Just Looking
6.8K posts

Just Looking
@JessLooking8
Bedridden PoGM #SevereME #POTS #MCAS #hEDS #ChronicPain. There is no liberation without disability justice. #CovidIsAirborne

I hear you, but I still disagree. Advocating for Very Severe and making it the poster child (while still touching on the other stages) will only benefit the disease overall. It will not make things worse for ‘Mild’ people than it is today. 👈🏼 This point is important. One of our biggest problems is that ME/CFS is spoken of as a general chronic illness at best, and depression you can just snap out of at worst. Making Very Severe the poster child, gives such a clear image of what this disease actually is, the danger of it, and emotionally imprints what the disease looks like without having to over explain the disease. Or explain it at all. Healthy people don’t remember the science, any details, any symptoms of any disease. All they remember, is the feeling, the fear, imagery or a slogan. Advocacy to reach sick people with me/cfs is important too. But if ME/CFS can get *more* attention through the shocking factor, it gives a bigger stage to the disease, where you again get the opportunity to say, here are the different stages, do you identify?

Do you remember when you joined X? I do! #MyXAnniversary Life’s so much worse. Links to help my sorry arse: Info below & see 13 yrs on X 🙁 💸Fund: chuffed.org/project/161937… ☕️BMaC: buymeacoffee.com/Halcionandon 🎁Amazon: amazon.com.au/hz/wishlist/ls… ᯓ➤Beem: Halcionandon






Very severe #mecfs should be the poster child for the disease. Not its most “mild” stage. The messaging needs to shift. I worked on a post for weeks to represent stage 3 & 4, & asked for input from other sick people and healthy people. This post is now up on insta. #longcovid


Highlighting extremely severe cases: I came across this girl on Reddit. Extremely severe #mecfs, can only or barely move her fingers. She’s in the hospital and not being treated like a human. Has no support and wants to hire more care. Malnourished and in extreme pain. I donated. If you can, do so🤍 The sickest in our community needs support the most. Don’t look away. Donate ko-fi.com/aliwme Reddit post reddit.com/r/cfs/s/xnYVTm…

The coming global food crisis ft.trib.al/1NlgolS

No one should be planning to have a child. Your child will not thank you for bringing them into the apocalypse. Literal hell on earth is coming. Everyone who has the privilege of knowing the truth has the absolute duty to share.


Did you know that, in the aftermath of the 1918 flu pandemic, deaths from cardiovascular diseases soared and continued to rise for over 40 years? From 1960 onwards, deaths from heart disease steadily declined as the younger age groups infected during the pandemic gradually died.


BREAKING: Louisiana has advanced one of the cruelest anti-homeless bills in the country. It would force homeless people to choose between jail and involuntary treatment, make them pay for it, and if they can't pay, force them to perform unpaid labor. housingnothandcuffs.org/2026/04/16/sta…









