirts the Spurs are selling for the opening round of the playoffs. They are available at the Official Spurs Fan Shop at Frost Bank Center, the Fan Shop presented at The Rock at La Cantera and online at SpursFanShop.com.

@hymnduncan Congratulations!!

500-IQ win by Coach Mitch Johnson 🧠 Knowing that I’m on my honeymoon in Japan, he ensured the game was never close so that I never felt the urge to stream the game putting my new marriage at risk. Family-oriented coach and organization 🤝

@0hour1 We should make DeSantis in charge of the US