HelpForTeagan

Nominated again for @ndawards 💜 If you'd like to vote please follow the link. Thank you xx nationaldiversityawards.co.uk/awards-2024/no…

Unable to continue the long-term costs of advanced cannabis medicines, Teagan has deteriorated, requiring intubation. Further treatments haven't been effective. We hope @DHSCgovuk considers our recommendations and brings about urgent access. #dravetsyndrome #epilepsy

Epilepsy you won't win 💜 #epilepsywarrior #helpforteagan

So very grateful to be on this show tomorrow! Thank you #BBunker #helpforteagan

This is the effect #Wimbeldon has on Teagan 💜 Who knew it was that entertaining 🤣 #HappyFriday

Joining me & @julesserkin on next weeks #BBunker Radio Show our guests are Oliver & Lucy @prinfab Emma @ForTeagan All the details here ==> bizradio.co.uk

So grateful to @JasonManford and @AshleyBanjo for making the time to meet Teagan today 💜 Thank you so much. Definitely recommend @yellowbrickroad - it was a fantastic show!

#ThereSheGoes It still hits true and depicts the realities & little moments life throws up as a #rarechromo parent. It just keeps on delivering & removing the mystery of our world & a shout out in the episode for @Unique_charity too 😊 #idic15 #dup15q

Spent the day interviewing parents of children left in a bleak situation with their cannabis prescriptions. Many are going to end up back in ICU. Some will die. Because funding and manufacturing their medication in the UK isn't profitable. The price of a child's life.

When @JasonManford likes your tweet 💜💜

On a more positive note - 'We're off to see the wizard ' on Sunday at The @LondonPalladium. Keep an eye out for us @JasonManford and @AshleyBanjo - we'll be in the front row (for Teagan's benefit of course 😉) 💜 @yellowbrickroad #wizardofoz #helpforteagan #relaxed

For those of you who haven't seen the update on our tiktok page..... Things are extremely scary right now. We don't know what's going to happen #helpforteagan We are scared for Teagan 💔

🚨DEVASTATING NEWS🚨 It's been confirmed today that the doctor that was hoping to step in to prescribe for Teagan is now NOT happening!! We've also been told Teagan's main oil company have closed down. This is the worst possible news we could have got 💔 #medicalcannabis

#epilepsy is now affecting Teagan's skills. I have no idea what's going to happen next month when her private doctor retires 💔 @NHSEngland need to do something desperately #medicalcannabis #helpforteagan

Today we have been told when Teagan's private doctor retires in July there is no replacement! This puts Teagan's life in danger. She needs this medication. Please help us share this. #NHS and #government need to step in. Teagan could end up back like this imminently 💔

This is such an important video.....make it one you watch today #epilepsy #firstaid #seizure

Finding your community can make all the difference. We're here for you. #MentalHealthAwarenessWeek

NATIONAL DIVERSITY AWARDS 2023 IN ASSOCIATION WITH @itvnews Last chance to vote today!! Please vote for Teagan using this link 💜 @ndawards nationaldiversityawards.co.uk//awards-2023/n… #NDA #NDA23 #NationalDiversityAwards #NominationsNowOpen #Vote

@associated_cbd @DrNijSingh No, this is for full extract oil

@ForTeagan @DrNijSingh Heartbreaking - is this for Epidiolex?

Just a very small snippet of our life living with #epilepsy. Teagan isn't #seizure free but her quality of life is so much better now she's on #cannabis oil. Unfortunately we still have to pay thousands of pounds privately for it. I will continue to fight with the #NHS

I attended @cannabiseuropa last week and spoke on a panel about the continued issues around access for children to cannabis based medicines. I was humbled to hear about what happens when there’s no access, families are forced to illegally access cannabis. (1) #westandwithyou